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Newly diagnosed T1?

F

Fiohen

Newbie
Messages
2
Type of diabetes
Type 1
Hi all

I am a 48 year old female and have recently been diagnosed as being diabetic, I am not sure what type yet T1/T3 has been mentioned.

In July 2016 I was being constantly sick and has an insatiable thirst, after a week I was admitted to our local hospital and put on various drips saline & insulin I think. After a few days I became jaundice and was moved to a hospital in the city. They carried out tests and found a mass on my pancreas which they told me was pancreatic cancer, which as you can imagine turned my world and that of my family upside down. They fitted a stent in my bile duct to clear the jaundice and did a biopsy on the mass. I was then sent home with a lantus pen to inject myself at night. Once home I was given a humalog pen for three injections daily.
We waited 8 weeks and then we were told the biopsy was inconclusive but they wanted to start me on steroids to see if that would shrink the mass. After another 6 weeks of steroids, which had my blood sugars reaching 20 - 28, the mass shrunk.

The latest diagnoses I have is autoimmune pancreatitis. Unfortunately the autoimmune disease has also given me acute ulcerative colitis which I have to get infusions for. At the moment I am taking 32 tablets a day and my 4 insulin injection and inflixomab every 4 weeks. I have to test my blood sugars 8 times a day. I am watching my diet and my blood sugar is still at 15 - 20.

As yet I have not seen a diabetic specialist and the local nurse is increasing my insulin slowly as my meds change. Humalog 18 units three times a day with correction and Lantus 24 at night.

I would welcome any advice, hints or tips to keep my sugar down
 
Welcome @Fiohen :)

Sorry to hear about your medical problems. What a stressful time for you and your family!

I'm going to tag @Shar67 for you as you're not sure about your diagnosis.

I'm Type 1. My tips are to test lots so you can see what's happening to your blood sugar. If you test two hours after the start of your meal, you can see the effect the meal had on your blood sugar. As you're on fixed doses of Humalog, you should find that eating roughly the same amount of carbs for each meal gives you smoother sugars.
 
Hello @Fiohen
It sounds like you may have type3c due to damage to pancreas.
Have you been told to follow a low fat diet?, it is difficult to do when you add diabetes to the mix.
I can only suggest you cut out bread, pasta, rice and white potatoes. To see if you can bring sugars down.
To you have problems with digestion?
 
Hi @Fiohen
welcome to the forum.:)

to start with a huge hug from me [[[[[hug]]]]]
you really have had a rough time recently :(

I would start by talking to your Diabetic nurse and discussing going on a carb counting course. Right now you are taking fixed fast acting doses meaning that perhaps you are not taking enough insulin for the food you are eating.

as already mentioned you could also reduce your complex carb intake ( bread , rice . potato , pasta ) but you would need to be aware that reducing carbs usually means a reduction in insulin requirement.

I can really tell you are going through the mill currently , so constant ( nearly every day )communication with your team to try and get adjustments made to your insulin will be a help ( hopefully )

I have been Type 1 D for over 44 years and I currently take 14 tablets a day plus being on a pump , and I test about 10-12 times per day normally. ( you're not alone )
 
Thank you everyone for taking the time to reply.

I haven't been advised to follow any type of diet so far. I have been following a low carb diet. Hopefully I will see a diabetic specialist next month.

I just feel I have been left to figure it out on my own. I have to admit I'm scared I take too much insulin with my correction dose.

I have spent the afternoon reading posts on the forum and have learnt more in one afternoon than 7 months of medical care. Thank you
 
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