Hairyfairy
Newbie
Hi, I am a wife of a 29 year old t1 diabetic who was diagnosed aged 5 and do not know what to do. His control wasn't the best when I met him but has apparently improved since being married to me and he tells me when he checks his sugars it is barely over 8 and his last session he had good hba1c. I get the feeling his hba1c has dropped quite steeply since me and people tell me this can cause retinopathy but I am unsure.
My husband was told in 2013 he had prolific retinopathy in both eyes and would need 'gentle' laser so in Spring 2014 he had it done. He is very work conscious and cancelled appointments for his post laser check up (much to my dismay) and got thrown off the eye screening consultant meetings by our NHS authority. Then when trying to rebook he again rejigged his appointment and they threw him off the program for not turning up even though he rebooked it. Our service is known for this apparently and it drives me to complete worry.
Now for the worst part. He went for a very late normal screening in April so he could find out how the laser went (after me begging him to get back on after almost a year) expecting maybe a bit of laser or close observation. He has his eyes photographed by the lady and she says there are a lot less new cells and that he might need laser/maybe another treatment (In am guessing avastin) and that he should get an appointment letter soon.
He cancelled his appointment last week and got a new one which he is fully going to attend in 3 weeks. However we got a letter today chastising him for not attending his cancelled appointment (which we had before on numerous occasions due to the bad service) and that the Consultant had read through his notes and that he needs 2 urgent sessions of laser in both eyes and because of this the appointment has become a laser session. The letter said it was important he attended as it needed to be done soon as it might lead to severe vision loss. This was completely different to what the eye screening lady told him and now I am worried he will go blind at some point because of him cancelling/the clinic being awful.
I am in tears and so angry and so confused. I do not see how 2 eye professionals can say 2 opposite things and feel it is too late to save his sight in the long term. I have come up with 4 possible scenarios:
1) My husband lied about his eye photography to me (i hope not as he always says going blind is his worst fear). Although he likes to keep his diabetes to himself and does like speaking about it.
2) The eye lady spoke out of turn and was untrained and needs to be sacked
3) The awful eye department have got their wires crossed and his eyes might be better than hoped and he has someone else's letter.
4) Even though his eyes are much better he still needs urgent laser to make sure and the letter was GP briskness on an awful template of those that often cancel their appointments. The 2 lots of laser sounds so extreme though.
I just wanted to say that his eyesight is very good and he has always been a glasses wearer. He tells me he has never had any black spots or blurry vision and after the last laser (done far away from the centre) his vision both night and perifirfial vision is excellent and unchanged. Does this give hope that we can still save his sight? I read a long time ago that if vision loss is not effected there is every hope of keeping it but now I am not sure.
If you have got this far thanks for reading xx
My husband was told in 2013 he had prolific retinopathy in both eyes and would need 'gentle' laser so in Spring 2014 he had it done. He is very work conscious and cancelled appointments for his post laser check up (much to my dismay) and got thrown off the eye screening consultant meetings by our NHS authority. Then when trying to rebook he again rejigged his appointment and they threw him off the program for not turning up even though he rebooked it. Our service is known for this apparently and it drives me to complete worry.
Now for the worst part. He went for a very late normal screening in April so he could find out how the laser went (after me begging him to get back on after almost a year) expecting maybe a bit of laser or close observation. He has his eyes photographed by the lady and she says there are a lot less new cells and that he might need laser/maybe another treatment (In am guessing avastin) and that he should get an appointment letter soon.
He cancelled his appointment last week and got a new one which he is fully going to attend in 3 weeks. However we got a letter today chastising him for not attending his cancelled appointment (which we had before on numerous occasions due to the bad service) and that the Consultant had read through his notes and that he needs 2 urgent sessions of laser in both eyes and because of this the appointment has become a laser session. The letter said it was important he attended as it needed to be done soon as it might lead to severe vision loss. This was completely different to what the eye screening lady told him and now I am worried he will go blind at some point because of him cancelling/the clinic being awful.
I am in tears and so angry and so confused. I do not see how 2 eye professionals can say 2 opposite things and feel it is too late to save his sight in the long term. I have come up with 4 possible scenarios:
1) My husband lied about his eye photography to me (i hope not as he always says going blind is his worst fear). Although he likes to keep his diabetes to himself and does like speaking about it.
2) The eye lady spoke out of turn and was untrained and needs to be sacked
3) The awful eye department have got their wires crossed and his eyes might be better than hoped and he has someone else's letter.
4) Even though his eyes are much better he still needs urgent laser to make sure and the letter was GP briskness on an awful template of those that often cancel their appointments. The 2 lots of laser sounds so extreme though.
I just wanted to say that his eyesight is very good and he has always been a glasses wearer. He tells me he has never had any black spots or blurry vision and after the last laser (done far away from the centre) his vision both night and perifirfial vision is excellent and unchanged. Does this give hope that we can still save his sight? I read a long time ago that if vision loss is not effected there is every hope of keeping it but now I am not sure.
If you have got this far thanks for reading xx
