Hi,
I have just read your post and your symptoms sound a lot like mine were over 12 months ago. i was diagnosed with type 1 in December 2008. Unfortunately I was on holiday in India at the time and ended up in a coma for four days. I got the shock of my life when I woke up in intensive care!
Anyway, shortly after returning to the UK I began to experience terrible pains mainly in my legs but also my arms. The pain was so bad that I couldn't do anything. Resting didn't help, exercise was impossible (before diagnosis I worked with racehorses and led an active lifestyle.) The doctors prescribed me tramadol, paracetemol, codeine, amytriptyline etc, all to no avail. After many phonecalls and visits to the diabetes centre I finally got to see my consultant. He said these were typical symptoms of neuropathy but that it was uncommon in newly diagnosed diabetics. He made an appointment for 3weeks time, at which point I said I couldnt go on like that for another 3weeks. I ended up being admitted to hospital and had numeroud tests. I also lost lots of weight, had no appetite and felt really ill whenever i did eat. I was put on pregablin but came off it as for some strange reason it made my blood pressure drop. I couldnt even sit up in bed without going faeint. I couldn't stand up straight and collapsed in the shower once. The nurses put this down to me having a panic attack! I have never had a panic attack and am certainly not afraid of the shower! One nurse also said I was having a tantrum! I'm 27years old now and do not have childish temper tantrums! I wish they could experience what I was going through just for a day, so that they might be more understanding.
I eventually came out of hospital in March 2009, I was still very weak, my appetite was poor, the pain still persisted but I was on the mend. I am now working part time, my appetite has returned, I no longer have a racing heart rate and low blood pressure and the weight has returned. (I'd actually like to lose a bit now!)
It has been a long, slow process and it was very frustrating as nobody could give me any answers or tell me if or when things would improve. I still have morphine sulphate tablets and oromorph on prescription but rarely need them.
I guess the point of this post is to say don't give up, things will improve, but it might be a lengthy process. I would advise you to keep on at your doctor, consultant, diabetes team etc. It seems to be that unless you keep hammering on doors they wont be opened. If you go away quietly then you seem to get forgotten.
I hope you see some improvement and get some answers very soon.
Tara.