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Pump Waiting List Time

Louisek93

Louisek93

Member
Messages
9
Type of diabetes
Type 1
Treatment type
Insulin
I was just wondering how long it actually takes to get on the pump, like weeks / months ? I have another consultation in October to tell them if ive decided to go on one or not , My dsn also said I'd be "high priority" for one. What is the next step? Sorry if this is a bit confusing .


Louise.
 
Unfortunately, the answer is "it depends"
Each CCG has different rules, different qualifications, different waiting lists.
From approvall to pump, i waited less than a month but i do not know if this is typical.
 
helensaramay said:
Unfortunately, the answer is "it depends"
Each CCG has different rules, different qualifications, different waiting lists.
From approvall to pump, i waited less than a month but i do not know if this is typical.
Click to expand...
Thankyou . I would hope for sooner rather than later x
 
I have been accepted for the pump.. just waiting to see the pump specialist doctor now. Been 6 weeks and the wait is killing me now lol. Been diabetic for 46 years, so I guess another few weeks won't hurt???
 
The consultant really wanted me on the pump because I couldn't tolerate any long acting insulin. Took about eight days before I was walking out the clinic attached to pump. Would have been quicker, but that was the first day two consultants, two dsns and me could all meet up.
 
I called my clinic and said I wanted to go on a pump last Monday. I’m getting set up with it on Thursday.

However... I’ve been having dawn phenomenon and monthly insulin resistance issues since getting my HbA1c down from horrendous levels and first noticing them in the early spring, thanks to Libre. I’ve rung the DSN hotline a few times since the. to ask for advice about them, and each time they said that a pump was the best way to solve them, and that I’d be eligible, but I wasn’t keen. I happened to see the DN at my GP surgery the other week and she also said I needed one ASAP - at which point I just decided it had to be worth a try. Waking up at 3mand 5am to take a shot of Novorapid is getting boring now. I don’t know if my area is especially fast for this stuff, it seems like it reading all your comments.
 
Louisek93 said:
I was just wondering how long it actually takes to get on the pump, like weeks / months ? I have another consultation in October to tell them if ive decided to go on one or not , My dsn also said I'd be "high priority" for one. What is the next step? Sorry if this is a bit confusing .


Louise.
Click to expand...
After funding was approved, I waited almost a year for the pump. Worth the wait though!
 
Mel dCP said:
I called my clinic and said I wanted to go on a pump last Monday. I’m getting set up with it on Thursday.

However... I’ve been having dawn phenomenon and monthly insulin resistance issues since getting my HbA1c down from horrendous levels and first noticing them in the early spring, thanks to Libre. I’ve rung the DSN hotline a few times since the. to ask for advice about them, and each time they said that a pump was the best way to solve them, and that I’d be eligible, but I wasn’t keen. I happened to see the DN at my GP surgery the other week and she also said I needed one ASAP - at which point I just decided it had to be worth a try. Waking up at 3mand 5am to take a shot of Novorapid is getting boring now. I don’t know if my area is especially fast for this stuff, it seems like it reading all your comments.
Click to expand...
I’ve had to wait almost 2 years had to do DAFNE and waiting list x
 
You need to clearly state your case for a pump. Night time lows, hectic lifestyle etc. Most places will want you to get your HbA1C in good order first; pumps need constant attention and you’ll need to evidence your clinical need / risk if you don’t have one ( e.g. regular A&E visits or bad HbA1c despite best efforts)

Pumps aren’t a magic diabetic bullet that will solve your control. You need to demonstrate you can control your sugars and carb count before a pump is considered.

If your waking up during the night due to high sugars it’s more likely that you need to work with your DNS to get your long acting dose and pre evening meal bolus sorted. You might also need to change your time for your Long Acting shot - again your DNS / Hospital team are best placed to advise you. It’s also likely your GP surgery DN isn’t very familiar with pumps - you typically need to see a DNS at a hospital that runs Pump Clinics. You normally have to complete DAFNE and go to pump class before you’ll get approved.

Often it is the hospital that decide to issue a pump or not and there can be a separate CCG fund linked to the hospital and not directly though you GP. Many CCGs ( I used to work in a team that created clinical pathways for CCGs) will contract the hospital to run / issue pumps - not the local GP ( although your GP will need to refer you).

Pumps only make Diabetes management more complex. Once they are set up correctly and well managed then they are great.

Good luck!
 
misspinky1984 said:
I’ve had to wait almost 2 years had to do DAFNE and waiting list x
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I was over a year and had already done DAFNE couple of years earlier.
Do a DAFNE course. My local Dsn at doctors arranged it. It will help to get pump. Also gets rough settings to go on pump
 
richyb said:
I was over a year and had already done DAFNE couple of years earlier.
Do a DAFNE course. My local Dsn at doctors arranged it. It will help to get pump. Also gets rough settings to go on pump
Click to expand...
I've already done a DAFNE course.
 
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