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<blockquote data-quote="NorthCountryMaid" data-source="post: 187512" data-attributes="member: 30571"><p><strong>Re: statins</strong></p><p></p><p></p><p>About the Simvastatin - snap. Serious muscle pains - shoulder down to fingers. Took myself off them, because the pain was getting worse. I was supposed to report this to my GP, but the first fortnight I was more or less OK, Christmas Eve not so good, Christmas Day manageable but it got really bad on Boxing Day! That meant another 3/4 days before I could see my GP, so I checked the manufacturer's website (bless the internet!), read their advice and took myself off it immediately.</p><p></p><p>GP wished I had come in for a test first, but realised that days (weekend plus 2 bank holidays) not auspicious. </p><p></p><p>Eventually she put me on to Pravastatin (snap again), which I agreed to give a go. I still find that I'm getting muscle pains in my shoulder, but have to admit that typing posture probably not helping it. </p><p></p><p>I have just started taking CoQ10 (120 mg p.d.) and have discovered that it seems to help the Brain Fog (courtesy of the ME) a bit, but not the symptoms of the statins. </p><p></p><p>What I have been noticing for about the same length of time that I've taking the Pravastatin is an odd sensation in my feet and ankles. It's really hard to describe (and I've been trying). The surface of the feet and normally, or sometimes excessively responsive - sometimes I have to take a lot of painkiller before I can cope with the bed clothes touching my feet.</p><p></p><p>Inside they feel, well "all wrong" is sometimes the best I can do. I can sense the muscles underneath the feet, but they sometimes feel numb. I'm also finding that they spasm very easily, though that's probably the MS. I don't know whether this is a side effect of the statins (which by the sound it is possible), a standard symptom of MS (losing sensation in your legs goes with the territory) or a warning from the diabetes (I know feet are a standard target). </p><p></p><p>I saw the podiatrist only a few weeks ago, and she was very happy with the condition of my feet, but those tests work on responsiveness of the skin. </p><p></p><p>I saw the MS nurse a few weeks ago, and she said put up the Baclofen dose. That can calm the spasming a bit, but the "aliens have taken over my feet, and now I'm a 2nd class citizen" sensations have got worse. </p><p></p><p>Biggest problem with multiple conditions is that no one knows how they all interact, and anything I report to one medic can be passed off as a problem from something else and for someone else. Or as "definitely this - no need to consider any other possibilities." </p><p></p><p>Any how I shall stick to the statins for a while, and see what happens. I probably am being helped by the CoQ10 and shall keep that going for a while, even if I dump the statins. </p><p></p><p>My GP says that the cholesterol readings should convince me of the need for statins, but whatever the numbers say, it's my shoulder that's aching, and my feet that are trying to declare UDI.</p></blockquote><p></p>
[QUOTE="NorthCountryMaid, post: 187512, member: 30571"] [b]Re: statins[/b] About the Simvastatin - snap. Serious muscle pains - shoulder down to fingers. Took myself off them, because the pain was getting worse. I was supposed to report this to my GP, but the first fortnight I was more or less OK, Christmas Eve not so good, Christmas Day manageable but it got really bad on Boxing Day! That meant another 3/4 days before I could see my GP, so I checked the manufacturer's website (bless the internet!), read their advice and took myself off it immediately. GP wished I had come in for a test first, but realised that days (weekend plus 2 bank holidays) not auspicious. Eventually she put me on to Pravastatin (snap again), which I agreed to give a go. I still find that I'm getting muscle pains in my shoulder, but have to admit that typing posture probably not helping it. I have just started taking CoQ10 (120 mg p.d.) and have discovered that it seems to help the Brain Fog (courtesy of the ME) a bit, but not the symptoms of the statins. What I have been noticing for about the same length of time that I've taking the Pravastatin is an odd sensation in my feet and ankles. It's really hard to describe (and I've been trying). The surface of the feet and normally, or sometimes excessively responsive - sometimes I have to take a lot of painkiller before I can cope with the bed clothes touching my feet. Inside they feel, well "all wrong" is sometimes the best I can do. I can sense the muscles underneath the feet, but they sometimes feel numb. I'm also finding that they spasm very easily, though that's probably the MS. I don't know whether this is a side effect of the statins (which by the sound it is possible), a standard symptom of MS (losing sensation in your legs goes with the territory) or a warning from the diabetes (I know feet are a standard target). I saw the podiatrist only a few weeks ago, and she was very happy with the condition of my feet, but those tests work on responsiveness of the skin. I saw the MS nurse a few weeks ago, and she said put up the Baclofen dose. That can calm the spasming a bit, but the "aliens have taken over my feet, and now I'm a 2nd class citizen" sensations have got worse. Biggest problem with multiple conditions is that no one knows how they all interact, and anything I report to one medic can be passed off as a problem from something else and for someone else. Or as "definitely this - no need to consider any other possibilities." Any how I shall stick to the statins for a while, and see what happens. I probably am being helped by the CoQ10 and shall keep that going for a while, even if I dump the statins. My GP says that the cholesterol readings should convince me of the need for statins, but whatever the numbers say, it's my shoulder that's aching, and my feet that are trying to declare UDI. [/QUOTE]
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