New Type 3c

AuntieSue

Newbie
Messages
3
Type of diabetes
Type 2
Hi all,

Just been told that I am type 3c, caused by chemotherapy last year. After months on gliclazide, Linagliptin and Empagliflozin, have now been moved on to insulin - Lantus & NovoRapid. Only started 3 days ago, and although numbers are not quite in the target range, they are better than when on the tablets. Any help & advice very welcome for this newbie. Thanks x
 

Ledzeptt

Well-Known Member
Messages
591
Type of diabetes
Type 3c
Treatment type
Insulin
Dislikes
Liquorice and aniseed (especially the tracer I have to drink in hospital before a CT scan - yuk!)
Hi @AuntieSue

The general advice that @daisy1 gives to type 1s may help you - she'll send a message shortly.

It takes a while to get the hang of insulin dosing, so you're doing well to get close to target within 3 days, but don't get anxious if things don't go to plan straight away. Get as much help from your doctor/diabetes specialist nurse(DSN) or consultant as you can.

The type 1 threads have detailed advice on insulin management and carb counting too.

I also recommend the book "Think like a pancreas" by Gary Schneiner.

All the best and try not to get overwhelmed (I imagine last year was tougher) :)
 
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Reactions: AuntieSue

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@AuntieSue

Hello AuntieSue and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be useful to you. Ask as many questions as you like and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

AuntieSue

Newbie
Messages
3
Type of diabetes
Type 2
@AuntieSue

Hello AuntieSue and welcome to the Forum :) Here is the Basic Information we give to new members and I hope it will be useful to you. Ask as many questions as you like and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 250,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.

Take part in Diabetes.co.uk digital education programs and improve your understanding. They're all free.
  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why
  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.

Brilliant - exactly what I was looking for! Thank you for your help and support x
 
Last edited by a moderator:

billy3c

Member
Messages
9
Hi all,

Just been told that I am type 3c, caused by chemotherapy last year. After months on gliclazide, Linagliptin and Empagliflozin, have now been moved on to insulin - Lantus & NovoRapid. Only started 3 days ago, and although numbers are not quite in the target range, they are better than when on the tablets. Any help & advice very welcome for this newbie. Thanks x
Hi Sue, I too have just been diagnosed with type 3C diabetes, however mine was a side effect from surgery. I have been struggling with diabetes since my surgery, as my GP and diabetic nurse didnt know anything about type 3C. It was only when I went back to the hospital where I had the surgery that the diabetic nurse told me and explained the difference between this and type 2 or 1. Mainly the difference is that mine is due to having a large part of my pancreas removed, so losing most of my insulin producing cells, but also most of my alpha cells, which produce glucagon, which is the counter to insulin. One thing I was told is that this diabetes cannot be managed by diet alone, unlike type 2. I am still researching and trying to get information, but due to so many health professionals being unaware of type 3C, information is scarce.
 

Starburst02

Member
Messages
20
Type of diabetes
Type 3c
Treatment type
Insulin
Hi Sue, I too have just been diagnosed with type 3C diabetes, however mine was a side effect from surgery. I have been struggling with diabetes since my surgery, as my GP and diabetic nurse didnt know anything about type 3C. It was only when I went back to the hospital where I had the surgery that the diabetic nurse told me and explained the difference between this and type 2 or 1. Mainly the difference is that mine is due to having a large part of my pancreas removed, so losing most of my insulin producing cells, but also most of my alpha cells, which produce glucagon, which is the counter to insulin. One thing I was told is that this diabetes cannot be managed by diet alone, unlike type 2. I am still researching and trying to get information, but due to so many health professionals being unaware of type 3C, information is scarce.
Hi Billy, I am Type 3C diabetic as result of surgery removing a portion of my pancreas. I think what portion and how much of the pancreas was removed will determine the correct treatment approach. I had a section removed from the head of my pancreas, and I became diabetic as a result. No problem with diabetes before surgery. I was able to control my blood sugar with diet and exercise for years. Within the past two years, that approach began failing, and I started low dose insulin therapy this year. If you are taking pancreatic enzymes (I take Creon), it affects insulin therapy and can make it more difficult to establish correct insulin dosage. When I was first diagnosed after surgery, the doctors treated me as Type 2 with oral medications, and disastrous results depending on how one views it. My A1C fell to the "normal" range, but I had very frequent episodes of low blood sugar. I could not have a reasonably normal life and tolerate the low blood sugars. Using the diet/exercise approach worked for me but it does require strict discipline which can be a challenge at times. I am in the USA, and doctors here are typically unaware of Type 3C and best treatment approach. Considering how few of us they encounter, I don't fault them. My current PCP and I are working together and still learning as we go. If your journey is similar to mine, the doctors will depend largely on feedback from your personal experience.
 

AuntieSue

Newbie
Messages
3
Type of diabetes
Type 2
Hi Sue, I too have just been diagnosed with type 3C diabetes, however mine was a side effect from surgery. I have been struggling with diabetes since my surgery, as my GP and diabetic nurse didnt know anything about type 3C. It was only when I went back to the hospital where I had the surgery that the diabetic nurse told me and explained the difference between this and type 2 or 1. Mainly the difference is that mine is due to having a large part of my pancreas removed, so losing most of my insulin producing cells, but also most of my alpha cells, which produce glucagon, which is the counter to insulin. One thing I was told is that this diabetes cannot be managed by diet alone, unlike type 2. I am still researching and trying to get information, but due to so many health professionals being unaware of type 3C, information is scarce.
Hi Billy - sorry, I missed your reply, but thank you for responding to my first post! Really difficult to find much on Type 3c, but like you I am still researching and trying to find more information. I have to say that I struggle with the low carb diet but am really really trying!