Can an ex Type1 take part?Hi everyone, hope you are well.
I am a masters health psychology student at the university of Middlesex. I am carrying out a research on the impact of working life on managing diabetes. I would be really grateful if you could take a couple of minutes to complete my study. It should take about 15-20 minutes.
Please click on the link below if you would like to take part.
Many thanks and your help is deeply appreciated.
Done!Hi everyone, hope you are well.
I am a masters health psychology student at the university of Middlesex. I am carrying out a research on the impact of working life on managing diabetes. I would be really grateful if you could take a couple of minutes to complete my study. It should take about 15-20 minutes.
Please click on the link below if you would like to take part.
Many thanks and your help is deeply appreciated.
As I have not been Type 1 for almost six years, I have answered the survey as though I was in my last Type 1 weeks.Hi everyone, hope you are well.
I am a masters health psychology student at the university of Middlesex. I am carrying out a research on the impact of working life on managing diabetes. I would be really grateful if you could take a couple of minutes to complete my study. It should take about 15-20 minutes.
Please click on the link below if you would like to take part.
Many thanks and your help is deeply appreciated.
As I have not been Type 1 for almost six years, I have answered the survey as though I was in my last Type 1 weeks.
Hi @Rylando88 Sorry this is delayed. According to the Home Page and other medical sources, I haven't been cured! I was Type 1 from 1959 - 2013 when I had a kidney/pancreas transplant. To my mind, having put an end to at least 32,000 injections and finger pricks, I feel cured, but even a transplant brings problems - not usually as bad, but I did have a very worrying six months, ending on 7th Feb this year in which they thought the organs were being rejected.Can I just ask how exactly you managed to get rid of type 1 diabetes?!?! As far as I was aware there is no cure for it yet?? If there is I want to know about it!!!!
Why can't I take part - I was told I have type 1 but i was diagnosed at 34 does this mean I have LADA?LADA patients
AhhHi @Rylando88 Sorry this is delayed. According to the Home Page and other medical sources, I haven't been cured! I was Type 1 from 1959 - 2013 when I had a kidney/pancreas transplant. To my mind, having put an end to at least 32,000 injections and finger pricks, I feel cured, but even a transplant brings problems - not usually as bad, but I did have a very worrying six months, ending on 7th Feb this year in which they thought the organs were being rejected.
The problem is that for any transplant to be offered, whatever is being replaced has to be in very poor shape before they will proceed as it is a seriously risky operation. My advice is to stay as well controlled as possible and trust that science is bringing hope even more speedily than five years ago. Good luck with your regime and health!
Hi @Rylando88 Wish it was that simple! Luckily (?!) only a fraction of the pancreas (5%) is involved with insulin. The other 95% is involved in other digestive functions such as lipase, amylase, and combining juices with bile, all of which aids digestion. As serious kidney malfunction is a more threatening condition, I managed to get a foot onto the organ ladder! Funnily enough, I bumped into another type 1 on Saturday, who was very excited by my experience, and wondered how she could chat up the local surgeon... It's at times like this that I feel a traitor to the cause. I can only think that people like you and her live in far more encouraging times.Hi, not a problem better late than never I say!
It’s great that you’ve had a transplant and I can totally understand why you would say you are cured as I would probably be the same to be honest!
What intrigued me though is you say about being offered a transplant when things are in bad shape, well my pancreas doesn’t work at all and hasn’t for 21 years, is that not bad shape? Haha!
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Ahh
Sorry to but in, so you had a pancreas retro fitted and you were no longer diabetic, produced your own insulin? thats pretty amazing, never heard of that beforeHi @Rylando88 Sorry this is delayed. According to the Home Page and other medical sources, I haven't been cured! I was Type 1 from 1959 - 2013 when I had a kidney/pancreas transplant. To my mind, having put an end to at least 32,000 injections and finger pricks, I feel cured, but even a transplant brings problems - not usually as bad, but I did have a very worrying six months, ending on 7th Feb this year in which they thought the organs were being rejected.
The problem is that for any transplant to be offered, whatever is being replaced has to be in very poor shape before they will proceed as it is a seriously risky operation. My advice is to stay as well controlled as possible and trust that science is bringing hope even more speedily than five years ago. Good luck with your regime and health!
Hi @Fenn I fully understand your reaction! I still find it unbelievable that in 2 weeks time I shall have been producing my own insulin for 6 years. Funnily enough Addenbrooke's Hospital Cambridge are performing around 30 pancreas transplants a year. but I guess we are still relatively rare. Best of luck with your health. GrantSorry to but in, so you had a pancreas retro fitted and you were no longer diabetic, produced your own insulin? thats pretty amazing, never heard of that before
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