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Newly Diagnosed Type1.

typeonewoman

typeonewoman

Member
Messages
5
Type of diabetes
Type 1
Treatment type
Insulin
hello all

I was diagnosed at the beginning of June with type 1.
It was missed by my GP who failed to do a blood or urine test when I came in with classic symptoms
(blurred vision, exhaustion, extreme thirst etc)
anyway, ended up nearly going into a coma and was in A&E for 3 days on a sliding scale.
Not much fun!
but since then Ive got a handle on it a bit more, and have even started exercising again (I'm in the honeymoon period so feeling a bit more stable and less like im going to have a hypo every 5 minutes!)
My carb counting is a bit complicated by the fact that I am also celiac so the venn diagram of where the two diets cross over is not huge.
Lets just say Im having to get creative in the kitchen!
Best purchase so far? A spiralizer!
anyway thought Id say hi

love to hear from any other type ones diagnosed in their early 40s like me :-)
 
Firstly you should ensure you have a blood testing kit on prescription. I test about 4-6 times a day. Diabetes is about balance so exercise food and insulin need to be kept in even keel. You need to test frequently so you can take food if you need it and increase activity if your BS is up. I keep mine between 4-6 mmols with after meal increase within 2 hours of upto 8mmol. If you have an infection I find slightly increasing insulin copes with the extra BS. BS I am using is not swearing but blood sugar, lol
 
Thanks!
Yes.. I'm also testing at least 4 times a day, poor fingers...I'm considering a continuous glucose monitor for this reason, although they are expensive and not too keen on having something stuck to me permanently!
It all feels very imprecise when it comes to insulin. It's lovely now because I'm just doing one injection a day of lantus as my pancreas has kicked back into action, but I know this won't last forever :-(
The hard part will be figuring out rhe fast acting (novorapid) and exercise as the exercise affects it so much. I also struggled as even a short bike ride with no hills (15minutes) saw me drop from over 8 to 3.2 and a hypo before I knew it. Now that I'm not injecting the fast acting insulin at all, I feel safe to exercise, but I don't know what I'll do when I have to. I'm very sensitive to the novorapid still it seems so I've changed to a pen that does half units which will be better I think.
How long have you been doing this juggling act? I hope it gets easier! It's like having another job!
 
typeonewoman said:
Thanks!
Yes.. I'm also testing at least 4 times a day, poor fingers...I'm considering a continuous glucose monitor for this reason, although they are expensive and not too keen on having something stuck to me permanently!
It all feels very imprecise when it comes to insulin. It's lovely now because I'm just doing one injection a day of lantus as my pancreas has kicked back into action, but I know this won't last forever :-(
The hard part will be figuring out rhe fast acting (novorapid) and exercise as the exercise affects it so much. I also struggled as even a short bike ride with no hills (15minutes) saw me drop from over 8 to 3.2 and a hypo before I knew it. Now that I'm not injecting the fast acting insulin at all, I feel safe to exercise, but I don't know what I'll do when I have to. I'm very sensitive to the novorapid still it seems so I've changed to a pen that does half units which will be better I think.
How long have you been doing this juggling act? I hope it gets easier! It's like having another job!
Click to expand...

Yes, I know what you mean, and this new job comes with extra demands and responsibilities and low pay as well as being both a pain and a fascinating new interest :D
Regarding exercise, it's possible that once your honeymoon phase is over your sensitivity to NovoRapid might decrease. The half unit pen will help plus making sure you have glucose tablets or jelly babies at the ready for your exercise. Avoiding hypos quickly becomes second nature. I expect my blood sugar to veer downwards when I swim, though it's often after initially going up a couple of notches first. Tbh T1s tend to have a bigger headache avoiding high blood sugar (well, in my case, anyway! :rolleyes:)
 
Welcome @typeonewoman and hope you have had a browse around the forum to help your understanding further.

How much lantus are you on? If you are hypoing after 15 minutes bike ride then your lantus is probably too high.
 
Hi typeonewoman
Welcome to the club nobody asked to be in!!! But it is a good Club once your used to it. I am 1 year into it now and things do change when honeymoon is over but you will get used to it and it all starts to become 2nd nature
 
Yes, I realised that and have dropped my lantus down..I was doing 17 units and have dropped it to 16 and now I'm doing 15 units which seems to be much better! Thanks for your advice and encouragement! Not exercising in itself was making me fed up to be honest as I've always been quite active. I've started doing yoga again which is great and I'm planning to cycle to work which will be another experiment. Everything is an experiment right now.
Going on holiday was scarey as I'm gluten free and can't eat a lot of 'easy' or 'normal' quick foods but I'm now best friends with bananas :-) they are my wonder food for exercising. Never start any without one at the ready, and have glucose tablets always at the ready.
I think the first year is supposed to be quite up and down, the hardest part has been the invisibility of it..you look fine, so no-one realises how complicated just leaving the house can be...always planning ahead and never being spontaneous!!
 
Type1Bri said:
Hi typeonewoman
Welcome to the club nobody asked to be in!!! But it is a good Club once your used to it. I am 1 year into it now and things do change when honeymoon is over but you will get used to it and it all starts to become 2nd nature
Click to expand...
I'm dreading the end of the honeymoon period...I've started calling this my 'Last Tango in Pancreas'...I know, I know...it's a terrible joke but there has to be a few things to laugh at!!
 
Yeah, it really is a trial and error process at times, especially in the early stages of diagnosis and even further down the line. Just remember we are all here to listen and help you along the way. Don't overload yourself with information either, take it step-by-step and you'll grow in confidence :)
 
teacher123 said:
Yeah, it really is a trial and error process at times, especially in the early stages of diagnosis and even further down the line. Just remember we are all here to listen and help you along the way. Don't overload yourself with information either, take it step-by-step and you'll grow in confidence :)
Click to expand...
Thank you!!
 
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