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Remission and reviews

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I've been low carb and in remission for a while.
This morning my nurse suggested marking my diabetes as reversed, stopping all future diabetic reviews.
I asked her to keep me on reviews and eye checks, etc. as I know my numbers went up a little during lockdown when I was only was increasing my carbs a bit. That indicates that if I resumed my old eating pattern I could be back into full diabetes all too soon. I did managed to persuade her this time, but I'm sure it will come up again as they are overstretched.
Has anyone been marked as reversed and had reviews stopped without consent?
 
TriciaWs said:
I've been low carb and in remission for a while.
This morning my nurse suggested marking my diabetes as reversed, stopping all future diabetic reviews.
I asked her to keep me on reviews and eye checks, etc. as I know my numbers went up a little during lockdown when I was only was increasing my carbs a bit. That indicates that if I resumed my old eating pattern I could be back into full diabetes all too soon. I did managed to persuade her this time, but I'm sure it will come up again as they are overstretched.
Has anyone been marked as reversed and had reviews stopped without consent?
Click to expand...
Oh now that is a bit frightening!
Surely they can't take someone off just because they have some control for a while?
 
This has come up quite a bit on the forum.
General practices seem too operate differently.
I believe a recent directive from retinal screening said that "in remission" coding was to be used not "resolved" which had been a previous practice.
This subtle difference meant that yearly (bi-yearly) eye scans would still take place.

I personally was offered to have my diagnosis removed by an Endo so that's option they use.
It all seems very hazy.
 
Due to a number of patients in remission not being recalled for eye screening when they should have been, PHE made this recommendation in 2016:-
"GPs should therefore review all patients with a ‘Diabetes resolved’ Read code and amend to ‘Diabetes in remission’ as appropriate. Local diabetic eye screening programmes should review their registers to ensure that patients who should be recalled for screening are not marked as ‘no longer diabetic’ in their screening programme software systems."
https://phescreening.blog.gov.uk/20...dont-slip-through-diabetic-eye-screening-net/​

However, an NHS information leaflet for professionals says:- "
‘Diabetes resolved’ patients: Once there is or has been a definite diagnosis of diabetes, excluding gestational diabetes, patients should be screened for diabetic retinopathy annually for life. Patients with a read code of ‘Diabetes resolved’ should therefore continue to be offered screening."
https://www.hct.nhs.uk/media/1227/d...mation-sheet-for-healthcare-professionals.pdf
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The interim statement on remission from Diabetes UK includes the following:-
"When someone has achieved remission it will be beneficial to recognise this and the contribution made by the person to improving their health. However, it is always important to stress that Type 2 diabetes is largely a cardiovascular condition and that little is known about how remission affects risk of the macro and microvascular complications in the long-term. Therefore, all should still continue to have annual checks including referral for retinal screening and monitoring of complications, and if they have existing complications, they should be encouraged and supported to continue in current care pathways (eg, with the foot protection team). In addition, remission will need to be actively maintained. The person’s need for diabetes education and continued weight maintenance should be reviewed regularly and they should be referred as appropriate if it is assessed that they could benefit, in order to maintain their diabetes in remission."
https://www.diabetes.org.uk/resources-s3/2017-12/1302_Remission Position Statement_v1_92kb.pdf
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The important thing is that, whatever you are labelled as, you still get your regular checks for complications such as diabetic retinopathy and for cardiovascular disease.
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I’ve got an a1c blood test booked for next Monday. Originally had gestational diabetes in 1997 which never went away, been diet controlled until May 2021 when a1c rose to 128, been on & off medication since then.
Have a libre which says down to 34 (can’t believe it’s right).
Wonder what’s going to happen next week if it is
 
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