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Discussion in 'Diabetes Discussions' started by miss fed up, Apr 17, 2008.

  1. miss fed up

    miss fed up · Well-Known Member

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    Hi every one. I'm Caitlin and I'm 13. Not quite sure if there is anyone as young as me on this site but i was really pleased when i stumbled across it. I've had diabetes since I was 8 and I have now been on an insulin pump for 2 years. I'm often getting fed up and angry with diabetes so it's good to hear that I'm not the only one who feels like this .
    Looking forward to talk to everyone/anyone.
    Caitlin :mrgreen:
     
  2. yorksherpud

    yorksherpud · Well-Known Member

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    Hi Caitlin

    My son was diagnosed three weeks ago today with type 1. He's eleven. So far he's using the pens for his insulin. I found this site last week and have found loads out.

    I'm sure we will both get lots from it.

    Keep your chin up

    Melanie x
     
  3. miss fed up

    miss fed up · Well-Known Member

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    Thank you, I'll try.

    Sorry about your son, hope things are starting to get a bit easier, good luck for the future.
    x
     
  4. yorksherpud

    yorksherpud · Well-Known Member

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    Hi again Caitlin

    I have to say he seems to be ok with it, I would say I'm the one struggling a bit, I feel like I have to be Super Mum from now on and perhaps wear my pants on the outside of my trousers!

    I'm sure we'll get there in the end.

    Best wishes

    Mel
     
  5. miss fed up

    miss fed up · Well-Known Member

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    Hi SarahQ, thanx for the post.

    Here goes the rant...
    I'm basically fed up about everything, having to do bms, carb count, take insulin and just generally having to put up with dabetes. Tomorow I have to go to my hospital to have a mid-way HBA1c, o yey! I think it's probs gone up to the higher 8s which is a tad diasponting. So now I'm going to be worried sick about the hospital having a go at me which always causes the whole family to get more stressed out than usual.
    I'm sick of havong to go to school and put up with ignorant substitute teachers who don't know ANYTHING abou diabetes but acting like they do. Just the other week I went hypo in the school assembly whist all the children were talking. So i quickle had my glucose tablets which made my friend ask if I was ok, which then made a teacher come 'round and tell us both of for talking, made us both stand up for 10 minutes (all the while I was still hypo) AND come back at lunch to his office and made us write a letter of apology to my form teacher even though he knew that I was diabetic and that I was in fact hypo. This will now go on my school record and be viewed by my headteacher.

    And last week I went on a school trip up to Wales for 5 days. So this meant that my parents and I had to fill out even more medical slips, have a meeting with the staff and pack an extra big bag full of diabetes supplies. We also had to write up extra pointers on what to do in extreme cases for my teachers. And this trip was PE based so we did all of these "extreme" sports. So, I have now been hypo: up a clift, in a cave, on top of a mountain, on top of a waterfall and in a river. HONESTLY!

    Anyway... on to the pump.
    I first heard about the pump from a nurse I met on one of these diabetes weekends. She said that if I asked my hospital then they could give me one. So I did at first they were very reluctant at the whole idear, but I kept on at them and finally the diabetes nurses went on a training course for the pump and after about a year they FINALLY gave one to me. It was really hard work at first and I mean REALLY hard work, doing 10-15 BMs a day, getting up in the night and doing them, filling out "pump sheets" which is when you have to fill out the food you have, what your BMs are, how much insulin you had etc. You also have to do alot of things to prove that you need the pump and that you acn cope with it. For Example: you have to go to carb counting lessons, have a "contiuous blood glucose monitor" fitted and see a physchologist for a few sessions a month. But it pays off greatly... in the end. :mrgreen:
     
  6. miss fed up

    miss fed up · Well-Known Member

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    I would ask your parents to step in here and have words with said teacher I believe you can get teacher packs from Diabetes UK check their site out and see what they have and order some they used to be free. Also write a list of hypo symptoms and hand it out to the teachers to be kept in the class room
    Ye, once i told my parents they got the hospital in at once to have a meeting with the teacher, the headmaster, the diabetes nurses, the school nurse, my parents and me which sorted everything out.

    Have you got that book pumping insulin by John Walsh? If not get it it will help you no end.O cool, thanx, ye I'll add that to my never ending bookcase of diabetes books. My mum will be very pleased to have another book to refer to.

    Wow sounds as if you had to run a marathon to get the pump what one have you got? Bet it's a lot better than injections every day though
    It is, it's a huge step up from injections. I haven't had a single in jection now for 4 months! WOO!!!!

    thanx once again for the advice. x
     
  7. yorksherpud

    yorksherpud · Well-Known Member

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    Hi Caitlin

    I thought I would revisit your post to see how you are doing now. I hope you are feeling a bit better. My son started back at school last week and instantly picked up a tummy bug and ended up back in hospital at the weekend for 3 days. He's currently off school as they don't want him back until they can do a risk assessment, which I find frustrating as he had done a week at school. I think the truth of the matter is that they just didn't listen to the diabetes nurse when she went in to do the training in the first place.

    Kindest regards

    Melanie (Pud) x
     
  8. miss fed up

    miss fed up · Well-Known Member

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    Hi Mel,
    Ye, i have to say i am feeling quite a bit better now thanx. :D

    OO! Bad luck! That happened to me aswell within a few days of me coming out of hosptial from getting diagnosed. I remember waking up in the night, beng sick and then driving to the hospital with the bowl on my lap feeling like poo, to put it the nice way. Not a nice story but hey. So now every winter we all get really nervous about me ot my little sister getting a tummy bug- but luckily it's never happened since. :)

    He's currently off school as they don't want him back until they can do a risk assessment, which I find frustrating as he had done a week at school. I think the truth of the matter is that they just didn't listen to the diabetes nurse when she went in to do the training in the first place.

    :shock: That's terrible! Correct me if I'm wrong, but that's discrimination :!: Surely that's not allowed! You need the diabetes team to go into the school again and this time they really need to listen. The school cannot do that, your son being diabetic is absolutly NO reason for him not being allowed to attend school. He has a basic human right to an education and the school is denying him that. The school needs to realise that diabetes is easily managed and that there is no reason for him to be excluded from ANYTHING!!!!!!
    OOOOO! that's made me really mad! :evil:
    You need to make a big thing of this because it is a serious issue and it's not like your son is going to magically stop having diabetes so they need to adjust to this just like you and your son had to.
    Hope things get a whole lot better for you. :)
    Caitlin x
     
  9. yorksherpud

    yorksherpud · Well-Known Member

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    Hi Caitlin,

    Glad to hear you are feeling a little bit better. The weather was a little bit better here yesterday, that always puts me in a good mood. I love the springtime, it's so full of promise. I know that sounds like a cliche but I do hate the dark nights and I'm not a fan of the cold!

    We have a meeting at school on Monday, where the school Corporate Health and Safety adviser will be present as well as the Diabetes Specialist Nurse and the Diabetes Clinical Team Leader. I'll let you know how we get on.

    Kindest regards

    Melanie x
     
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