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Pancreas & kidney transplant

mrburden

Well-Known Member
Messages
288
Location
Deepest Darzet
Type of diabetes
Type 1
Treatment type
Insulin
Hi all,
I am waiting for the final heart stress test to find out if I can get onto the John Radcliffe Hospital joint kidney & pancreas transplant list. Has anyone here had the operation or are you on the waiting list? I would like to know how it has changed your life, good or bad. It seems to be quite a big op but with fairly good health prospects but I'd like to know from first hand experiences.
Thanks,
Mark.
 
Hi...
blimey that sounds like a biggy! I haven't had that op but have had a couple of biggies in my time and just wanted to say three things...
1. Good luck and I hope everything goes well for you.
2. If they offer morphine, take it, it's lovely stuff!
3. TAKE IT EASY - you can do untold damage to the area after an op by doing too much (by which I mean hanging the washing out or anything!!!).... If you have the opportunity to stay in hospital (and assuming it's clean) - STAY... I came home too early and wish I hadn't in some ways because it was harder to rest. Take books, puzzles, magazines, music, paper and pens to write letters to friends, photos of the people you love, sewing, knitting, painting. Take a diary so you can write how you feel and what has happened, and what the docs and nurses say... it passes the time and you may find it interesting to refer back to.

One tip - if you are allowed to walk around, do so, it really does help get things within your body moving but take it really steady.

Good luck!
 
Hi Tigerhair,
Thanks for the message. I've had two toes and a quarter of my foot off recently, my gall bladder out last year and 3 vitrectomy ops some years ago and what you suggested is definitely the way to go about making the stay in hospital easier.
This is definitely the "biggie" though and has about a month in hospital with about 12 months total recovery so i'm saving my DVDs and books already.
Thanks, Mark
 
Hi Mark

You seem to have had more than your fair share of health problems, and are obviously quite experienced as an in-patient :-(

Tell which medication are you taking, just wondering because some people dont know for example that Metformin needs to be stopped a couple of weeks before any operation, a member of the self-help group that I attend wasnt told that by her medics and as a result had some complications after her op that could possibly have been avoided.

Make sure that you eat good, healthy food and take a good vitamin supplement and if you are allowed some of the good oils, fish oil/flax oil, etc to make sure that you are as healthy as possible before you go into hospital to help you recover better afterwards.

My aunt had a kidney transplant, so I know a little bit about such operations, whilst you are in hospital you will of course receive the best of care, the first few days will be a blur, but when you are more alert its easy for depression and anxiety to kick in, hopefully you will be assigned a psychologist or similar support to help you through, focus on the positive things, just little things, like every day say to yourself, and thats another day closer to going back home, to feeling better, good that you are planning on reading and watching your DVDs so that boredom doesnt set in.

Let your family and friends fuss over you, let them spoil you a little bit, dont feel guilty about it, we all need someone to kind of carry us now and then, and this will be your time.

Find out what help is available in your area, there may by a support group for transplant patients?

I wish you all the very best, let us know when you go into hospital, I will light you a special candle and shoot all the healing vibes I can.
Incidentally my aunt had her transplant 14 years ago and is still going strong.

Karen

I dont know but maybe this is a useful link to help start you off, at least these good people could point you in the right direction?
http://www.patient.co.uk/showdoc/26739954/
 
Oh and anything that makes you laugh will help you get better - if I am ill it's billy connolly all the way!!!!!!!!! :lol: :lol: :lol: :lol:
 
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