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Surgery blocked my monthly prescription!

Abbot sends the sensors ....6 at a time.....to the user direct by a medical supplies courier.
No GP or pharmacy involvement.
I have had occasion to contact Abbot and they are very helpful. (No doubt their giant NHS contract helps).
They do need to improve their online support as it hasn't caught up with them supplying Libre 3 sensors.
 
Jaylee said:
This depends on the era diagnosed? I started on glass syringes in 1976. By the time I was at college I was using the generic plastic syringes.
I was spotted injecting. Got a “rep” as a “junky.” It was my leg, not a vein...?
Click to expand...
To clarify, here is a little anecdote here:
I had a job at a well-known 5-star hotel in London. One day I was at the top of the building, and suddenly I notice a hypo coming. I thought, got just enough time to get on the lift down to the basement where the canteen staff was located. By the time I got there, I have to seat on the floor and scoff 4 sandwiches as fast as I could to bring glucose levels up. I was shaking, slurring words and with blurred vision.
Management came by, and after staring at me, they walked by.
I have felt humiliated many times, but I was expecting more understanding from people I thought had more education.
Months later I colleague got pregnant..., I will not go into details, but If society is not properly educated about medical conditions, then what else is there?
This event and others have pushed me to educate myself and feel sorry for the ignorant people that walk the streets of our society.
And yes, right there on the floor, I felt like a junkie. Not only because of the needle marks on my fingers and arms or the other symptoms, but because I was ignored by the people who were supposed to care for me, my colleagues and management.
And let's not mention human resources, totally none existent!
 
Last edited:
Jaylee said:
This depends on the era diagnosed? I started on glass syringes in 1976. By the time I was at college I was using the generic plastic syringes.
I was spotted injecting. Got a “rep” as a “junky.” It was my leg, not a vein...?
Click to expand...
There was another job where they were so concerned about my safety that contract was terminated soon after. At the time I could have handled it differently but I was experimenting with insulin in order to get better readings. I close the door in my working area after staking a note on the door warning people that I was injecting. I was trying to spare them the embarrassment I was injecting on my thigh at the time. They told me that it could be a danger to myself working alone. I could collapse when no one would be around.
Funny to think now that the medical unit was always spotless and empty. Whenever there was an incident, they would place the individual on the ground in a safe position until the paramedics arrived. They had a supply of glucagon that I had never seen being used and luckily they never had to test it on me.
 
Jaylee said:
Hi,

Just spotted this as I was posting.

I’m sorry to read you may not be in a fair financial position right now.
I’ve seen the “tide” turn, myself…

I also agree that your diabetes is yours & visa versa. (Mine is mine.)

I seem to get consistent decent BGs when gigging. (I front a band.) I spoke to another T1 at one venue at the end of the night. (My Libre got spotted.) She told me her gigs sent her high? Maybe I’m just more comfortable with crowds. (No liver dump from “stage fright.?”)

When I mentioned this to my nurse. She responded, “give up the day job & do music full time..”
I get your sentiment.

Keep talking to us. Best wishes.
Click to expand...
After more than 10 years of being type 1, just discovered that anxiety and stress are huge red flags for me. In the current situation gave up looking for work and focused primarily on healing internally, physically and mentally speaking. Joining a gym was my Pandora's box.
Right now the only exercises I do are: walking, gardening and sleeping as much as body and mind require. I do the things I enjoy and have no one looking over my shoulder. It is a drain on my savings, but I do not want to end like my parents, not just yet!
Getting the glucose numbers right for me is a lottery, every day is different. I take it as they come. As Sigourney Weaver said once: We have to work with what we've got!
This is my body with all its perks and whatnot, I am going to enjoy it for as long I can ride it and I encourage you to do the same with your body. Have fun!.
 
Bazhba1c51_ said:
There was another job where they were so concerned about my safety that contract was terminated soon after. At the time I could have handled it differently but I was experimenting with insulin in order to get better readings. I close the door in my working area after staking a note on the door warning people that I was injecting. I was trying to spare them the embarrassment I was injecting on my thigh at the time. They told me that it could be a danger to myself working alone. I could collapse when no one would be around.
Funny to think now that the medical unit was always spotless and empty. Whenever there was an incident, they would place the individual on the ground in a safe position until the paramedics arrived. They had a supply of glucagon that I had never seen being used and luckily they never had to test it on me.
Click to expand...
I’ve had many jobs. Can’t say I had this issue. Once there was a guy. (First aider) insisted on dressing a wound on a finger from some sharp swarf? (I work in engineering fabrication.) asked me how the finger was? “Not bad, I heal pretty quick for a diabetic.”
That’s when he flapped suggesting I should have said I was diabetic I could faint? I reassured him I was fully hypo aware, he hadn’t noticed me treating the “odd one” whilst we work back to back. The only thing he needs to know should by some freak chance. Is if the roof caved in & trapped me? Tell the emergency services there is a T1 under the rubble… Been taking care of myself since I was a kid. No “care package” when I went to school..

I was called in by management who didn’t know how to address “this” with another job.. (retail.)
An employee had reported I carry a “spy pen..”
I guess you can expect what happened next when I understood the situation..The room shank for HR when I produced the “evidence” from Novonordisk in my pocket….
Accused of being “James Bond” is one thing. But, a bit far fetched in the real world.. somebody anonymous was paranoid..?
 
Jaylee said:
I’ve had many jobs. Can’t say I had this issue. Once there was a guy. (First aider) insisted on dressing a wound on a finger from some sharp swarf? (I work in engineering fabrication.) asked me how the finger was? “Not bad, I heal pretty quick for a diabetic.”
That’s when he flapped suggesting I should have said I was diabetic I could faint? I reassured him I was fully hypo aware, he hadn’t noticed me treating the “odd one” whilst we work back to back. The only thing he needs to know should by some freak chance. Is if the roof caved in & trapped me? Tell the emergency services there is a T1 under the rubble… Been taking care of myself since I was a kid. No “care package” when I went to school..

I was called in by management who didn’t know how to address “this” with another job.. (retail.)
An employee had reported I carry a “spy pen..”
I guess you can expect what happened next when I understood the situation..The room shank for HR when I produced the “evidence” from Novonordisk in my pocket….
Accused of being “James Bond” is one thing. But, a bit far fetched in the real world.. somebody anonymous was paranoid..?
Click to expand...
A remarkable story, I say. I have been backstabbed many times in the past for many reasons in the workplace, but I felt most vulnerable as a diabetic. I tend to compare my lack of energy following a hypo to driving a car running on low fuel. Life exits my body slowly and as it enters critical levels, there is a feeling of euphoria in my mind that pushes me to cross the red line, that is when I am on the brink of unconsciousness. In a split of a second I keep thinking, would I dare to let myself go or rather stay on the safe side? It is very tempting for me to toy with that feeling.
By some people, this can be interpreted as laziness.
And then, there are family and friends. Long ago gave up trying to explain how I feel when I am in the middle of a hypo. I have my tricks to survive an episode. I used to panic waking up in the middle of the night, rushing downstairs to raid the fridge, nowadays I crawl as low as possible so glucose drops more slowly. Needless to say that in recent times I have increased Lantus units and reduced Novorapid. This way I have more control over my hypos. I hope it makes sense to a diabetic, to my partner is a bit much to comprehend. No one is perfect.
And last words. From I come from there is an old saying: God punishes you without a stick or stone, meaning some people will get their comeuppance in this world or the next. At least in my mind makes me feel somehow better. Take care of yourself
 
my Libras are also on my prescription list which I order every two weeks but they for some reason have not delivered twice from the chemist I have had to go collect not sure why though?
 
Bazhba1c51_ said:
A remarkable story, I say. I have been backstabbed many times in the past for many reasons in the workplace, but I felt most vulnerable as a diabetic. I tend to compare my lack of energy following a hypo to driving a car running on low fuel. Life exits my body slowly and as it enters critical levels, there is a feeling of euphoria in my mind that pushes me to cross the red line, that is when I am on the brink of unconsciousness. In a split of a second I keep thinking, would I dare to let myself go or rather stay on the safe side? It is very tempting for me to toy with that feeling.
By some people, this can be interpreted as laziness.
And then, there are family and friends. Long ago gave up trying to explain how I feel when I am in the middle of a hypo. I have my tricks to survive an episode. I used to panic waking up in the middle of the night, rushing downstairs to raid the fridge, nowadays I crawl as low as possible so glucose drops more slowly. Needless to say that in recent times I have increased Lantus units and reduced Novorapid. This way I have more control over my hypos. I hope it makes sense to a diabetic, to my partner is a bit much to comprehend. No one is perfect.
And last words. From I come from there is an old saying: God punishes you without a stick or stone, meaning some people will get their comeuppance in this world or the next. At least in my mind makes me feel somehow better. Take care of yourself
Click to expand...
I use Lantus,

I find the lows from it compared to Novorapid “on board” a slow creeper?
I used to explain hypos were a little like being “stoned?” Some of the cognitive processes can feel closer to some form of dementia. (In my view.) “measure twice, cut once.” With some of my tasks. Mental arithmetic is normally the first to exit the “building.”
Getting the basal dosage correct is a solid foundation for what one boluses for food wise.
 
Jaylee said:
I use Lantus,

I find the lows from it compared to Novorapid “on board” a slow creeper?
I used to explain hypos were a little like being “stoned?” Some of the cognitive processes can feel closer to some form of dementia. (In my view.) “measure twice, cut once.” With some of my tasks. Mental arithmetic is normally the first to exit the “building.”
Getting the basal dosage correct is a solid foundation for what one boluses for food wise.
Click to expand...
Totally agree!
 
PatsyB said:
my Libras are also on my prescription list which I order every two weeks but they for some reason have not delivered twice from the chemist I have had to go collect not sure why though?
Click to expand...
The old lady next door seems to be quite happy with the prescriptions delivered. They tried to sell it to me, but I am not 100% convinced. I would like to go back to pen and paper sometimes. There is too much red tape and a lot of middlemen involved. Something goes wrong and I have to deal with them one by one. They are so full of excuses: Covid, the stock has not arrived, food crisis, cost of living, the list goes on...!
I do not understand why I have to go time and time again every month to the chemist to be told that it is not ready and may have to come back again to see if the full prescription is available.
Every month same medication, the same amount yet they never seem to get it right. They blame each other and there is no communication between chemist and surgery. I phone the GP and can not pass without the reception nurse's approval. For heaven's sake, Covid is over people. Get back on your feet and do the work that you are paid to do correctly.
Over £100,000.00 a year plus perks and yet not happy? There are a lot of people out there looking for a job.
Apologies for venting my frustration, there is too much stiff upper lip among the ruling class!
 
Bazhba1c51_ said:
To clarify, here is a little anecdote here:
I had a job at a well-known 5-star hotel in London. One day I was at the top of the building, and suddenly I notice a hypo coming. I thought, got just enough time to get on the lift down to the basement where the canteen staff was located. By the time I got there, I have to seat on the floor and scoff 4 sandwiches as fast as I could to bring glucose levels up. I was shaking, slurring words and with blurred vision.
Management came by, and after staring at me, they walked by.
I have felt humiliated many times, but I was expecting more understanding from people I thought had more education.
Months later I colleague got pregnant..., I will not go into details, but If society is not properly educated about medical conditions, then what else is there?
This event and others have pushed me to educate myself and feel sorry for the ignorant people that walk the streets of our society.
And yes, right there on the floor, I felt like a junkie. Not only because of the needle marks on my fingers and arms or the other symptoms, but because I was ignored by the people who were supposed to care for me, my colleagues and management.
And let's not mention human resources, totally none existent!
Click to expand...
well, years passed me by but I have found plenty of red necks In my path. You can be an engineer and yet be as thick as muck. I should have made better choices when it comes to choosing a workplace. From 2013 until 2020? Some mothers do have them!
Education never ends, even the day we are leaving this world are learning something.
 
Great News. I have phoned SWEET and spoken to an advisor. She will contact my Surgery. Hopefully, GP and the team will react positively.
Thank you to all that offer me advice on this matter. If I do not get my medication restored, I will walk into A&E as I was advised in the past.
Basil
 
honeybunny1 said:
Abbot sends the sensors ....6 at a time.....to the user direct by a medical supplies courier.
No GP or pharmacy involvement.
I have had occasion to contact Abbot and they are very helpful. (No doubt their giant NHS contract helps).
They do need to improve their online support as it hasn't caught up with them supplying Libre 3 sensors.
Click to expand...
At least Abbott does what it says on the tin, good for them!
I consider Abbott's prices reasonable when considering buying a year's supply from them. I would consider this option if I have to go abroad again in the future. I was initially reluctant to get them, but now, I can not live without them. The software provided is great in my opinion. Hope they keep improving technology. Give them some credit, it is a small price to pay compared with what I have to put up with the like of some pharmacists and Surgery's.
In America, they already talking: forget precious metals and cryptos, the coming generations are our gold mine. More and more people are getting diabetes. The price of insulin goes up every year. They are not interested in finding a cure for diabetes. It is their meal ticket!
They have researched a new type of insulin, and doctors tell the parents: "A few doses a day and your child can eat everything He wants".
I look forward to seeing what companies such as Abbott will create in the near future to improve my chances of survival.
 
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