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On mdi and cannot control my diabetes, getting sick and I want the pump so bad.

M

MitchT1995

Newbie
Messages
2
Type of diabetes
Type 1
I have nobody to talk to about diabetes related things and nobody understands the day to day struggle! I'm 21 and now have difficulty walking, eating, suffer severe nerve pain and have heart problems now and bowel problems I have been type 1 diabetic since 01/04/14, I was 18 years old when diagnosed, working 30 hrs a week and attending college 20 hrs a week, playing football twice a week, going on nights out at the weekend with mates for a few now I'm a complete bag of bones skinny mess and can't do things for myself, I've contemplated suicide too many times, my mental health has suffered a lot, I haven't left the house in over a month and speak to nobody anymore! I can't control my diabetes what so ever I've tried so hard I cannot tell you the amount of money I've spent on things to improve my diabetes, gone to every appointment with diabetes team, I've done everything I've supposed to and I've failed, I'm a failure, I so badly want to be put on an insulin pump so I can't try and make my diabetes and my life better and maybe get back to some kind of normality! My only problem is because my hba1c is too high I'm not eligible for one, so I geuss I just have to give up sorry for the long story I'm just so so down.
 
1) I don't think there is a maximum cut off for hba1c for pump availability. Have a look at what input diabetes says about pump eligibility - http://www.inputdiabetes.org.uk/alt-insulin-pumps/nhs-funding-pump/

2) a pump isn't going to magically solve anything, it's just a different way of delivering insulin, you still need to do the basics that you need to do on mdi to achieve control with a pump, plus a little more, if anything. So, are you doing the basics on mdi? Are you testing at least 4 times a day? Have you been on DAFNE or a carb counting course? Have you basal tested to check you are on the right basal dosage? Have you done post prandial testing to check you are using the right insulin to carb ratio throughout the day? Have you experimented with pre bolusing to get the timing of your bolus right? Do you know your correction factor and correct for highs?
 
MitchT1995 said:
I have nobody to talk to about diabetes related things and nobody understands the day to day struggle! I'm 21 and now have difficulty walking, eating, suffer severe nerve pain and have heart problems now and bowel problems I have been type 1 diabetic since 01/04/14, I was 18 years old when diagnosed, working 30 hrs a week and attending college 20 hrs a week, playing football twice a week, going on nights out at the weekend with mates for a few now I'm a complete bag of bones skinny mess and can't do things for myself, I've contemplated suicide too many times, my mental health has suffered a lot, I haven't left the house in over a month and speak to nobody anymore! I can't control my diabetes what so ever I've tried so hard I cannot tell you the amount of money I've spent on things to improve my diabetes, gone to every appointment with diabetes team, I've done everything I've supposed to and I've failed, I'm a failure, I so badly want to be put on an insulin pump so I can't try and make my diabetes and my life better and maybe get back to some kind of normality! My only problem is because my hba1c is too high I'm not eligible for one, so I geuss I just have to give up sorry for the long story I'm just so so down.
Click to expand...
Sorry to hear about your issues.

If I can advise anything, it would be to buy this book - it has the ability to change your life:

https://www.amazon.co.uk/gp/aw/d/B06XCDTPP1/ref=tmm_kin_title_0?ie=UTF8&qid=&sr=
 
@MitchT1995 Sorry you're so down. Please do speak to someone like your GP if you really feel you can't cope. You're not alone. We all know how wearing Type 1 can be.

Can you explain a little more about your control problems?

Do you count carbs? It's impossible to get good control without counting carbs. A number of people seem to have been left to get on with diabetes control as though just taking your injectiins is magically going to sort everything. But sadly Type 1 doesn't work like that. Basal needs adjusting sometimes, and meals need to be carb counted and the correct insulin dose given.

A pump doesn't automatically cntrol your blood sugar. It only does what it's told to do by the user.

Do tell us more and I'm sure you'll get some great advice from other Type 1s here. Don't give up. X
 
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