Newly Diagnosed - neuropathy and other problems

StefanR95

Member
Messages
17
Type of diabetes
Type 1
Treatment type
Insulin
Hi everyone

I was diagnosed T1 at age 20 just before Christmas, much to my disappointment as it would have been the best Christmas for me in a while (a new laptop, loads of chocolate and sweets which I couldn't eat, and all the other things) and the new Star Wars movie.

I remember feeling frightened in hospital as I hate needles and the first night the nurses kept coming back with more needles, thought it was never going to end.

My first 2/3 weeks went good, I got back to college, completed my final exam before my work placement and was dealing with diabetes ok (especially for someone who hates needles).

That's where it took a turn for the worst. I started getting severe pain in my legs and feet, so bad that it reduced me to tears. Then dense cataracts developed in my eyes so I had to stop driving. I've been in hospital 4 times since being diagnosed, once for the pain, another for severe loss of weight and the other two were to remove the cataracts. The appointments have been nonstop too.

I did get to go to my planned trip to Disneyland, but I couldn't fully enjoy it due to the pains and being borderline blind. The cataracts are dealt with now and my vision is brilliant. I guess not having to wear glasses is one good thing that happened to me.

I get DLA as my pains make walking a difficult task. I got a new car with it o help cheer me up, but as my luck is, I've now got ingrown toenails, which when take off the plasters it causes me extreme pain and discomfort. I seem to have extreme sensitive touch.

My family are trying everything to help me, I wouldn't be here if it wasn't for them. Having my cats around has also helped, my older two Gizmo and Kizzy, and the new addition Felix. I also got a new hamster called Hammy, but hes very shy and jumpy at the moment.

I'm finding it very hard to cope with these pains. My blood sugar has been very good the past few months between 4 and 10 but the pains tend to bring it up over 10 sometimes. The hba1c is also very good, it was 43 when I got it done, more risk of taking hypos.

Sorry for the long post, I just need to get that off my chest and feel like someone's listening, I feel like I need a counselor to talk to about my feelings but it's a long waiting list and had been put down as mental health.

Hows your experience with diabetes been, ups and downs.

Thank you if you have made it this far lol.
 

col101

Well-Known Member
Messages
358
Type of diabetes
Type 1
Treatment type
Insulin
My experiences have distinct parallels with yours. Good on you for hanging in there and getting control of your BG and improving your eyesight, big steps. I've found its important to notice the little improvements and victories, take pleasure in hugging the cats and try to have other things in life. Practically, have you heard of alpha lipoic acid? I and others on the forum believe it can help with neuropathy the are a few threads about it if you search. Good luck with the journey
 

chalup

Well-Known Member
Messages
1,745
Type of diabetes
Type 2
Treatment type
Other
Gee I wonder why Hammy is shy and jumpy with three cats to protect him? :p Sorry, I couldn't resist. I just wanted to say welcome to the forum and that you will find a lot of information and support here. Take care.
 

StefanR95

Member
Messages
17
Type of diabetes
Type 1
Treatment type
Insulin
Gee I wonder why Hammy is shy and jumpy with three cats to protect him?Sorry, I couldn't resist. I just wanted to say welcome to the forum and that you will find a lot of information and support here. Take care.
I looked at what I wrote and realised that lol. I have had hamsters before and they haven't acted like that, but Hammy is younger and the other hamsters didn't have a crazy kitten running around.
 

chalup

Well-Known Member
Messages
1,745
Type of diabetes
Type 2
Treatment type
Other
I have three crazy kittens running around and my 100 lb great pyrenees is completely overwhelmed by them. I feel for the hamster :D funniest thing ever to see a 3 pound kitten hanging off a great big dogs tail and the dog is just looking at me like HELP ME ALREADY!!!
 

StefanR95

Member
Messages
17
Type of diabetes
Type 1
Treatment type
Insulin
My experiences have distinct parallels with yours. Good on you for hanging in there and getting control of your BG and improving your eyesight, big steps. I've found its important to notice the little improvements and victories, take pleasure in hugging the cats and try to have other things in life. Practically, have you heard of alpha lipoic acid? I and others on the forum believe it can help with neuropathy the are a few threads about it if you search. Good luck with the journey
I must try that, anything to lessen the pain. I go for a lidocaine infusion every 10 weeks(or its supposed to be 10 weeks) and I put lidocaine patches on my back every night. My GP has prescribed me with gabapentin and baclofen but they don't appear to do anything. I wouldn't stop taking them though.

I also sometimes take a tiny bit of morphine but that only if the pain is unbearable.
 

StefanR95

Member
Messages
17
Type of diabetes
Type 1
Treatment type
Insulin
I have three crazy kittens running around and my 100 lb great pyrenees is completely overwhelmed by them. I feel for the hamster :D funniest thing ever to see a 3 pound kitten hanging off a great big dogs tail and the dog is just looking at me like HELP ME ALREADY!!!
Lol, that reminds me of my kitten, only he hangs around the neck of my older cats, they don't appreciate it too much.
My kitten is sprawled out on the pillow on my bed, he loves that pillow, can't blame him, snoring away lol
 
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