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Newly Diagnosed Type 1

B

bellte

Newbie
Messages
1
Type of diabetes
Type 1
Treatment type
Insulin
Evening ladies and gents, my name's Tom. I'm 19 and was diagnosed yesterday with Type 1 after 3 weeks of hellish symptoms and a very nasty DKA on Tuesday. I recovered quickly, released last night, much to everyone's amazement. I'm being treated with insulin injections. Now, my blood glucose is sitting quite high at 18-20, even after a while after eating. Is this something that should really concern me, or is it just my body reacting to not being on an insulin infusion for 24 hours at hospital? Any advice/opinions welcome :)
 
Hi @belite and welcome to the forum.

I am a Type 2 but will bump your post up for some replies.
 
Don't you have a DSN?
I was diagnosed 36 years ago and was in hospital for 8 days and had a ward visit early the following week followed by a clinic appointment at the end of the week. There was a lot of support, even though DSNs didn't exist then. That support had its faults but I couldn't have coped without it.

If your blood sugar is 18-20 two hours after a meal then you need more insulin for that meal. If you haven't been told how to make changes then perhaps there's a reason for this and the NHS isn't letting you down. Do you have a clinic appointment soon? If not, ask for one.
 
you should be concerned, it's a matter of insulin adjustment,
don't adjust your insulin without the nurse's ok and you should have some urine ketostiks to check for ketones

you should have a nurse you can contact about your blood readings, from what I read here, they are in daily contact till you are stable

going by what's said on the forum, if you are on 2 insulins, the nurse will focus on your basal first,
they will also send you on a course, until then I put an online course and workbooks to get some background in the quote below
http://www.bdec-e-learning.com/
This set of workbooks are worth reading and practising working examples of carbs and doses and corrections. Don't change dose without nurse approval

Workbook 1
http://www.diabetesinscotland.org.uk/Publications/9225 Carbohydrate Counting.pdf

Workbook 2
http://www.diabetesinscotland.org.uk/Publications/9226 Carbohydrate Counting the Next Steps.pdf

Carb list
http://www.diabetesinscotland.org.uk/Publications/9227 Carbohydrate Tables A6.pdf

Diary
http://www.diabetesinscotland.org.uk/Publications/9228 Free Diary Portrait A4.pdf

Basal testing
http://www.diabetes-support.org.uk/info/?page_id=120

Sick day rules
http://www.diabetes-support.org.uk/info/?page_id=141
http://www.diabetes-healthnet.ac.uk...flet_-_Sick_Day_Rules_for_Type_1_-_Nov_13.pdf

Sick day rules flowchart
http://www.leicestershirediabetes.org.uk/uploads//documents/Type1 Sick_day_rules_InsulinV3.pdf

A workbook with USA numbers and math rules, but it has a good trouble shoot at the end
http://www.bd.com/us/diabetes/download/insulin_adjustment_workbook_complete.pdf
Click to expand...
 
Last edited by a moderator:
Hi Tom and welcome to the forum.

I wouldn't worry about your BG still being a bit high in the initial days as they usually don't want it to come down too quickly, however 18-20 does still seem a little on the high side.

You should maybe contact your DSN as they may want to increase on of your insulins. They will probably ask you to increase your Basal insulin though.
 
Last edited by a moderator:
Hi Tom and welcome to the forum.

It will take time to get your insulin doses right and you need to keep in constant contact with your diabetes care team who will advise you on adjusting your insulin, just keep a detailed diary of your bg readings, food eaten and present this to them when you next see your DSN or Consultant, the first few weeks and months are always the most difficult, but rest assured all will settle down in time. Good luck and best wishes.
 
Hi and welcome. Make sure you are in contact with a DN for the first few weeks to get the insulins right. This starts with the Basal and then carb-counting for the Bolus. Do ask any questions on the Type 1 forum.
 
Hi! I was diagnosed with type 1 in december 2013, exactly the same as you! I was in hospital for like a week then got released, my levels were high like you're saying, it will take about a month to settle but everything is normal. If you need any help i am always here to talk! :)
 
Hi Tom, I'm 26 and was just diagnosed over the weekend. I was discharged from hospital yesterday and my readings are still high too - often 17-23. They're adjusting my nighttime/basal units upwards to try and get the levels down: have they done the same for you? I was told it's normal for the readings to stay high for a little while after being diagnosed, whilst they gradually work out the best doses. Better to be too high than have a crashing low I think. All the best.
 
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