afternoon all. Got the doc at 4.30 and need some advise it's now been 12 weeks suffering with stomach probs, 2-3 hours kip a night, feet and legs killing me and can hardly walk and now crippling chest pains. I'm pretty sure its down to the lantus but according to dsn thats impossible. How can I explain this to the doc without getting angry I'm at the end of my tether and really can't cope with this anymore.
seeing the doc again
- Thread starter ham79
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I would say suggest to them that they try you on levimir, and see if this helps? Sure, you will have to sort out your doses etc, adn it may not work, but to be honest, it won't hurt to try! I wouldn't worry about getting angry...sometimes it helps get teh message home. Having a problem with lantus is very unusual...but it is not unheard of! Good luck
Hi
I would also say give Levemir a go.
Just tell Dr that you are having too many hypos during the day with Lantus and would like to try a different basal. Levemir is slower acting whereas Lantus is faster. The only downside to Levemir is that you might find that you need to inject it twice a day instead of once.
If you are getting chest pain for whatever reason..... that should be mentioned to Dr when you see him/her.
I would also say give Levemir a go.
Just tell Dr that you are having too many hypos during the day with Lantus and would like to try a different basal. Levemir is slower acting whereas Lantus is faster. The only downside to Levemir is that you might find that you need to inject it twice a day instead of once.
If you are getting chest pain for whatever reason..... that should be mentioned to Dr when you see him/her.
I'm seeing the DN on Wednesday because I've had the same serious stomach problems and muscle/joint pain. I intend to take my Lantus and hand it over! I've had stomach problems for 5 months, and muscle/joint pain for about 6 weeks. I've tested the theory for the second time by not taking Lantus since last Tuesday (after 4 days without). After Tuesday doses I spent all Wednesday and Thursday doubled-up, but since Saturday, musles and joints have eased considerably - I'm moving without pain. I began to think that the tummy troubles may have been something else, until this morning! Everything seems normal. I think it may take a week or two to settle down.
I'm going to ask (demand?) to be changed to Levemir, and I'm taking my 'minder' with me for back-up :evil: . I'll let you know how I get on.
Regards,
Barbara
I'm going to ask (demand?) to be changed to Levemir, and I'm taking my 'minder' with me for back-up :evil: . I'll let you know how I get on.
Regards,
Barbara
well he reckons it's because my bloods have come down so much since diagnosis(17hsb to 9.2) he's never heard of lantus problems so back on friday for tests. I might have to try the minder thing get the wife and my mum to sort it 
Good luck, I'll be thinking of you
Problems with Lantus are NOT unusual. The side-effects mentioned in this thread are reported by many people. It is also not unusual for doctors to fail to make the connection between symptoms and Lantus, or to ignore patients' concerns;not just about unusual symptoms, but also erratic BG control.
It is crucial for the many that suffer the devastating and debilitating side-effects of Lantus or any other insulin, that choice of insulin treatment remains for all. I've known people to be on Lantus for well over a year before side-effects show themselves, it took me over 4 years to make the connection, but I had side-effects within months of being on it; didn't realise at the time, as my DSN told me it was the best thing since sliced bread.
The reaction I had from docs and DSNs at my hospital clinic before and since coming off Lantus, leads me to believe they're not as ignorant about the subject as they claim.
It has been well known for years that people have problems associated with synthetic insulins.
Have you contacted the IDDT? They have lots of info about this subject, and it's the reason the charity was founded 15 years ago.
This link might interest you, - http://www.diabetes.org.uk/Guide-to-dia ... h-insulin/
Jus
Problems with Lantus are NOT unusual. The side-effects mentioned in this thread are reported by many people. It is also not unusual for doctors to fail to make the connection between symptoms and Lantus, or to ignore patients' concerns;not just about unusual symptoms, but also erratic BG control.
It is crucial for the many that suffer the devastating and debilitating side-effects of Lantus or any other insulin, that choice of insulin treatment remains for all. I've known people to be on Lantus for well over a year before side-effects show themselves, it took me over 4 years to make the connection, but I had side-effects within months of being on it; didn't realise at the time, as my DSN told me it was the best thing since sliced bread.
The reaction I had from docs and DSNs at my hospital clinic before and since coming off Lantus, leads me to believe they're not as ignorant about the subject as they claim.
It has been well known for years that people have problems associated with synthetic insulins.
Have you contacted the IDDT? They have lots of info about this subject, and it's the reason the charity was founded 15 years ago.
This link might interest you, - http://www.diabetes.org.uk/Guide-to-dia ... h-insulin/
Jus
cheers for that. knowing these things makes diabetes seem less isolating when all you hear is it's you adjusting to being well :lol: even though I haven't been well for over 3 months
Hello Jus,
Just thought I'd mention that seeing your previous posts is what drove me to suspect Lantus might be at the root of my problems.
I've now had 6 days abstaining from Lantus, and I feel amazing well! I've amost got my old energy and spark back after feeling 93 not 63 for so long. I think the worst was knowing that I couldn't pick up my 18 month granddaughter when she asked for a cuddle and having the strength in my arms and shoulders so that I wouldn't drop her.
We'll have to see what the DSN says and does, but she's gonna get a whole box of Lantus for her fridge - not mine!
Barb
Just thought I'd mention that seeing your previous posts is what drove me to suspect Lantus might be at the root of my problems.
I've now had 6 days abstaining from Lantus, and I feel amazing well! I've amost got my old energy and spark back after feeling 93 not 63 for so long. I think the worst was knowing that I couldn't pick up my 18 month granddaughter when she asked for a cuddle and having the strength in my arms and shoulders so that I wouldn't drop her.
We'll have to see what the DSN says and does, but she's gonna get a whole box of Lantus for her fridge - not mine!
Barb
Barb,
I'm so pleased you feel better, and feel 30 years younger-know exactly how you feel,mine was immediate as well!
I've been really interested in you recent postings, cause I wasn't sure whether the awful stomach and bowel probs I had at the time were due to Lantus. I used to take my dose in the morning, and I could usually guage how I was going to feel on a paricular day, by how my bowel movements were. Sorry that sounds revolting! I'd feel so nauseous on many days, usually when my motions were frequent and loose(sorry again). I had a lot of upper-stomach pain too and was under a gastro-specialist at my local hospital. I was too nervous to go through the camera down the throat procedure, and relied on Omeprazole. I wonder if patients taking their dose at night, sleep through the worst of the side-effects,maybe that's why some people are ok on it.
I stay on this forum for people like you Barbs, it helps me cope with what happened to me, cause the psychological effects and anger are not waining. The more stories like yours that I hear, the more it makes me determined to do more. I really want to find out why certain people have these problems and others don't, but meanwhile the problems associated with Lantus pariticularly, need to be recognised and taken seriously by the medical profession.
My husband's also read your post and sends his best wishes as I do, and very good luck with your DSN -print some stuff off the net if you can to support what you're saying.
Good luck too Ham!
Jus xxxxxx
I
I'm so pleased you feel better, and feel 30 years younger-know exactly how you feel,mine was immediate as well!
I've been really interested in you recent postings, cause I wasn't sure whether the awful stomach and bowel probs I had at the time were due to Lantus. I used to take my dose in the morning, and I could usually guage how I was going to feel on a paricular day, by how my bowel movements were. Sorry that sounds revolting! I'd feel so nauseous on many days, usually when my motions were frequent and loose(sorry again). I had a lot of upper-stomach pain too and was under a gastro-specialist at my local hospital. I was too nervous to go through the camera down the throat procedure, and relied on Omeprazole. I wonder if patients taking their dose at night, sleep through the worst of the side-effects,maybe that's why some people are ok on it.
I stay on this forum for people like you Barbs, it helps me cope with what happened to me, cause the psychological effects and anger are not waining. The more stories like yours that I hear, the more it makes me determined to do more. I really want to find out why certain people have these problems and others don't, but meanwhile the problems associated with Lantus pariticularly, need to be recognised and taken seriously by the medical profession.
My husband's also read your post and sends his best wishes as I do, and very good luck with your DSN
-print some stuff off the net if you can to support what you're saying.Good luck too Ham!
Jus xxxxxx
I
Thanks for that Jus.
I split my Lantus dose between a.m. and p.m. and I have to say that the BGs were pretty good, particularly fasting. I was rushing to the loo within 15 minutes of getting up though, (virtually housebound in the mornings) and I only had night problems once or twice. I am (was) on 10 units am and 8 units pm. I couldn't work out what was happening to me. It wasn't until I had the muscle/joint problems that it really clicked and reading Ham's post has convinced me that I was probably right. I really don't think the DSN can really argue about it too much because I've challenged myself twice now. I'm taking my husband with me because he's much better at telling it like it is than me.
Three to four days without Lantus and I started feeling better - twice! It's amazing how much improved I am after only 6 days sans-Lantus!
I really need a basal though, so hopefully there will be good news by Thursday morning. If my problems are about all analog insulin in general, then I'll have to try something else as I'm on Humalog too.
BTW I've read a lot of the stuff on IDDT previously, and it makes very interesting reading. I think I'll print off some ammunition.
Thanks again, I'll be posting in a day or two.
Barb
P.S. Hope Ham gets sorted too - no-one should have to suffer like that, it's soul-destroying.
B
I split my Lantus dose between a.m. and p.m. and I have to say that the BGs were pretty good, particularly fasting. I was rushing to the loo within 15 minutes of getting up though, (virtually housebound in the mornings) and I only had night problems once or twice. I am (was) on 10 units am and 8 units pm. I couldn't work out what was happening to me. It wasn't until I had the muscle/joint problems that it really clicked and reading Ham's post has convinced me that I was probably right. I really don't think the DSN can really argue about it too much because I've challenged myself twice now. I'm taking my husband with me because he's much better at telling it like it is than me.
Three to four days without Lantus and I started feeling better - twice! It's amazing how much improved I am after only 6 days sans-Lantus!
I really need a basal though, so hopefully there will be good news by Thursday morning. If my problems are about all analog insulin in general, then I'll have to try something else as I'm on Humalog too.
BTW I've read a lot of the stuff on IDDT previously, and it makes very interesting reading. I think I'll print off some ammunition.
Thanks again, I'll be posting in a day or two.
Barb
P.S. Hope Ham gets sorted too - no-one should have to suffer like that, it's soul-destroying.
B
You guys are amazing thank you so much this is the best I've felt in months. Had the camera down the neck not good woke up during the procedure and flipped 4 nurses 2 doctors and a jab later and woke up looking like a ribena berry as I'd burst all the blood vessels down one side of my face and neck(that was for a stomach ulcer). I do my lantus pm and haven't had more than 3 hours a night anyhoo thanks again gold stars to you both
Hi Ham & Jus
I saw the DSN this afternoon and explained my problems to her (and handed over all my Lantus), and she will refer me to the senior DSN at the hospital to see what alternatives are available to me (apart from Levemir). I think that I've made progress! I know the hospital DSN as she was my daughter's mentor when she was doing her staff nurse's training. I think that in itself is a bit of a result.
The DSN was also quite shocked about how I came to be issued with Lantus, bearing in mind that levemir is supposed to be better for the 'more comfortably built'. :lol: When I told her that on my first visit I was given two different pens and asked which one I prefer the feel of - that's the one I got. Not personal or scientific at all.
So ... it's in progress.
Regards,
Barb
I saw the DSN this afternoon and explained my problems to her (and handed over all my Lantus), and she will refer me to the senior DSN at the hospital to see what alternatives are available to me (apart from Levemir). I think that I've made progress! I know the hospital DSN as she was my daughter's mentor when she was doing her staff nurse's training. I think that in itself is a bit of a result.
The DSN was also quite shocked about how I came to be issued with Lantus, bearing in mind that levemir is supposed to be better for the 'more comfortably built'. :lol: When I told her that on my first visit I was given two different pens and asked which one I prefer the feel of - that's the one I got. Not personal or scientific at all.
So ... it's in progress.
Regards,
Barb
well done! Got called back for more blood tests and the nurse looked up all my results and then asked "are you sure your diabetic?" she reckons that my blood tests were high due to the amount of infections I had when admitted because my bllods have come down so rapidly and have no signs of glucose or ketones in urine so now I'm even more up in the air. Jacking in lantus tonight to see what happens
Hi Ham,
I hope it works for you. It's taken a week for me to feel better. I still get the odd twinge, but I can move my arms fairly freely now - such a difference in a week! Marvellous, in fact. I'd forgotten what normal felt like.
It's curious that the nurse asked if you were diabetic though. You've seriously piqued my interest now, please keep posting - I really want to know! (And I thought my husband was the nosiest person in the world.)
Kind regards,
Barb
I hope it works for you. It's taken a week for me to feel better. I still get the odd twinge, but I can move my arms fairly freely now - such a difference in a week! Marvellous, in fact. I'd forgotten what normal felt like.
It's curious that the nurse asked if you were diabetic though. You've seriously piqued my interest now, please keep posting - I really want to know! (And I thought my husband was the nosiest person in the world.)
Kind regards,
Barb
you haven't met my wife.
I hope in a way she's wrong because then it's back to square one with no reason for everything thats gone wrong.
never a dull moment in my world
I hope in a way she's wrong because then it's back to square one with no reason for everything thats gone wrong.
never a dull moment in my world
Well, yes, I thought about that too! I'm fairly new at this insulin thing, and I suppose, like everyone, I tend to think about how something affects me. I really do hope that you find out what's going on soon.
And, sorry, but I have to disagree - he is the the nosiest person in the world. He's an old codger and has had a lot more practice :lol: !
Barb
And, sorry, but I have to disagree - he is the the nosiest person in the world. He's an old codger and has had a lot more practice :lol: !
Barb
Are you just kicking the lantus in without replacement ??? My dad was taken off it after 10 years 6 weeks ago after a diabetic coma.. they've not replaced it apart from they have put him back on Sitagliptin. He was suffering hypos frequently but is now going hyper (26BG at mo) which when he has other underlying conditions is very worrying (heart, brain, liver and kidney all impaired) Our doctors/diabetic nurse are useless....the only person trying to get an answer is the community matron. He was the one who found out that one of his pills is for CArdio Myopathy which nobody has ever told us he has .........NHS !!!!!!!!!!!!!!! Fantastic !!!!!!!!!!!
yep keeping up with novo and watching what I eat. I've had enough of not being able to do anything and taking lots of pills which take time to work just so's I can have a bit of time off from being in so much pain my kids are scared to come near me. posted reply about your dad get him seen asap my bloods were that high when I ended up collapsing
defo diabeti.c amytrippy stuff doubled, temazapan to help sleep and lots of pain killers oh the joy
