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Other types diabetes

jessA2024

jessA2024

Member
Messages
15
Location
Leeds
Type of diabetes
Treatment type
Insulin
Hi

Anyone diagnosed with monogentic diabetes or MODY diabetes is another name.?

If so did it change anything for. Your managment of diabetes?
 
Hi
Diagnosed with MODY 1 nearly 2 years ago after being diabetic for 25 years
I was already on 20mg of gliclazide so my treatment didn’t change
DSN had already given me a libre as nobody believed what I was eating & taking & my reaction to it
Bloodsugar101 is a good website for information
Anything you want to know just ask
 
DEBBIESCOTT said:
Hi
Diagnosed with MODY 1 nearly 2 years ago after being diabetic for 25 years
I was already on 20mg of gliclazide so my treatment didn’t change
DSN had already given me a libre as nobody believed what I was eating & taking & my reaction to it
Bloodsugar101 is a good website for information
Anything you want to know just ask
Click to expand...
Thank you, I'll take a look at the website. I will most likely invest in fressytle sensor if going on insulin. I'm hoping to turn a corner in getting these sugars down
 
Have you got a MODY diagnosis?

if you are MODY, depending on the type, you may be changed to gliclazide tablets,
Try asking your team for libre on prescription
 
DEBBIESCOTT said:
Have you got a MODY diagnosis?

if you are MODY, depending on the type, you may be changed to gliclazide tablets,
Try asking your team for libre on prescription
Click to expand...
No I have a bloods test next week for the MODY

I have been on gliclizide didn't do much. Asked them but they said the rules are so strict they can't do on prescription
 
That’s strange usually people with MODY have a strong reaction to the smallest dose of gliclazide (I can hypo on 20mg which isn’t a recognised therapeutic dose)
Why do they suspect MODY?
 
DEBBIESCOTT said:
That’s strange usually people with MODY have a strong reaction to the smallest dose of gliclazide (I can hypo on 20mg which isn’t a recognised therapeutic dose)
Why do they suspect MODY?
Click to expand...
Because other meds tablet wise haven't worked for me make me ill and sick, then they said because I had diabetes from 17years which is very young. I was on 80mg gliclizide for about 6 weeks and didn't make them any lower than 10. 5 from 18-19.

I reacted best to insulin in 2020 and that's what I'm starting in on 13th a long acting one to see what happens.
 
Hope the insulin works for you & you get the answers you need
Just be prepared for a long wait to get the results back, mine took nearly 3 months
You will get there, hope you feel better soon (I felt sick at some point every day for about 2 years on gliclazide, don’t know if it was the medication or blood sugars)
Take care
 
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