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No longer insulin dependent?

St0ker

Member
Messages
9
Hi all, this is my first post, I discovered this site last night and it seems great, lots of useful info here. So... A little about me, with a question for you to answer if you manage to get to the bottom of this wall of text!

I am 38 and I have been injecting insulin for the last 4 years - I was told that judging from the state of my eyes I have probably been diabetic for the last 10 years, but was only diagnosed 4 years ago when my skin started erupting in strange boils!

When antibiotics didn't cure my hideous skin diseases I went back to the doctors to demand they dug a little deeper. On a Tuesday they took a blood sample and told me to come back on Friday to discuss the results. That same Tuesday night, at 10:30pm the emergency out of hours doctor turned up at my door asking for me by name - They seems surprised that I was the person they wanted, I'm not sure if they expected to find me lying on the floor, but my blood sugar test (not sure if that was an HBA1C) was 23% so I guess they were right to be concerned! They said "Are you diabetic" I said "Not that I know of..." They said "Well you are now." and that's how I found out!

Looking back now the signs were obvious, I had such an incredible thirst, and unfortunately for me the drink of choice to quench my thirst was full sugar ribena, so I ended up feeling even more thirsty after a drink! Just before I was diagnosed I was getting through a 75cl bottle of ribena concentrate a day... A shame I didn't know that being thirsty was sign of diabetes. A shame that my friends, work colleagues and family didn't know either!

Anyway - Back to my question... Does anyone know the rough percentage of people that manage to go from insulin dependence to oral medication or even nothing at all?

My HBA1C has been going up consistently since diagnosis, the last one was just over 8. I decided to go on a diet to lose some weight as I have been injecting more insulin to counter the high values and been putting on weight as a result.

I started weightwatchers 4 weeks ago. I have now lost over a stone (yay!) but the biggest surprise for me is I no longer seem to require insulin. I was going out for a lunch at the pub a couple of weekends ago and before we left the house I felt a hypo coming on. Tested and my level was 3.5 so I had a small chocolate bar to give me a boost.

We got to the pub and the food took over an hour to arrive, I had to have a few sips of my wife's sugary lemonade as I was feeling light headed again - I went a bit mad with the food as I thought my levels were really low anyway! A couple of hours later I was back home so I tested again and to my surprise my reading was only 4.5

I guess the dose of insulatard in the morning was still doing its thing. That night before going to bed I was still at 4.5 so I decided against injecting my nightly dose of insulatard. The following morning 4.2, after lunch 4.8 etc. etc. I have been mostly without insulin for the last couple of weeks now and is is now uncommon for my levels to be higher than 5.8 even two hours after eating.

I am very aware that this might be a temporary "blip" or something so I am testing myself about 4 or 5 times a day. There have been 3 times in the last two weeks where my levels went up to 8.0 and I have injected some insulatard to bring them back down, but that's just me getting used to what I can and can't eat on the diet (apparently beetroot dipped in malt vinegar isn't good for my levels!)

Has anyone else been in a similar situation? The advice I don't want to hear is "you must go and see your doctor immediately" as I'd rather keep my levels low and let the next HBA1C do the talking...

So, thanks for reading, and any comments or advice appreciated!

Cheers,

St0ker.
 
Well I've managed a small reduction. At diagnosis I was put on 18 units lantus bsal and 3 x 18 units novorapid bolus. By going on a low carb diet I'm on 40 mg gliclazide weaning to 20 mg gliclazide (quarter tabs are tricky! :twisted: ) Last HbA1c was 5.8 With the loss of insulin, weight has fallen away a bit!(Admit that on the insulin loss I was always slightly ahead of the HCPs, but always testing and probing but ready to pull back in my progress thanks to my doc's willingness to prescribe enough strips for my experiments. :lol:
So I would say to you to keep experimenting, but do it gently and give your HCP evidence that you are moving in the right direction and that your experiments are based on a sound basis e.g.
I did this...
and I responded in such a way blood sugar wise ...
so I tried this ...
and so I have achieved this by step-wise refinement!
You cant beat logical thought.
You say that your Hb1Ac is rising at 8 but you are achieving BS in the 4s. How high are you spiking, and when ?
If you can spare the strips, try examining your BS over a longer time span e.g. at meal + 0.5 hr +1hr at +2hr, at +3hr +4hr +5hr
You may find that on your food , you are spiking before /after your usual test point and you need to test/eat differently to control your HbA1c (which is a long term average)
another problem may be that your insulin may not be coping with all your needs i.e, it is only covering for 3 hours then you are not covered until your next injection.
Good luck with your attempts to control your diabetes
 
Thanks for the response! I haven't had an HbA1c since I started dieting, I am due one now but wanted to go for a couple more weeks on the diet to give maximum impact on the test. Before dieting I would have a pre-meal reading of anything between 5 and 7, and post-meal reading of anything from 7 to 10. Since the diet started my pre-meal readings are all under 6, most of them around 4.5. Post meal readings are usually under 6, with a couple in the early 7s.

I think that's good advice about testing myself more, I have been testing more but it tends to be just before meals and 2 hours after meals, and given that I am now eating different foods than I was used to it is very probably I am peaking at different times now. My testing meter gives averages for last 7, 14, 30 days. Those readings are now 5.5, 5.7 and 5.7 which is a whole lot better than I'm used to, and amazing seeing as that's without the use of insulin.

Having written this and digested what you said, I think I should see my HCP - It may be appropriate for me to change my oral medicine to something other than Metformin if I am not using insulin any more - I'm no expert in this area and should probably let the experts look after my health! I have never even heard of gliclazide or lantus! I feel a google coming on...

Thanks again,

St0ker.
 
St0ker,
Gliclazide stimulates your body to produce more insulin and Lantus is a long acting insulin (allegedly ~24 hour duration)
TBH, I can usually get by without the Gliclazide when I'm on the strict diet and only need it when I eat away from my own cooking! :lol:
Best of luck
Fergus.
 
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