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Recently diagnosed Type 1

bushbri

Active Member
Messages
26
Location
Norfolk
Type of diabetes
Type 1
Treatment type
Insulin
Hello

I am a 50 year old male and was unexpectedly diagnosed type 1 on 1st July. I am healthy and it is thought that the diabetes was brought on by high stress through circumstances over the previous year.

I am now injecting Novorapid daily with Levemir overnight. I have a number of other symptoms including exhaustion, memory loss, forgetting words and dizzy spells. I am being tested for cortisol, cholesterol, anemia, addisons, kidney function and others I can't remember

My question is do others have experience of this, similar symptoms or ideas of what may be happening with me. Any advice would be welcome as this is still a massive learning curve for me as it is for many others here I am sure
 
Welcome @bushbri :)

Yes, Type 1 is a big shock. It does get easier though as you gradually learn how things work for you. If you'd like a book Think Like A Pancreas is a very good one and popular here :)

I'll also tag @daisy1 fir some basic info.

I'm going to tag @CarbsRok as I think she has experience of Addisons.

Do you test your blood sugar when you have the dizziness?
 
Were you getting these symptoms of dizziness etc before diagnosis? Or is it only since you started insulin? Do you test your blood sugar when you feel like that? What does your blood sugar control look like more generally?
 
Hello

I am a 50 year old male and was unexpectedly diagnosed type 1 on 1st July. I am healthy and it is thought that the diabetes was brought on by high stress through circumstances over the previous year.

I am now injecting Novorapid daily with Levemir overnight. I have a number of other symptoms including exhaustion, memory loss, forgetting words and dizzy spells. I am being tested for cortisol, cholesterol, anemia, addisons, kidney function and others I can't remember

My question is do others have experience of this, similar symptoms or ideas of what may be happening with me. Any advice would be welcome as this is still a massive learning curve for me as it is for many others here I am sure
Hi and welcome to the forum,
cortisol and Addison's are one and the same thing if it's lack of cortisol they are testing, I would suspect they are testing for thyroid function as well as anaemia.
Hope you start to feel better soon.
 
@bushbri

Hello and welcome to the forum :) Here is the information, mentioned above, which we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 210,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a free 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Welcome @bushbri :)

Yes, Type 1 is a big shock. It does get easier though as you gradually learn how things work for you. If you'd like a book Think Like A Pancreas is a very good one and popular here :)

I'll also tag @daisy1 fir some basic info.

I'm going to tag @CarbsRok as I think she has experience of Addisons.

Do you test your blood sugar when you have the dizziness?

Thanks for your response and learning lots every day
 
Welcome @bushbri :)

Yes, Type 1 is a big shock. It does get easier though as you gradually learn how things work for you. If you'd like a book Think Like A Pancreas is a very good one and popular here :)

I'll also tag @daisy1 fir some basic info.

I'm going to tag @CarbsRok as I think she has experience of Addisons.

Do you test your blood sugar when you have the dizziness?

Thanks and yes have been monitoring levels albeit loosely. There does not seem to be a distinct pattern. Today I have had a more balanced day with low insulin intake as limited the carb intake. Had 4 units at breakfast, 1 at lunch and ate nothing since 2pm and levels are at 5.1 and I feel better.
 
That's good news that you're feeling better. Perhaps your blood sugar is swinging up then down and this is contributing? Testing would show you that. If you're going high after meals (spiking) you may want to,consider having your mealtime injection more in advance so the insulin can start working in time. Many Type 1s need to bolus in advance of meals rather than right before eating.

If you lost weight on diagnosis, bear in mind that that can be a strain on your body too and it'll need time to get back to normal. It took me a while to feel myself and to get into a routine and learn what I was doing.
 
I am now through week 2 of a low carb routine and feel much better with greatly reduced symptoms. Sugars are better and I feel so much better. Exhaustion almost gone and certainly not daily anymore and memory loss and dizziness have not been apparent. I am also reduced on my insulin intake every day now and much happier and feel a bit more in control

Thanks all
 
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