diaBeeGees, I think you will note there are several suggestions of seeking help from the gentleman's medical team, and indeed, the thread starter confirms they have engaged and are receiving help.
Many people arrive on our forum at a time of confusion, and oftentimes feelings of abandonment by or a lack of understanding from their mainstream medical teams.
Visiting a forum such as this does not replace medical support or monitoring, but can be extremely useful. Many find speaking to others living with the same, or similar challenges to their own to help helpful.
