Sorry boys you might want to close your ears!!
Ladies do you find your symptoms Are worse during menstruation? I've found I have had to eat a bit more
Today x
Lol I don't even know what 9 bars and fat bombs are. Protien bars didn't last me and breakfast bar spikes me to 11.It's totally understandable if you are feeling rough. Maybe make some sweet sized fat bombs that you could pop in your mouth whilst working? You'd hAve to test them at home to see how long you could keep going for on them. Or maybe one of the 9 bars that everyone talks about?
Sounds like you had a brilliant appointment. Really pleased for you. Do you mind me asking where consultant is based?Hi all,
Just to let you know that my endocrinologist appointment went great.
In fact he is so happy with how I'm doing, my next appointment is in six months.
My consultant didn't greet me as usual, he had his computer screen on a particular page on how patient A and patient B has achieved no hypoglycaemic episodes since the trial started with my meds. The consultant explained that the use of the meds has far exceeded expectations and has been in contact and in private discussions with the pharmaceutical company and they have announced because of my tests to do a wider more scientific study with a larger group of patients.
The paper on my condition and the diagnosis and prognosis will be published soon!
The consultant has had a few meetings with other health authorities and is expected to be part of a study group on how to treat various blood group disorders and in particular pregnancy!
He told me that I will still go hypo with the meds, but my spike is significantly less and my 'late' reaction is now later! And less effective, but because I am now so hypo aware, that getting over the hypo was worse.
But and he agreed that it was my lifestyle that prevents the hypos, just that the meds had significantly helped in my general health.
Again, he asked me to up my carbs and stay just above ketosis, and try and just be sensible.
Ketosis is a grey area for him and he will look at the long term affects on people in general and in particular cases like mine. He also said that fasting is another area he will look at for me. He was surprised when I told him I was fasting once a week for roughly between 24 & 36 hours depending on sleep. He was certain that 12 hour fasts are good and encouraged me to do them rather than the longer ones, he will look into the longer fasts for blood glucose disorders but where will he look? As you know, our condition is only just being recognised by endocrinologist recently, everything I've found is as outdated as diabetes advice is, it's roughly the same.
Everything is fine, no bloods taken, BP normal and I've lost another 3lb!
It doesn't sound like much but I am steadily losing weight and unless I lose it quickly, it will be a while till I meet my consultants optimum weight, but I'm happy and he's happy and life goes on! Hey ho!
My specialist has spoken personally to my named GP, to make sure that he is following his directions on how and what my treatment entails and my care with diabetic and blood tests!
I am so special!!!
I'm weird!
He wants me to try rye bread??? Only half a slice with my evening meal!
Anyone know any I could try and is it expensive?
Sorry, only just catching up! I am definitely worse around that time. Feel more tired and shaky.Sorry boys you might want to close your ears!!
Ladies do you find your symptoms Are worse during menstruation? I've found I have had to eat a bit more
Today x
They sound lovely, where do you find all these recipes? Do you get the ingredients online or can you buy coconut flour and sugar etc from normal supermarkets?Hi Kaz no he's not but I'm willing to travel for the expertisehope you are feeling better. Maybe try A small apple or half a large apple if walking as a slightly quicker fix?
I just made some lovely pancakes using coconut flower and ricotta with coconut sugar one teaspoon (will see how that goes) a teaspoon of baking powder and half a teaspoon salt. Soooo light fluffy and delicious x
I read a recipe for fat bombs today Which was coconut oil and dedicated coconut with a small amount of sweetener if required and put in fridge to set then mix up some cocoa and coconut oil in a dish and pour over the set coconut bombs and refrigerate again. When done eat and enjoy! The lady suggests putting them in cake cases. X
Haha! I thought the same Derek! They sound yummy thoughFat bombs? Ain't that the stuff I feed to the birds?
I unfortunately have the worst case of white coat syndrome ever! Anything to do with heart rate or blood pressure makes me incredibly anxious. My heart will be racing all day and they'll probably think there's something wrong when there isn't!The 24 hour ecg is really nothing to worry about. You don't really notice the monitor its more the results really.
I googled it and found a recipe for ricotta and milled flax seed and subbed the flour. I didn't have a glucose strip to check my sugar but I think they were a bit high carb but worth doing and checking how you react. Maybe drop the coconut sugar? I got it from
Holland and Barrett online and saved a fortune with their penny sale which they do quite often. Emma x
I've been having omelette muffins for breakfast, so I'm trying to avoid eggs the rest of the day. Oh how I yearn for a simple sandwich and bag of crisps for lunch!Omelettes always nice Kaz too
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