T1.5 LADA, no control?

Messages
2
I have around two years ago been re diagnosed from T2 to T1.5 LADA.
I wondered if anyone else out there with the same diagnoses has the same issues. I can be relatively stable for a few weeks, then out of the blue i’ll have around a week of highs then a few days of hypos!! Now real reason for this that I can fathom. Any ideas? Also been told that i may have other auto immune issues and wondered if i’m getting joint flare ups is it possible that i’m getting flare ups that affect my sugar levels?

Thanks
 

searley

Well-Known Member
Retired Moderator
Messages
1,976
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
Diabetes, not having Jaffa Cake
The situation you T2 to T1 is quite common, it happened to me

The thing with late onset T1 is the pancreas can fail much slower

So yes I’ve had times where I stopped insulin and been ok.. I’ve had times where staying low is tough…. And times where I have multiple hypos.. as time has passed things have been more stable

As for other autoimmune stuff yes it’s possible.. I do!

Any pain stress can affect your bg, I get a lot of pain joint/nerve etc which on their own are quite common in non diabetics, but I’m told diabetes can contribute to this
 

agwagw

Well-Known Member
Messages
113
Type of diabetes
LADA
Treatment type
Insulin
Hi, can I ask what treatment regime you are on?
 

IanP67

Newbie
Messages
2
Type of diabetes
LADA
Treatment type
Insulin
Hi I'm the same, Diagnosed with type 2, 4 years ago and put on insulin 3 years ago. Company recently gave us BUPA so I saw a specialist and had a C Peptide blood test then re-diagnosed as type 1.5 which is common for about 12% miss-diagnosed T2s. I'm on 24hr slow release and fast acting before meals. Plus 500mg metformin morning and evening. Using libre2 plus carb counting app and staying below 100g per day. I recommend you buy the book ultra processed people as it's not just the carbs causing the problem and the pioppi diet both excellent informative books.
 

Billy H

Active Member
Messages
33
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Know-all medics who think they know better than me
I was diagnosed with LADA last year after being treated as Type 2 for 5 years. I constantly asked my doctor why treatments were not working and I had to control my diabetes with diet and found exercise (mostly successfully).
When I convinced my GP to do the antibodies blood test which gave a strong positive result it took a further year to get correct treatment because of incompetence and misinformation from my local NHS Trust - Ayrshire and Arran.
But since starting on insulin my life changed. I started with a CMG a few weeks after starting Insulin and that gave me better control - I have been in range for 97% of the last year and I'm hoping to start on an insulin pump in this financial year.
The correct treatment can, and will, change your life in an exciting way. It's weird to say, but I like having diabetes - since diagnosis, I have a stronger understanding of my health and my physical wellbeing.
 

Billy H

Active Member
Messages
33
Type of diabetes
LADA
Treatment type
Insulin
Dislikes
Know-all medics who think they know better than me
The best way to manage Type 1 and LADA is ask your Diabetes Nursing Specialist to refer you to the DANFE course (details can be found on Diabetes UK) to learn more about your diabetes and how it affects you personally.
DAFNE is a life changer in terms of understanding the condition and how to control it rather than it controlling you.