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Newly diagnosed T1

Emma2589

Member
Messages
15
Type of diabetes
Type 1
Treatment type
Insulin
Hi, my name is Emma, and last. Monday I was admitted to hospital where I found out I was suffering from Diabetic Ketoacidosis as a result of un diagnosed Type 1 diabetes.

Whilst I was in hospital (they kept me in for 4 days), my blood sugar levels were pretty high, ranging from 9-24. They let me go home on Thursday, despite still having a high BS level (about 16), as my ketone levels were normal and they had given me all of the treatment they could and I had recovered from the DKA.

I spent quite a long time with the diabetic nurse who went over as much as she could with me, and gave me my Insulin to take away - I was prescribed 3 doses of NovaRapid per day before each meal, and one dose of Lantus before bed. Since coming out my BS levels still won't drop, and are staying between 14-22 which is very high. I have been eating healthy and having an average amount of carbs. Is this normal that it would take a while for my levels to drop and stabilise? I'm just very worried about the whole thing, and am confused about adjusting my own insulin and working out your carb to insulin unit rate.

If anyone could offer any advice/tips/general reassurance that would be great.

Thanks,

Em
 
Hey i was diagnosed about 8 months with the exact same scenario! What i termed average amount if carbs was actually quite alot now that i have started properly carb counting in last few weeks due to sone advice from people on here! I was told initially to take 3 units breakfast when i described my normal breakfast and bout 5/6 at nite depending if having carbs etc!

Its very hard at start! Have u been told how much to take roughly!


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Hi Em and welcome

It would be worth giving you nurse a call to let her know about your levels. Keep records of your levels and what you have eaten so that she can advise on any adjustments needed.

Hope you get it sorted soon.
 
I've been given a set ratio of 8 NovaRapid before each meal, and 14 Lantus before bed. I am still getting my head around it but plan to carb count and adjust my insulin accordingly. I guess I just need to take time to learn what works for my body and to determine a good insulin:carb ratio.

It's all just a lot to adapt too. Just worried about my BS still being so high.
 
Hi Emma and welcome to the forum:)

Here is the information we give to new members which I hope you will find useful. Ask more questions when you need to and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 70,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Emma, I'm not long diagnosed myself, less than 1 year still.

In my first few weeks I was in almost daily contact with my DSNs to discuss readings, doses and meals. If you have a number I would call them and discuss as you need to get both basal and mealtiem bolus right.

It took me probably three weeks to get my readings into normal range to be honest, but that was only with help.
 
HI Emma,
I was diagnosised 4 months ago, and i know exactly what you are going through. First off, download the carbs and cals app for your phone - this will give you a rough idea how many carbs are in the food you are eating. Buy a scales, as you will need to weigh everything to get the correct amount of carbs. Google how to carb count - read all the info as it helps - but take your time - eg if you have 70g carbs for breakfast and 8 units, and go low, have the same breakfast next day and reduce the insulin units by one etc. My bloods were high for a couple of weeks as well, and i know its very dis heartening but stick with it. I am obvioulsy still learning as well, and still trying to work out my ratio's as i might be honeymooning etc - hope this little bit of advice helps
 
HI Emma,
I was diagnosised 4 months ago, and i know exactly what you are going through. First off, download the carbs and cals app for your phone - this will give you a rough idea how many carbs are in the food you are eating. Buy a scales, as you will need to weigh everything to get the correct amount of carbs. Google how to carb count - read all the info as it helps - but take your time - eg if you have 70g carbs for breakfast and 8 units, and go low, have the same breakfast next day and reduce the insulin units by one etc. My bloods were high for a couple of weeks as well, and i know its very dis heartening but stick with it. I am obvioulsy still learning as well, and still trying to work out my ratio's as i might be honeymooning etc - hope this little bit of advice helps

Thank you for your reply. I've got the app and bought some scales so am starting to get to grips with it all. Just such a big learning curve. I'm glad I've joined up here so I can chat to people going through the same thing as me.

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I'm a know nothing T2, but from this site I have read the important thing for a n00b is to get your long acting dose sorted first,
I got this off google, take it for what you think it's worth
http://www.bd.com/us/diabetes/download/insulin_adjustment_workbook_complete.pdf

ring up your adviser before you do anything and listen to them
long term you will adjust as needed
This is a great tool - but does anyone know if there is a version with UK measurements? Maths is not my strong point and I know I will make errors if I try to convert it all.
 
Emma, do you have a follow up appointment booked with your Diabetes Specialist Nurse? They can go through carb counting with you (for Novorapid), and getting your basal dose (Lantus) right. They could well be just giving you a couple of weeks to relax. The main thing is you are on insulin, so your body is in much, much better shape now than when you were undiagnosed. Getting your blood sugars right is important, but it's not super urgent. As long as you have another appointment in a few weeks to continue your education, you will be fine. Meanwhile lots can be learned online and from this forum.

All the best. x
 
Sorry to hear that Emma as I know how overwhelming it can all seem at first.

You may find that they have put you on smaller amounts of insulin than you need to start with as they don't want you hypoing all over the place. You could well start to go through your honeymoon period as well ( if you don't know this is where your pancreas will start functioning a bit due to you injecting insulin and kickstarting it. This will only be temporary however).

You could also try checking your basal (Lantus) by not eating any carbs for a day and seeing if your blood sugars change. Make sure you are fairly inactive so exercise does not distort the results and if they continue to rise during the day you need to increase the dose, if they fall you are on too much. Once this is sorted you can then begin to get your dose right for the short acting based on the carbs you are eating. But at all times keep in contact with your DSN. I promise it will get easier as you do it more and as Spiker said don't stress too much as you will adapt to it yourself. Bear in mind as well that it rarely goes right all the time, it is a hugely difficult condition to manage but it is doable. I was diagnosed at 9 and I still get it wrong 31 years later!

Bets of luck!
 
Hi Emma
I am 16 days taking insulin after emergency appt at hospital following high ketones but luckily no admission needed. My BG levels just now all below 10 so it has taken time. Having phoned the hospital for advice I was told to up my Lantus injection slowly every 3rd day and start carb counting for my novo rapid 'meals' injections. All going ok but had a reading of 4 late afternoon following swimming in morning so need to watch for hypos now. Hope all goes well for you now - be patient and talk to your diabetic nurse.
Louise


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Also forgot to say I am using the carbs & calories app to help with carb counting. A friend advised me to buy it and the nurse mentioned it too.
Louise


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Hi Emma, I was diagnosed July 2013 and had sugar levels of over 36 when admitted to hospital and high ketone level. Didn't have to stay in though, was sent home at the end of the day :) there was other people diagnosed that day with sugar levels over 60! Made mine look measly ha. I wouldn't worry too much about your sugar levels being slightly high now, I was on average about 22 for the first week and then it gradually dropped over the next week to about 12's then lower after that :) your diabetic nurse should phone you daily for first two weeks to check your levels and advise insulin intake :) good luck! It seems daunting to begin with but after a few weeks of insulin you will feel so much better and have more energy!


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