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Newly diagnosed type 1

Jen37 2

Newbie
Messages
2
Type of diabetes
Type 1
Treatment type
Insulin
hey all,

We all love a back story right??

End of Feb I started losing weight and got excited to shift a lb or 2 (at 37 it gets harder to do!) then started suffering reoccurring thrush (tmi) for the first time in my life, then came exessive thirst and fatigue (my god, I’m so tired!)
Told the doc at the end of April when I had lost 20 lbs (I’m really slim so can’t afford to lose that much!)
2 days later had normal blood tests
3 days after that results were in and fasting test booked (Monday last week) by Friday i was called into docs ....they assumed I was 37, overweight and type 2.....the only correct part of that was my age....
Today, I have just got back from an emergency hospital app as my hba1c was 105 and I have been briefed, instructed, guided and supported in providing my first insulin injection!!

I currently don’t know which way is up .....freaked out over my first insulin “rush” and looking to take full control of my new friend ...... I can own this (with a little help maybe)

So.......hi all :)
 
Hi @Jen37 2 . Welcome to the forum. A lot to learn and a long time to learn .
Learn a little and often. When it all goes awry and makes no sense, smile and have the confidence and positively to figure it out.
There are some very knowledgeable and helpful T1's here who will be only to willing to help with anything and everything
 
Thanks, certainlya leap rather than baby steps......4x injections with 2 types of meds (I think they’ve put me on the “trainer pad” treatment) but hey, gotta start somewhere :)
 
@Jen37 2 ,

hey all,

I currently don’t know which way is up ..... :)

^ ^ ^ ^ this way is up.....

See, we're here to help. Welcome to the forums, hope you find it useful.

Let's ask @daisy1 to give you the newbies info, or you can click on the links in the signature of any moderator.

Don't overlook the information pages at the front end of the website, they are packed with useful information.

Catch you later.
 
Welcome Jen, it does take some time to adjust to. It will all fall into place. I am sure you will find the forum useful
 
Hi,
Welcome to the forum
It will get easier and you will start to feel better.
Take care
 
@Jen37 2

Hello Jen and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it interesting and useful. Ask as many questions as you want and someone will be able to help.



BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
Hi,
You'll soon get the hang of it. It's only rocket science on the days when things don't behave.
Hope you are feeling better now the insulin has kicked in.
 
hey all,

We all love a back story right??

End of Feb I started losing weight and got excited to shift a lb or 2 (at 37 it gets harder to do!) then started suffering reoccurring thrush (tmi) for the first time in my life, then came exessive thirst and fatigue (my god, I’m so tired!)
Told the doc at the end of April when I had lost 20 lbs (I’m really slim so can’t afford to lose that much!)
2 days later had normal blood tests
3 days after that results were in and fasting test booked (Monday last week) by Friday i was called into docs ....they assumed I was 37, overweight and type 2.....the only correct part of that was my age....
Today, I have just got back from an emergency hospital app as my hba1c was 105 and I have been briefed, instructed, guided and supported in providing my first insulin injection!!

I currently don’t know which way is up .....freaked out over my first insulin “rush” and looking to take full control of my new friend ...... I can own this (with a little help maybe)

So.......hi all :)
Hi Jen,

Your story sounds exactly the same as my experience and around the same time except I ended up in hospital at Easter so have a good few weeks under my belt now I haven’t posted a lot in this forum yet but do read most of it and I have to say I’ve found enormous comfort and help on here.

Good luck Jules
 
guy from Oz on insulin for 51 years.
Yes, Jen, insulin is your friend, even when you find cause to curse it, wish to condemn and banish it, and wish you could just swallow or inhale it. You have been given heaps of info to start and no doubt there will be education sessions ahead. One analogy I used early on, at the 'tender age' of 13, was to imagine life was like paddling a canoe on the river of life. Insulin, food and adjustments for various activities made it possible to have the energy to keep the canoe in midstream. The dangers were either (1) side eddies that took me into rocky section with lots of rapids, turbulence ( the high sugars, make you sick and could be dangerous but more often long term). (2) the other hazard was the waterfalls ( the low blood sugars) which were more immediately dangerous. Getting the combo of insulin, food intake and exercise into the Three Bears range (Just Right) and learning from each set back and victory are the keys. Good habits are important such as keeping some quick acting sugar on you and learning how to recognise a hypo and managing it, taking food and your insulin with you, particularly if meals look like being delayed ( eating something on time is best) or you might be delayed getting home for your next injection. Gentle exercise to begin with so that you have time to work out how best to deal with more strenuous exercise BEFORE attempting it.
From my experience, and talking to other diabetics over time, thrush happens in diabetic gals and guys due to higher than usual sugar levels, and some immune troubles accompanying diabetes. A sexual partner needs to be treated for thrush as well otherwise one keeps giving it back to the other. Antibiotics and illness also keep thrush recurring. Lastly sunshine and Vitamin D supplements have helped some diabetics to become less prone to recurrent thrush. Best Wishes on your journey. It is all about balance and moderation.
 
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