Sightloss and hopeless

Helen40 said:

Hi all, been a few years since e I last posted my story about pdr, I'm pretty much lost all sight in my left eye and right eye has worsened due to vitreous hemorrhages. I've just had 6 vr in both eyes within 5 weeks. No working during that time, I'm a social worker fir famies so now I can't do my job.
Was told last week I needed intensive prp as the new vessels are reaching my iris, thete was a good clear view though so they hoped to burn a lot of them out. Fast forward to yesterday, I had a junior doctor who knew nothing of my history, she said the view was so unclear she would be guessing at where to direct the laser, never had such a painful experience ce, she kept saying sorry that she was hitting a nerve in my eye?? Another doctor walked in mid laser a d told her to finish up as he had an emergency patient, 2 minutes after she said there was nothing more she could do laser wise. I'd been in the chair 10 minutes for a bilateral prp and felt like my skull was going to burst from the pain.

She said I would need victrectomy, last week I was told I was nowhere near that stage, I asked what options were there to save my sight (I've been told my underlying vision is good) she said "I don't know if it can"

I'm totally devastated and traumatised, I left shaking and sobbing, in 4 years I've never been told this. I can't help feeling what is the point of me now?

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Helen40 said:

Hi all, been a few years since e I last posted my story about pdr, I'm pretty much lost all sight in my left eye and right eye has worsened due to vitreous hemorrhages. I've just had 6 vr in both eyes within 5 weeks. No working during that time, I'm a social worker fir famies so now I can't do my job.
Was told last week I needed intensive prp as the new vessels are reaching my iris, thete was a good clear view though so they hoped to burn a lot of them out. Fast forward to yesterday, I had a junior doctor who knew nothing of my history, she said the view was so unclear she would be guessing at where to direct the laser, never had such a painful experience ce, she kept saying sorry that she was hitting a nerve in my eye?? Another doctor walked in mid laser a d told her to finish up as he had an emergency patient, 2 minutes after she said there was nothing more she could do laser wise. I'd been in the chair 10 minutes for a bilateral prp and felt like my skull was going to burst from the pain.

She said I would need victrectomy, last week I was told I was nowhere near that stage, I asked what options were there to save my sight (I've been told my underlying vision is good) she said "I don't know if it can"

I'm totally devastated and traumatised, I left shaking and sobbing, in 4 years I've never been told this. I can't help feeling what is the point of me now?

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Helen40 said:

I managed to get an appointment today with the new specialist hospital I'm transferring to, wow what a difference a good consultant and nursing staff makes! I have been shown such professional compassion and understanding today

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Helen40 said:

Gutted to have another huge bleed in my left eye yesterday, I'd just cleared enough yo see my own face clearly and now th8s. Everytime it happens I should be used to it but it's like a fresh new devastation all over again. I was supposed to return to work tomorrow, I won't even be able to see what bus I need let alone drive, its just so cruel, I'm doing everything I should be

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Helen40 said:

I think I got my luck, new hospital and new consultant straightaway said I need a course of eyelea in my left eye due to oedema good news is my right eye needs no treatment and has stabilised, abnormal vessels are shrinking and there's no new ones she can see, my 1st jab is next Tuesday and this will help with I.proving/preserving my poor vision in the left eye. I can even sleep lying down again after 3 long months! Both my retinas are good underneath all the blood and gunk!

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