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Stage 1 retinopathy into remission?

Vectian

Well-Known Member
Has anyone had stage 1 retinopathy picked up on an eye exam, from damage that happened before diagnosis, that later went away after maintaining tight control of blood sugar?
 
I've been type 1 for fifty years and was told about ten years ago that I had the start of retinopathy but it has never been mentioned again so I wouldn't worry too much about it .
 
Has anyone had stage 1 retinopathy picked up on an eye exam, from damage that happened before diagnosis, that later went away after maintaining tight control of blood sugar?
I comletely agree with @jaywak . I had laser treatment between 1979 and 1983. Maintaining tight control meant that no further treatment has happened since. I am retired and have very good visual acuity.
 
I've been type 1 for fifty years and was told about ten years ago that I had the start of retinopathy but it has never been mentioned again so I wouldn't worry too much about it .
Never mentioned again meaning that they said you had no retinopathy in subsequent eye tests?
 
If by stage 1 retinopathy you mean background retinopathy, then yes I was diagnosed type 2 eight years ago and have had retinal scans every year. Of all the results I have had two occasions when I had background retinopathy which had disappeared the following year.
 
I think technically mine was classed as Stage 2 as I had appointments every 3 months. If you’re on yearly appointments I wouldn’t worry too much as there’s not enough major changes that they’re worried either.

Having good control does help though but don’t be disheartened if it takes longer than you think, I had ‘stage 2’ (Maculopathy from HbA1c reduction too quickly) from June 2022 until August 2024 and through all of that time my HbA1c hovered around 48. Never needed treatment either
 
I think technically mine was classed as Stage 2 as I had appointments every 3 months. If you’re on yearly appointments I wouldn’t worry too much as there’s not enough major changes that they’re worried either.

Having good control does help though but don’t be disheartened if it takes longer than you think, I had ‘stage 2’ (Maculopathy from HbA1c reduction too quickly) from June 2022 until August 2024 and through all of that time my HbA1c hovered around 48. Never needed treatment either
I've just been diagnosed with Stage 2 Maculopathy, to be tested every 3 months. I was very depressed, as my Type 2 diabetes control is improving. I hadn't realised Stage 2 could be from HbA1c improving too quickly. My last eye test was in June 2024. I began taking charge of my A1c that October. It's dropped from 88 to 52 (March) and 57 (May) on my most recent tests. This doesn't seem too quick, although from my CGM, it has improved since May. Still, your comment gives me hope. Thx.
 
I've just been diagnosed with Stage 2 Maculopathy, to be tested every 3 months. I was very depressed, as my Type 2 diabetes control is improving. I hadn't realised Stage 2 could be from HbA1c improving too quickly. My last eye test was in June 2024. I began taking charge of my A1c that October. It's dropped from 88 to 52 (March) and 57 (May) on my most recent tests. This doesn't seem too quick, although from my CGM, it has improved since May. Still, your comment gives me hope. Thx.
A lot of people don’t realise an improvement can upset your eyes (myself included). I’m not sure what the time scale is for improvement but I do know an improvement of 3% (30 points) can increase risk of retinopathy. Mine Improved from December 2021 (78) down to 39 in April. I didn’t have my eye test until the June of that year though so not sure how long the issues were present.
 
I think technically mine was classed as Stage 2 as I had appointments every 3 months. If you’re on yearly appointments I wouldn’t worry too much as there’s not enough major changes that they’re worried either.

Having good control does help though but don’t be disheartened if it takes longer than you think, I had ‘stage 2’ (Maculopathy from HbA1c reduction too quickly) from June 2022 until August 2024 and through all of that time my HbA1c hovered around 48. Never needed treatment either
It's weird because I had a test a year ago (my first, as I was only diagnosed 2 months before that) which was clear, then this recent one said stage 1 retinopathy. But my blood sugar has been in non diabetic range all that time, a1c of 36 and 100% in range. So I don't understand how it could get worse, unless it was still residual from before diagnosis that takes time to show itself perhaps.
 
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