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NHS Direct doctor says... NO testing when taking Metformin

Discussion in 'Diabetes Discussions' started by 999sugarbabe, May 7, 2015.

  1. Scouser58

    Scouser58 Type 2 · Well-Known Member

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    Hello Jacquelineann, this is something serious, and concerning for you. To get right down to 2 is a very low level to get too and not be aware, do you have a hypo kit in your possession? These are mainly glucose tablets, but I prefer some food, even the carbs in crisps have helped me get the recovery under way,
    Have you seen the Hypo Awareness course that this site is running? I Have completed it and it is very informative and when you are successful you can have a wrist band of your choice.

    You are so right to test and check when you start to feel 'odd', a rethink of your diet and activities is also important, so that you can find the bit that let you go so far down the scale.
    I am aware of my hypo's when they start, and I know that I must get to some food and a drink quickly.

    Here on the site to help you, and all the other members are so knowledgeable, they will give you all the help and support you need, so get yourself a fall back and keep testing for safety, ttfn from Karen.
     
  2. Jacquelineann

    Jacquelineann Type 1 · Well-Known Member

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    Hi Karen. Thanks for your reply. Yes I do have glucose, sweets - all sorts with me at all times. This unawareness is a recent and very unwelcome development which I understand can be reversed - (hope so!) and in the meantime I am testing at least 6 times a day. But no, I haven't seen the Hypo Awareness course. I'll have a look at that. It's on this site you say?
     
  3. Scouser58

    Scouser58 Type 2 · Well-Known Member

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    Hello Jacquelineann, yes it is, you need to go to the Diabetes.co.uk page and there you will find it. You can get these up dates sent direct to you when they occur, just sign up for them. There is also an option to get 365 menu book from the site, you just need to download it. Just a bit of fun, if below this post there are some mini photo's, in 1 there is a head and eyes with wall paper behind,,,, well this is me,,, hope it does not give you a hypo {lol} {in the black box bit}.

    Well hope you find the bit and it proves helpful to you, speak with you again, ttfn from Karen
     
  4. Jacquelineann

    Jacquelineann Type 1 · Well-Known Member

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    No mini photos :-( But thanks for all this info - I did the course. Can't have the wrist band (I don't think) because I live in Spain, but the info was very good. I'll look for the menu book too. Am now aiming to err on the higher side of BG for a while until I become more hypo aware again- or just for safety. Speaks again Jackie
     
  5. catherinecherub

    catherinecherub · Guest

    Hi @Jacquelineann,

    From your profile it seems that you are a Type1.

    If you are then it would be better to post in the Type1 area and someone will help you with your hypo unawareness and any other queries that you have as your posts will get lost in this thread and not be seen by the members who can help you.

    http://www.diabetes.co.uk/forum/category/type-1-diabetes.19/
     
  6. Jacquelineann

    Jacquelineann Type 1 · Well-Known Member

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    Ah okay, thank you Catherinecherub. Actually, my diabetic nurse has said that I am a type 2 who has now become type 1 (which I believe is impossible) and when I asked the GP (her colleague) what made him think I was type 2 he said "Because most women of your age are"!! As my sister says my diabetes "behaves" like type 1 and other close family members are type 1 so that's the category I put myself in. I am in Spain and the knowledge of the condition within the National Health seems to be pretty minimal, so I am very grateful to have family members who are both medics and diabetic, and also for this site/forum. The more info i can glean the better!
     
  7. lisastreet81

    lisastreet81 Type 2 · Newbie

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    I am type 2 and am 34. Thanks to being told not to test I suffered a stroke end of March last year. When the paramedic arrived my blood sugar was 36! I am now on insulin as well as Metformin. They are handing us a death sentence by refusing to let type 2s test, I am only allowed to test because I am on insulin.
     
  8. barbarahelms06

    barbarahelms06 Type 2 · Member

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    I was diagnosed t2
     
  9. Sun7 flower

    Sun7 flower Type 2 · Member

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    I to take 500mg of Metformin twice a day, I asked about testing and told I did not need to as I was on Metformin, the thing that worries me is I only get a blood test twice a year, how do I know that all is under control, I have type 2 by the way, I watch what eat and am very careful.
     
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  10. johncornwell

    johncornwell Type 2 · Newbie

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    This discussion keeps coming up, my Four penn'orth is that if you need to phone any one about eating food you should not be doing blood tests. This is the only valid financial reason for not testing. If you can manage your own dietary requirements in conjunction with testing I think the NHS should supply sticks because there is scientific evidence to support this being of long term benefit. On the other hand if I was an MP I would take the short-term view and not spend anything on diabetics, but then I am not a mindless moron, who only thinks of up keep of their duck house.
     
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  11. Arsenal47

    Arsenal47 Type 2 · Newbie

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    I totally relate to your experience. I have diabetes
    My type 2 was induced by my arthritis medication. I was put on 500g Metformin despite my glocuse level was sky high as I was told. Never questioned it as I was in total shock to begin with. Anyway, I asked my GP if I needed to be monitored regularly. He said no and I left. Almost a year later he calls me for a check up then tells me a week later that my glocuse level was even higher. I was in total shock. I said, how on earth would I know if the medicine is working if I don't check it regularly? He increased my med to 1000 morning and evening. Luckily, someone advised me to request a referral to a Beta Cell Unit and my GP went mad. Totally mad. Scolded me off look a school boy. I was literally in tears, but he didn't care. I insisted and I am glad I did. Very professional care and thorough in everything. They insist I test myself regularly on top of their thorough periodic ones. I can't praise them enough.

    It seems to me you might need an increase in your dosage of Metformin. Ask to be referred to a Beta Cell unit. All the best.
     
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  12. Arsenal47

    Arsenal47 Type 2 · Newbie

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    I totally relate to your experience. I have diabetes
    My type 2 was induced by my arthritis medication. I was put on 500g Metformin despite my glocuse level was sky high as I was told. Never questioned it as I was in total shock to begin with. Anyway, I asked my GP if I needed to be monitored regularly. He said no and I left. Almost a year later he calls me for a check up then tells me a week later that my glocuse level was even higher. I was in total shock. I said, how on earth would I know if the medicine is working if I don't check it regularly? He increased my med to 1000 morning and evening. Luckily, someone advised me to request a referral to a Beta Cell Unit and my GP went mad. Totally mad. Scolded me off look a school boy. I was literally in tears, but he didn't care. I insisted and I am glad I did. Very professional care and thorough in everything. They insist I test myself regularly on top of their thorough periodic ones. I can't praise them enough.

    It seems to me you might need an increase in your dosage of Metformin. Ask to be referred to a Beta Cell unit. All the best.
     
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  13. barbarahelms06

    barbarahelms06 Type 2 · Member

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    I was diagnosed t2 nov 2014 and March this year I was refused a prescription for lancets and test strips and told I don't need to test anymore I was also told that I can have only 2 prescriptions a year for these items and for disposal box but diabetes is still a minefield to me although I have now got my levels down within range I find if I go below 5.4 I am ill when first diagnosed I was 25.5 I need to check my levels so I know where I'm up to but I now only check at mornings and can judge the day from that reading (usually) I have found it cheaper to get lancets and test strips from my local chemist and it takes 24 hours because they order them for me but nothing is to much trouble for them
    It is all to do with cutbacks because of the state of the NHS it is the pct who has issued this directive cutbacks in the wrong place if you ask me
    I will continue to test myself daily and fund myself regardless of what my gp says , I have a sister who is injecting 6 times a day and a nephew who has just started injecting I do not want to go the same way
     
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  14. barbarahelms06

    barbarahelms06 Type 2 · Member

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  15. windy2k14

    windy2k14 Type 2 · Member

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    Hiya, reading the info in the forum here has been a bit of an eye opener. I was diagnosed type 2 last december - actually went to see the doc about my leg ulcers as they had become really bad - had them 3 years and had just changed surgeries as the old doc used to say "just relax and control your breathing" for everything including Non epileptic seizures that I regularly have. Went through the usual treatment for the ulcers which failed again so the new GP sent me for a blood test. 2 days later he sent me for another!!! Went to see him and he asked if I knew I had type 2 diabetes? I said no and the last doctor said my sugars were a bit high but its ok - they will come down on their own!!! The new doc asked me if I passed blood at all - which I sometimes do because of haemorrhoids. He said I have Diabetes, am very anaemic and calcium levels are low - so sent me for a colonoscopy and endoscopy. That initially didnt show anything up but about a month later I received a letter to state that I also have Coeliac Disease - what a pain - meant changing my diet again.

    I am on metformin 500mg twice a day - which I have found out the hard way are best with me after food or I get a really bad stomach. The nurse does not like me testing, but I bought my own meter, strips and lancets. she came up with the excuse "you dont want your fingers to be sore do you?" how lame.

    In this heat I have had 3 hypos last week, and have contacted a friend who has type 1 - she provided valuable advice but I have to be really careful what I eat and drink. Think its under control now. I had not tested for some time and last friday I was really bad, so lunch time I tested and it said 3.1 - I know it should be at least 4.5. managed to get it back up to 7.5, but with the increasing heat I am finding it hard to keep it up to the right leve. Tested a little while ago and was 5.4 - usually just before dinner its around 7.5. Think as has been suggested a few times here, I need to do the hypo awareness assessment so I know and understand more.

    I struggle with arthritis when its cold and loads of things when its hot - cant win!!!

    I appreciate all the help on this forum
     
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  16. barbarahelms06

    barbarahelms06 Type 2 · Member

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    Ps I save my 2 prescriptions for my disposal box
     
  17. barbarahelms06

    barbarahelms06 Type 2 · Member

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    Ps I save my 2 prescriptions for my disposal box
     
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  18. Arsenal47

    Arsenal47 Type 2 · Newbie

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    Totally my experience. Ask to be referred to a Beta Cell unit. Your dosage is too low for your level of glocuse.
     
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  19. alisonhe

    alisonhe Type 1 · Active Member

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    It may be worth reading Dr Bernsteins book the diabetes solution about both T1 and 2 - he says you should test and I think we all agree that you should. I am T1 (29years of being T1) and I test a minimum of 3 x day, I recently started testing more before and after my morning exercise and have just learnt that my bs goes up during exercise when all these years I have been eating a little before exercise if I am normal or low but I now know I don't need to - this is referred to as the Dawn Phenomenem which could be the cause of your high.
     
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  20. NorthenIan

    NorthenIan Type 2 · Newbie

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    I'm type 2 I've been testing for over a year now, I have used it to control mine and reduce the amount of metformin I take. I'm sure the test strips cost less than the drug so it's helping me and potentially saving money for the nhs. Win win
     
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