I'm sorry to hear you received such poor care, Malcolm. But I'm glad you now have the right team on your case and are getting the care you need.I was diagnosed 18yrs last Jan as T2 for the first 7 to 8yrs I was diet controlled then my sugars started to rise over a period of a few months and was put on Metformin and gliclazide after a few weeks I asked my then doctor about a test meter as I noticed the dosage kept going up and I felt no better, to be told the same I did not need to test as I was only T2 and on Metformin after some months of being told this I decided to buy my own meter and started testing once a day before bed only to find my readings to be in the mid to high 20s on a daily basis and quite often beyond my meters upper limit of 33.3 despite my bi-monthly blood tests taken at the doctors showing Hba1c as being normal to low at this point my GP retired and for a period of about 3yrs we had a succession of temporary doctors join and leave the surgery who to be honest just couldn’t care less about the patents as they had no intention of stopping on, I was finally attached to another doctor on a permanent basis and at that point after yet again I needed more than just tablets and being told to persevere I printed out my meter readings from the computer and took them in and refused to leave until she did something about it that and the fact that the practice nurse had just found that the feeling in my feet had started to deteriorate all I got was “oh I see what you mean” I was then sent to the diabetic center at the hospital for the first time in 15yrs I shortly moved house and doctors after that but in the 16yrs of being diagnosed while at that surgery I never once saw a diabetic nurse or dietician was never given a blood meter though they did supply the test strips and lancets for my own meter after much argument was not sent for eye scans until after I’d been diagnosed for about 12yrs and finally sent to the diabetic center after almost 8yrs of uncontrolled blood sugar continually in the high teens and low twenties, my new doctors are the complete opposite in the 2 and 1/2yrs I’ve been with them I see a diabetic nurse every 6 to 8 weeks who also takes blood each time, a podiatrist every 12 weeks and the diabetic GP every 12 to 14 weeks I’ve been given 2 new meters since joining the surgery
I would like to add my comments to this discussion.
I take 2 x 500 meteor in and 1 x2 mg glimepiride in the morning, together with 2 x 599 meteor in., having dropped from 2 x 859 met forming twice a day, in 2014).
When I was first diagnosed with T2 I tested my blood, every day between breakfast and lunch - it helped me know why I felt as I did, sometimes. My job could be hectic/ stressful and I found this was when I was likely to feel unwell, the worst was a level of 3.2 - chocolate in desk!
I was told some years ago that I no longer needed to test - by my g.p. Yet when I go to Moorfields they ask how my control is - I have to say 'it was ok at my last check up'.
I feel I should ask again for test strips but is it worth it?
I have a boyfriend/blood test on Monday so should I ask again?
Some people can eat porridge - the way to see if you can eat it is by testing just before you eat it and then 1, 2 and 3 hours after to see how your BS rises.At my last check with the diabetic nurse, she warned me off eating porridge, yet here you say it's good for you, I'm confused ?
I have T2 and I'm taking 500mg of Metformin daily.
Should I try porridge and if so, which brand is good for T2 sufferers ?
Is there anything you can add to off-set the otherwise bland taste ?
Thanks,
Kevin
Sorry for the length of this, it is all relevent...
I felt paticularly unwell the other day, and having gone without food for over 12 hours I tested my blood. My mmol/L was 12.0, which is high (for me).
I was preparing my lunch at the time and wondered if I should still eat my main meal with this high reading, or not? My thinking being - if my reading is already high then eating could raise it even more.
So, before cooking, I thought I'd ring "111" and ask their opinion (as it was a Bank Holiday and my options were limited).
I talked with a very nice lady on the phone. She checked with her superior and came back to me to say it was OK to still eat it. She said a doctor would call me back within the next couple of hours, but if I felt worse to ring 111 again.
Sometime later, after having cooked and eaten, I got a call from another lady saying the doctor was busy but would still call me back at some point. No problem I thought.
When the doctor eventually did call me he asked some routine questions but then launched into a lecture on blood testing!
He insisted I SHOULD NOT BE TESTING at all, as I was on Metformin. According to him, nobody on Metformin should be testing as it interferes with doing so (?!).
I tried to explain I have always tested once a day, originally on my G.P.s instruction (and whilst taking Metformin). I told him the doctor stopped issuing test strips about a year ago (£££), however I have been buying them to continue testing myself (normally only once a day).
I also pointed out to him if I didn't test my blood HOW was I supposed to know whether my diabetes was "under control" or not?
I had only tested twice on this occasion as I felt so unwell. Without testing I wouldn't have known my blood sugar level was the (probable) cause of me feeling ill.
The doctor grew increasingly stroppy saying I was making up my readings, as what I had told him wasn't possible!
WHY would I do such a thing? I even agreed with him that, the longer I went without food, I would have expected my reading to get lower, not higher.
For information my reading(s) that day were:
On waking (my normal testing time) my reading was 7.4
I don't eat breakfast, as a rule.
At 1215 (before eating) and after 12 hours + without food it was 12.0
(Lunch was eaten about 1300)
At 1410 it had reduced to 8.1
At 1515 it was 5.8
I ate again at teatime.
But at 2355 it was back up at 10.4 and I was feeling quite ill again. This time I didn't phone 111, as my previous dealings with their doctor had scared me off doing so!
I live alone, and I went to bed wondering if it would go higher in my sleep and (perhaps) never wake up.
Anyway, if you are still awake after reading all this...
Has ANYONE else been told NOT to take blood glucose readings whilst using Metformin? It's the first time since being diagnosed Type 2, in 2008, that I've ever heard of it.
How the hell is a sufferer supposed to take control of their diabetes WITHOUT knowing what their blood glucose is?
Puzzled.
I have found that neither my current doctor or the doctor I was previously registered with are not trained diabetes specialists, I now attend a Diabetes Clinic. My doctors have always been prepared and willing to prescribe test equipment, even providing a new monitor. What the NHS needs to do is to stop doctors prescribing for over the counter tablets and vitamins etc that cost the NHS far too much, I am also against doctors prescribing aspiring - these are extremely cheap to buy over the counter and anyone on a low income or on a pension can afford them at approximately £1.05 for 100 tablets - that's what I do. So these are just a couple of ways the NHS could save - probably - a lot of money.What madness and we pay for it in our taxes. Metformin only ever has a small effect on blood sugar so there is no strong advantge in testing for it's effects BUT you do need to test to see what foods affect you and if you are a mis-diagnosed LADA as a T2, like I was, then testing let's you know something isn't right without waiting a year for the next HBa1C. Some of these doctors haven't a clue.
I was diagnosed 18yrs last Jan as T2 for the first 7 to 8yrs I was diet controlled then my sugars started to rise over a period of a few months and was put on Metformin and gliclazide after a few weeks I asked my then doctor about a test meter as I noticed the dosage kept going up and I felt no better, to be told the same I did not need to test as I was only T2 and on Metformin after some months of being told this I decided to buy my own meter and started testing once a day before bed only to find my readings to be in the mid to high 20s on a daily basis and quite often beyond my meters upper limit of 33.3 despite my bi-monthly blood tests taken at the doctors showing Hba1c as being normal to low at this point my GP retired and for a period of about 3yrs we had a succession of temporary doctors join and leave the surgery who to be honest just couldn’t care less about the patents as they had no intention of stopping on, I was finally attached to another doctor on a permanent basis and at that point after yet again I needed more than just tablets and being told to persevere I printed out my meter readings from the computer and took them in and refused to leave until she did something about it that and the fact that the practice nurse had just found that the feeling in my feet had started to deteriorate all I got was “oh I see what you mean” I was then sent to the diabetic center at the hospital for the first time in 15yrs I shortly moved house and doctors after that but in the 16yrs of being diagnosed while at that surgery I never once saw a diabetic nurse or dietician was never given a blood meter though they did supply the test strips and lancets for my own meter after much argument was not sent for eye scans until after I’d been diagnosed for about 12yrs and finally sent to the diabetic center after almost 8yrs of uncontrolled blood sugar continually in the high teens and low twenties, my new doctors are the complete opposite in the 2 and 1/2yrs I’ve been with them I see a diabetic nurse every 6 to 8 weeks who also takes blood each time, a podiatrist every 12 weeks and the diabetic GP every 12 to 14 weeks I’ve been given 2 new meters since joining the surgery
. . . . . . . . . . even if you are just on Metformin !
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