newly diagnosed should have been informed a year ago

Messages
3
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
rude people
so a few weeks ago I went to my GP with the same problems, which are basically I feel like the walking dead, I am so tired its taking me all my time to place one foot in front of the other,my vision is blurred a lot of the time which is causing me stress, I almost passed out in the shower the week before, I have aches and pains in my whole body, there is something wrong I said for the umpteenth time, GP said my blood pressure was quite high and I should come back for that to be checked and some bloods in two weeks. Two weeks later blood pressure is quite normal and the nurse takes the blood. 3 days later a call from the GP receptionist, Hiya I am just confirming that your diabetes test is the same as it was last year borderline, do u want to see a health trainer ? WHHHAATT I am thinking she has rang the wrong person, when all becomes clear, the same test they took a year ago showed then that I was pre diabetic then and nobody told me !! ( in our doctors they ring you when you have had tests if something shows up, if it doesn't they leave you to your own devices) Ive been in between and nobody told me anything
So guys and girls I am now awaiting an appointment which is 3 weeks ago with a health trainer, I already get an hour and a half exercise every day with my beautiful and energetic dog, at 10 stone im just over ideal weight, but hoping this is an opportunity to stop feeling poorly, can I ask if anyone would be able to help with experience of similar symptoms, and also what has this last twelve months cost me I guess, I had gestational diabetes 18 years ago and controlled that with my diet - just desperate to feel well again
 

urbanracer

Expert
Retired Moderator
Messages
5,187
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Not being able to eat as many chocolate digestives as I used to.
so a few weeks ago I went to my GP with the same problems, which are basically I feel like the walking dead, I am so tired its taking me all my time to place one foot in front of the other,my vision is blurred a lot of the time which is causing me stress, I almost passed out in the shower the week before, I have aches and pains in my whole body, there is something wrong I said for the umpteenth time, GP said my blood pressure was quite high and I should come back for that to be checked and some bloods in two weeks. Two weeks later blood pressure is quite normal and the nurse takes the blood. 3 days later a call from the GP receptionist, Hiya I am just confirming that your diabetes test is the same as it was last year borderline, do u want to see a health trainer ? WHHHAATT I am thinking she has rang the wrong person, when all becomes clear, the same test they took a year ago showed then that I was pre diabetic then and nobody told me !! ( in our doctors they ring you when you have had tests if something shows up, if it doesn't they leave you to your own devices) Ive been in between and nobody told me anything
So guys and girls I am now awaiting an appointment which is 3 weeks ago with a health trainer, I already get an hour and a half exercise every day with my beautiful and energetic dog, at 10 stone im just over ideal weight, but hoping this is an opportunity to stop feeling poorly, can I ask if anyone would be able to help with experience of similar symptoms, and also what has this last twelve months cost me I guess, I had gestational diabetes 18 years ago and controlled that with my diet - just desperate to feel well again

Hi @ex wonderwoman

Welcome to the forums.

Three years before my official diagnosis, my GP told me 'your blood sugars are bit high' and then shrugged it off. Unfortunately many forum members will be able to relate to your experience.

I ended up being told I'm a Type 1 but reading your post it seems that an assumption has been made that you are a Type 2 - or have you had some other tests done?

Whatever your type, the correct medication, diet and lifestyle usually helps most people get back on track.
 
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Messages
3
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
rude people
no other tests urbanracer but I will ask for some, yes I feel as though it has probably been assumed
 

Phoenix55

Well-Known Member
Messages
577
Type of diabetes
Prediabetes
If your test result is the same as it was last year then it probably hasn't cost you too much but an extended period of discomfort. You will probably be advised to cut down on sugar - biscuits,cakes and drinks, change to eating brown bread, wholewheat pasta and to lose any excess weight, then come back in 3 months for another test. There are other things you can do to help yourself.
I will tag @daisy1 who will be along with some excellent advice. Seriously consider getting a bg meter for yourself - it helps to know what your body is doing in between blood tests. Keep up the dog walks with your lovely dog and start a diary noting what you have eaten and when you feel particularly rubbish, you may find that the two are linked. Good luck
 

eggs11

Well-Known Member
Messages
638
Type of diabetes
Type 2
Treatment type
Diet only
Hi @ex wonderwoman, welcome to the forum. I also had gestational diabetes 15 years ago - then diagnosed with type 2 in January. I was like you feeling very tired before diagnosis, and was not realising that my increase in long-sighted ness was caused by my high blood sugars. Reducing the amount of carbs in my diet has made a big difference already - testing your bloods will tell you how many carbs you can tolerate - we are all different in this regard. This includes not just sugar but 'healthy' starches such as pasta and bread.
Ask for a print-out of all your blood test results - you especially need to know, if you haven't been told already, what your hbA1c number is - this will tell you what level your prediabetes is.
 

Bluetit1802

Legend
Messages
25,216
Type of diabetes
Treatment type
Diet only
This is a lesson we all need to learn. Never assume all is well because you get no phone call saying otherwise. Never accept "it's fine" "it's normal" "it's borderline".. Ask for the print out of the results and see for yourself.
 
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Robbity

Expert
Messages
6,690
Type of diabetes
Type 2
Treatment type
Diet only
Hi, @ex wonderwoman - I have more or less also walked in your shoes!

I wasn't told until about 9 months after my previous checkup that I apparently showed signs of being diabetic. I'd spent the previous 5-6 years like a brain dead zombie and it was always blamed on my weight when I spoke to my GP, and I eventually assumed my completely befuddled state was just another symptom of old age Then after that world shattering checkup a repeat blood test confirmed that I was well and truly diabetic. In some ways it was the best thing that could have happened to me because I was then advised by my GP to try the Atkins diet (mainly for weight loss) and my new LCHF lifestyle not only did wonders for my highish glucose levels, but most importantly gave my poor addled brain a complete new lease of life. So you may yet end up as a genuine wonder woman once again... :p

Good luck!

Robbity
 

TheBigNewt

Well-Known Member
Messages
1,167
Type of diabetes
Type 1
Treatment type
Insulin
Yeah, stuff gets done pretty fast and loose there in the NHS. Right? The good news is you probably don't have a blood sugar of 10 and an A1C of 9%.
 

paulus1

Well-Known Member
Messages
843
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Yeah, stuff gets done pretty fast and loose there in the NHS. Right? The good news is you probably don't have a blood sugar of 10 and an A1C of 9%.
not true. unlike the us where medicine is profit driven. remind me of the cost of a single pen of nova rapid there for those without insurance. there are **** doctors everywhere.i would be dead in your system.
 

TheBigNewt

Well-Known Member
Messages
1,167
Type of diabetes
Type 1
Treatment type
Insulin
not true. unlike the us where medicine is profit driven. remind me of the cost of a single pen of nova rapid there for those without insurance. there are **** doctors everywhere.i would be dead in your system.
With no insurance a 5 pen box of Novolog probably about $400 now. I had no insurance for 25 yrs and did OK though. Lantus was about $120 for a 10cc vial. Actually the doctors here are pretty good, especially the specialists, endos, etc (polishes diploma with cloth lol). You guys do better if you're pretty broke though. Actually you do well here if you're low on bucks, it's if you're in the middle with no employer supplied health insurance that you fall through the cracks with Obamacare. Not good.
 

Robbity

Expert
Messages
6,690
Type of diabetes
Type 2
Treatment type
Diet only
I'm always reminded how lucky we are with our NHS when I have to pay out for treatment/medication from the vet for one of my dogs.

(Though I'd hate to try to work out what I may have paid out in tax & insurance for "free" health care during 40 odd years of working life...)

Robbity
 
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daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@ex wonderwoman

Hello Ex Wonderwoman and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask questions when you need to and someone will help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.