Type 2 PN nightmare - help!!!

sbnz

Member
Messages
19
Type of diabetes
Type 1
Going crazy with PN skin itching, prickling and hand and foot pain that is preventing me from sleeping. I tried Pregabalin and Gabapentin and they really messed with my head, I was like a zombie. Docs cannot recommend anything else. I am now trying antihistamine which helps with the itching but not the pain, I take magnesium supplements, I have various balms, oils, but nothing really works. BGs are stable. Any suggestions, am climbing the walls.
Hi nannoo bird, first my commiserations - I get that this has you 'climbing the walls'. I have type 1 diabetes and have had sketchy control of my bgls over the years. Lately (last few years) I have also been very aware of my depression and had been spending a lot of time in bed. Not good..(I am picking up though on this front)...one outcome seems to be I have more nerve issues in legs at (proper sleep) bedtime. They haven't been hugely painful...more a crawling restless legs type thing - but they wake me and keep me awake until I can quiet them. I now take 1 magnesium tablet before bed (organic magnesium - my pharmacist said we absorb it better) and also take the time once in bed to massage my legs with a moisturiser (using it generously and taking time to cover my lower legs and feet thoroughly with firm strokes - finishing with upward strokes is best I think - directing blood back toward the heart). If you are not able to massage your own legs - perhaps your bed partner can? Or make use of one of the foot vibration machines that are advertised for sale for a period of time before bed - (maybe trial it at a pharmacy first with assistance from staff.) Also have you tried magnesium cream - you apply it to the area needing help...I haven't used it myself but have read stories of others who have had success with it. Wishing you the best with finding some relief. Xx Sandra.
 

Ellenor2000

Well-Known Member
Messages
91
.

As I'm 72 years old, diagnosed in 1985, but now believe had type 2 diabetes from childhood, I'm ahead of you! Things I've tried include codeine phosphate, (fairly effective but nasty stuff), Dettol antiseptic in bathwater then having a long bath, (effective but see below), and sunbathing! I tried other things without success.

I found that the codeine works, but only for an hour or two, leaving the symptoms slowly driving me mad until the next dose was due. OK but only for "emergencies".

Putting Dettol in my bath usually resulted in increased itching, but after the 2nd bath with Dettol some days later, the itching had gone. This was my first real "clue".

Then I realised that the problem seemed to go away late summer for a few months. A doctor suggested that this might relate to vitamin D gained from sunbathing. That was a plausible theory, aided by having longer summer holidays in recent years with the benefit lasting longer into the winter.

This year has been different. Last summer I had the longest summer holiday of my life, (four weeks). I spent a lot of time in the sun, and now it's late February still am almost completely itch free.

CONCLUSION

The Codeine answer is only pain and itching relief, it isn't a cure.

Why did Dettol work? Effective but it seemed odd.

Sunbathing. Why did that work? It can't be vitamin d, I'm sure there's no vitamin d benefit left now it's around 6 months since my last time in the sun.

Then a brainwave flash, I think I have it. I think that high blood sugars, maybe years ago led to high sugar on the surface of my skin feeding a viral, bacterial or fungal infection to my skin. The Dettol attacks it, hence extra itching at first, then a benefit for a while with the infection eventually creeping back.

Ultra violet light, (essential for sunbathing!), kills viral and bacterial infections and may also kill fungal infections. I think that, last summer, four weeks of holiday, often in the sun, has "disinfected me" from something that has been with me for a great many years. It'll return, but there's next summer's holiday on a beach to help again!

I hope that this gives you some ideas. For Dettol use about a capfull, (the cap of the Dettol bottle), in a normal bath.

Sunbathing - not enough for sunburn, obviously.

No sun? Try an ultra violet sun tanning sunlamp. If using a sunlamp, wear a swimming costume or underwear to protect the body's "vital parts". I sunbathe in swimming trunks, the small covered area doesn't seem to be a problem. Probably with most of the skin protected, the small covered area means not enough infection is left to cause serious problems.

Good luck!


.
Huh!

Do you find things are generally better (this infection is easier to control, &c) if your blood sugars are closer to those of someone who doesn't have diabetes mellitus?
 

Ellenor2000

Well-Known Member
Messages
91
Hi nannoo bird, first my commiserations - I get that this has you 'climbing the walls'. I have type 1 diabetes and have had sketchy control of my bgls over the years. Lately (last few years) I have also been very aware of my depression and had been spending a lot of time in bed. Not good..(I am picking up though on this front)...one outcome seems to be I have more nerve issues in legs at (proper sleep) bedtime. They haven't been hugely painful...more a crawling restless legs type thing - but they wake me and keep me awake until I can quiet them. I now take 1 magnesium tablet before bed (organic magnesium - my pharmacist said we absorb it better) and also take the time once in bed to massage my legs with a moisturiser (using it generously and taking time to cover my lower legs and feet thoroughly with firm strokes - finishing with upward strokes is best I think - directing blood back toward the heart). If you are not able to massage your own legs - perhaps your bed partner can? Or make use of one of the foot vibration machines that are advertised for sale for a period of time before bed - (maybe trial it at a pharmacy first with assistance from staff.) Also have you tried magnesium cream - you apply it to the area needing help...I haven't used it myself but have read stories of others who have had success with it. Wishing you the best with finding some relief. Xx Sandra.
It's apparently quackery (given it was the Wheat Belly guy's thing) but I've heard of a mixture of plain milk of magnesia (magnesium laxative) with plain fizzy water (not tonic, not flavored) being used to replenish magnesium levels orally in people who have infusion-dependent magnesium wasting from chemotherapy complications. So maybe you could give that a go?