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calisto51

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39
Hi
I thought this might be a good place to canvass some opinions. I have been T2 for eight years its seems to run in my mums side of the family she was T2 and passed away with renial failure amongst other things earlier this year, she lived to 86 so not a bad age. All my cousins are also T2 as I found out at a recent rare family reunion. I seem to have problem over controlling my levels. For years I have been on meformin and the dose has been increased to try and combat the rising H1AC levels I am taking 2x500mg twice a day and also statins. After a test in October 2008 the Doctor decided to add 100mg Januvia once a day. At first my BGs seemed to lower but after a couple of months I contracted a bad chest infection and sore throat. I returned to the GP (not my usual one) and was prescribe antibiotics."He asked if there was anything else". I mentioned that a new drug had been adminstered and was told it should reviewed in three months. He looked at my notes on the screen and informed an internal meeting had been held and it was deemed not necessary. I went away confused. Two months later I was summoned for blood tests. The nurse took the blood and said thats it. I enquired about a follow up with my GP, she informed me that nothing was on the screen so it was not necessary. At this moment I blew my top went home and lodged a formal complaint in writing to the practice manager
I asked for a written reply, which really glossed over the major issues and implied it was up to me to do all the arranging.

I have since been back to the doctor's and they do seem to be a bit more obliging. On my last visit I explained that I keep getting sorethroats and a tight chest (Last time i had a sore throat was 50 years ago). I have mentioned this on several occasions but its not been picked up on. My last test in June saw my H1AC drop by 0.1 the doctor seemed pleased that it had gone from 8.0-7.9 (I wasn't) I also mentioned I keep have what I think are hypo's I took my wife on this visit as a witness and also to describe these hypos because I am out of when they occuur. He said T2 don't get hypos and started reading a book to try and understand. We agreed I should monitor my BGs to see what was happening, I informed him that is difficult when you only provide strips to test once a week. So with a load of strips I started the tests, I waited until I was on holiday so I could control it better. I noticed BG levels first thing are around 10-14 1hour after breakfast the rise to 22-26 1 hour later back to 14 I never seem to drop much below 10.
Now i have been testing on a regular basis I think my BGs are normally high so a low value of say 6 will create the hypo (thats my interpretation). I was referred to the Diabetic clinic to see the dietician, she thought my diet was fine and we had an interesting talk on GI foods and how to acheive a balance.

So here is my problem I am due for another H1AC test next week with this time a follow up with the doctor. (Up until my complaint I was lucky to get two tests a year).
So what are the questions I really should be asking. I seem to have an ongoing raised liver count but thats because of the medication I am told. I think I am just number on their list for which they receive funding for. I thought about changing my doctor but how can I pick a good one. I am concerned about long term with levels I am seeing now what am I going to be like in ten years. I am told the condition is progressive. I know that but what can I do to minimise the risk. I exercise don't smoke rarely have a drink.

Any thoughts would be greatly appreciated (sorry about the long post)
 
Hi Calisto.

A few things.

What you have experienced is not a hypo, it is just the symptoms because your high Bg levels drop and that is when you start to feel ill. It is called a 'False Hypo.' Oh, yes. Next time you see your wonderful GP, tell him that ANYBODY - even a NON-DIABETIC can suffer from a hypo. Medical fact of life. If you are T2 or a non-Diabetic then your body will 'liver dump' and elevate the low Bg levels automatically so getting you back to near normal. The difference with a T2 and the non-Diabetic is that the ND will get back to normal MUCH quicker than a T2.

Diabetes is NOT progressive, it is if YOU don't control your Bg levels !!

What your Dietician tells you is healthy may not be strictly true....successful Diabetics on this forum will attest to that. There are some rather strange ideas which are passed on by some of them ? What several Dieticians told me over the years nearly killed me !

As for questions you should be asking ? Well, start by asking yourself why your Bg levels are sky high ? What effects these levels ? What can I do about it. When you have answered those then you will be getting yourself on the right track to confound your GP and the Dietician.

Read the ' Success Stories' threads here. See what people have done to attain Good/excellent Glycaemic control. It is all down to what YOU do, not the medics.
 
You need to get those Bg numbers DOWN!
double figures is NOT GOOD.
Have you taken a proper look at what you are eating? If medication isn't coping, only diet and exercise will help. All the sugar and starch that you eat, will become glucose in your blood. your choices include, eat smaller portions, eat smaller proportions of starch and sugar, eat low GI foods.( these are the simplest options)
Hana
 
I keep mentioning this website http://www.bloodsugar101.com it is an American website, thie health system is differnt but the inforamtion well researched and well written and they have even added the UK numbers (Americans measure blood sugar differntly to us Brits).

The information I found there gave me hope that diabetes didn't have to be progressive and that I may be able to reverse some of the symptoms I was having as they are the produce of toxic blood sugar levels not diabetes itself. This was real hope afterr the very negative picture given by the NHS. I now have much better control of my blood sugar (although i will confess to occasional lapses) and I can feel the improveent in my health.

I'd advise you stop stressing about the service you are being given at the health centre and inform yourself and lean how to make sense of the readings you get from your meter so that you can "tweek" your diet. I have reduced my HbA1c from 7.8% in March to 6% last month on diet alone. Although I'm now also taking metformin because I want faster results. I have done this by ignoring practically every piece of advice given to me by the NHS.

Decide what you want from the NHS. I decided I wanted to make use of the regular diabetic health checks (eyes, feet etc) and the screening blood tests to monitor my success and I have approached my GP when I have wanted blood tests or a weight check - about every 3 months at the moment. He is pleased with my progress and my targets are simply to have a slightly better result at the next test.
 
Thanks everybody you have given me lots to think about the link to bloodsugar 101 is very informative. I will go away read and alter my approach to my condition. Future postings should be more upbeat and positve. I will keep you all posted of my progress and no doubt continue to seek advice from you all when required. Once again many thanks after many years I think I can just see that light shining from the end of the tunnel
 
Hi Calisto,

There is no diabetes medication, other than injected insulin, which impacts blood sugar levels as much as the starchy foods that are still recommended as part of a diabetics 'healthy balanced diet'.
Bread, pasta, rice, potatoes will turn to glucose in your bloodstream and it's clear your glucose levels are much too high.
If you ditch those foods for a few weeks, there's still a good chance you will see blood sugar levels consistently in single figures.
Take a look around the forum and you'll find many people who have completely turned their health around largely by changing to a more natural diet based on the foods we are biologically best adapted to.

All the best,

fergus
 
Got the results yesterday 3 month blood test result 7.9 not moved in three months. I showed him my results high fasting levels first thing in the morning Bg 12-14 does not seem to recover during the day lowest I seem to go is 10. We then discussed exercise, I am pretty ok on that Nordic walking a green gym and exercising dogs average distance exercise walked during week 3-4 miles weekends 10 miles (love walking). Then we got onto weight explained I am wearing the same size clothes I was 5 years ago when my readings were lower. (Scales on the floor of the office but he never suggested I weigh in). My last weigh in was over a year ago. Discussed diet I lied and explained I had a high carb low fat diet which was great.
I explained my target was to get my A1C down to 6.5. He advised me to lose weight and said we would add another drug to help Glicalazide. Now I am on Metformin 500x2 twice a day Januvia 100mg once per day and Gliclazide 80mg twice daily pus a statin 20mg once a day
Looking at the notes on here Gliclazide promotes weight gain.
Its time to look for a better Doctor and follow the suggestions to reduce the carbs. I have started slowly purchased some electronic scales and starting to note what carbs I actually eat in a day. I hope to get into this over the next two weeks and will report back on progress
 
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