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PCOS

daisymj14

Well-Known Member
Messages
52
Location
West Midlands
Type of diabetes
Type 1
Treatment type
Insulin
Hi everyone.
Happy new year to you all


I've just been told I have PCOS (polycystic ovaries) by my GP after going for an ultrasound as never really have any periods; always blamed this on having the contraceptive implant but appears that isn't completely the reason.
Upset me quite a bit as they've said both ovaries are full of fluid and cysts. My GP has said he needs to speak to my diabetes consultant as it may be diabetes related before they know what the next steps are? I have searched the internet but all that I've found is the fact it can be caused by insulin, and can cause type 2? Surely everyone has insulin in their bodies, diabetic or not? I have had type 1 since I was 7, now 25.
Just wondered if anyone had any information as I'm quite confused and concerned

Thanks all xxx
 
Happy new year to you too daisymj14

http://www.uchospitals.edu/specialties/pcos/pcos.html

http://www.londonendocrinecentre.co.uk/Polycystic-Ovary-Syndrome.html

http://natural-fertility-info.com/types-of-pcos.html

well I don´t know much, have heard that metformin is good for some with PCOS;those who have very high insuline resistance , but you are type 1 diabetic and then I don´t know...
http://care.diabetesjournals.org/content/39/4/639

http://diabetesstopshere.org/2012/09/11/pcos-the-cousin-of-diabetes/

I also read somewhere that low carbing is very benificial to PCOS but that is maybe mostly to the overweight types , and you look very fit and actually very fine and not like one with very much testosterone either in your body...

I think trying to read in a lot of the discusions in the Worldwide forums where women with PCOS are talking of their problems is some of the best places to find out what Works for the different type of problems PCOS can lead to...

also the eating style with hardly any fats is maybe actually damaging to the bodys hormonal systems... but there a specialist in diets for PCOS is the better place to seek information I think ..

You are type 1 and then maybe very low carbing is maybe a difficult road to take... and to some maybe even dangerous...

wish you all the best of luck.... you look so feminine... maybe you could also ask for a second opinion from another doctor specialist in PCOS...

but the earlier cyst on the ovaries are detected the better choices one can take , in maybe not waiting too long to get the child/children one wishes in life, if possible at all... a friend of mine did wait too late untill almost 35 before thinking of getting children.. and the PCOS cysts seem to get worsening over the years...

http://www.diabetesselfmanagement.com/blog/pcos-polycystic-ovary-syndrome-diabetes/
 
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Hi @daisymj14. I also have pcos and am of normal weight. I also had a child naturally at 37 - even though I was told I would need ivf. I have no medical advice to give you but just wanted to say that just because you have it does not necessarily make your diabetes or fertility any worse. My only real symptoms are lack of periods too - I'm not hairy or overweight or acne-ridden!
 
@Freema
Thank you for all your information. That's so helpful

I'm just over 10 stone and 5 foot 6, not particularly hairy (bet the men are finding this strange to read if they browse this post haha), and I don't really appear to have many symptoms apart from no periods and slight acne on my back but nothing terrible.

@Diakat I'm guessing that's your lovely little girl in your photo
thanks for reassuring me. I'm going to stay positive, luckily I have a supportive partner too. It's being scared of the unknown really, but I suppose there's no need to worry until I need to x
 
Hi @daisymj14 .
I'm guessing you have a few of the typical symptoms from pcos running wild in your body?
I'm not type 1 but type2 however my consultant over 20yrs ago lazered my both ovaries to try and allow my pcos a chance to restart my periods (which at the time were on average every 8mths). On fertility tests I was not ovulating on my own. So progressed to taking Clomid to encourage ovulation then eventually onto joint funded ivf. Of which failed.
I was reading articles in the charity magazine for ISSUE where in the US trials had been published regarding metformin being used for PCOS sufferers with great success.
I approached my private gynocologist who also worked for the nhs in SE London and being available at the right time I was included in the London trials. First placebo test then metformin in a blind trial. My periods resumed then continued on a 35 day cycle. Which never met the time of ovulation expected in the day blood tested. I knew I was ovulating but often failed the blood test. Even now. (Well pre sterilization).
Periods and ovulation returned for me on metformin longterm therapy. I was using metformin a few years (2-3yrs) before I concieved with my new partner of only 3mths. Which surprised and elated everyone!
I have just resumed back on metformin after having a period of no tolerance. I took a yrs break and used the lchf diet to rid my fatty liver, which I believe affected its performance. I stopped it before a tummy bug could strip my electrolytes and a heart scan last month. I'm back on 2x500mg per day til next week where I'll increase back to 2x1000mg daily. Metformin has helped with my severe insulin resistance. No weight loss yet but pre children I lost 2st at least on metformin therapy. On the occasion professor who sanctioned my ivf programme at 15stones stopped my metformin I gained weight immediately, over a stone in the period leading up to harvesting my embryos. In my second pregnancy I was advised to continue metformin as it was safe in pregnancy.
I was asked in my first pregnancy but I was too scared of risking my 20yr long waited baby!
Both children are healthy and a handful.
Please feel free to ask your specialist any niggling queries. Mine was excellent.
 
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