pain

colinthecat

Member
Messages
6
Hi,

I am newly diagnosed type 1, (LADA,) and am in considerable pain virtually all over my body. My
consultant has said the pain will get worse before it gets better. Any advice would be much appreciated. Please excuse any mishaps here, or lapses in etiquette, this is the first time I have used chat rooms.

Regards,

Gina
 

tubolard

Well-Known Member
Messages
575
Dislikes
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Welcome to the forum Gina, we have many experienced members who may be able to offer you advice.

Regards, Tubs.
 

gary_work

Newbie
Messages
2
Hi Gina, I hope your well. My name is Gary and have had Type 1 Diabetes for almost 14 years now. I may have an answer to your pain problem, but as I'm not sure of your diabetes history it may be a stab in the dark.

I believe, through my own experience, that long acting insulin has a part to play in this. If you have Type 1 diabetes then the chances are your taking Insulin, the point here is if you take your short acting and long acting seperately.. e.g. Novorapid (short) Glargine (long) ... Then at times there is not enough long acting in your body. This will prove more so when your blood sugar levels have been running higher than recommended over a period of time, resulting in more pain.

I hope this is of some relevance to you Gina, if so then Im glad i have been of some help.


Kind Regards,

Gary :)
 

colinthecat

Member
Messages
6
Hi Gary,

I only started insulin treatment at the beginning of December after my sugar levels were running very high for over a year, (wrong diagnosis believe it or not!) so I am still trying to get them under proper control.

Thank you for your reply.

Regards,

Gina
 

gary_work

Newbie
Messages
2
Hi Gina, Sorry to hear about your wrong diagnosis, it can't of been good going that long with your sugar levels unstable. I can believe it though, it seems that as Diabetes is fairly new as far as recognised conditions are concerned so a lot of GP's lack reasonable knowledge.

I do hope your feeling better since taking insulin, there are many different types and regimes so can sometimes take a while to find the right set up to suit your lifestyle.

As I said previously I link the pain you experience with sugar levels being high for a period of time, this can be as little as a couple of days. If this continues then I personally would look at increasing the long acting insulin, obviously do check your sugar levels thoroughly throughout a few days prior to doing so and this will give you an idea of when your levels are at there highest. E.G. - if they're high in the morning, take and increase the evening dose. If they're high in the evening, increase your morning dose. Do discuss this with your specialist as I'm not sure of your current regime.

I would recommed taking a small increase at first, especially if taking long acting in the evening as the chances of a hypo at night will increase.

Another important thing is having both insulins in your body when required. Some people may think that they can counteract not having long acting by taking more short acting and vice versa. This is definately not the case, without both insulins working together it can make you feel like your sugar levels are high anyway, regardless of how normal they look on a blood testing machine.

Again I do hope this is of some help to you, good luck!

Kind Regards,

Gary :)
 

Trinkwasser

Well-Known Member
Messages
2,468
colinthecat said:
Hi,

I am newly diagnosed type 1, (LADA,) and am in considerable pain virtually all over my body. My
consultant has said the pain will get worse before it gets better. Any advice would be much appreciated. Please excuse any mishaps here, or lapses in etiquette, this is the first time I have used chat rooms.

Regards,

Gina

Try monitoring your BG

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm

see if the pain is associated with high numbers.

If it's neuropathy the #1 best practice is to keep your BG down as much as possible. This may also help

http://www.diabetic-talk.org/dpn.htm

it may take time and as the nerves heal they can start to pass pain signals that were previously not getting through, unfortunately not uncommon.

Make sure you get checked out for other potential causes though, someone I know had severe neuropathy pain throughout their body rather than just the usual diabetic peripheral type which was almost certainly down to Lyme disease which went undiagnosed and untreated for too long.

Shingles may be another potential offender.