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Test Strip Request - denied

DylansDad

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diabetes
Not a great surprise - but always worth a go :(

I've been in touch with the local PCT looking for the policy for home based testing, the PCT was extremely helpful and made an enquiry to my local practice - the reply is detailed below

Metformin is a drug that never causes hypoglycaemia even in overdose as confirmed from the electronic medicines compendium (http://www.medicines.org.uk) I understand the patient does not take any other medication. Therefore, there is no reason for the patient to be given testing strips on prescription or for him to purchase them himself.

The practice advised the practice pharmacist that you are due a review in December, the practice have advised you have a blood test as soon as possible ready for your review at which they will be able to address your concerns.


I also have a copy of the prescribing guidelines

Home BM measurements

2.1 Who should test their own blood glucose at home?

Self blood glucose monitoring (SBGM) is only useful when a patient can use the results they measure, either to adjust treatment or as feedback of the results of changes made.

For example, SBGM should be available in the following situations:

(a) For people with type 1 diabetes;

(b) For people with type 2 diabetes using insulin;

(c) For people with type 2 diabetes not using insulin who

i. are having symptoms of hypoglycaemia;

ii. are making major lifestyle changes likely to impact upon glycaemic control;

iii. develop impaired awareness of hypoglycaemia;

iv. are at high risk of developing disabling hypoglycaemia and need to ensure safety during activities such as driving;

(d) For women who have diabetes in pregnancy or are trying for pregnancy;

(e) For people with diabetes when they have intercurrent illness such as when admitted into hospital (SBGM may be performed by health care professionals in this situation);

(f) For people in whom there is a concern about a possible diagnosis of T1DM at diagnosis, or in whom it is suspected insulin therapy may be required (e.g. steroid-induced diabetes); Glycaemic control should be measured by other means such as by HbA1c measurement every 3 months (2-6 months).

SBGM should not be routinely available in the following situation:

(a) people with type 2 diabetes who do not take insulin (adjustments of oral hypoglycaemic medication can be done based on HbA1c results).
 
Thank you for posting.

As an engineer I am taught that best practice requires taking regularlar measurements and managing a system according to such measurements.

Only in health is measurement considered to be counter-productive.

A patient who measures his/her response to drugs, diet and exercises, makes adjustments to his/her regime, and goes on to achieve excellent results must be chastised by his/her GP for measuring in the first place.

I totally understand the decision not to fund testing, but I am wholly unhappy with the NHS's building a health advantage case to support the funding decision.

It means of course that the NHS gave very bad advice during the years when they encouraged diabetic to test.
 
i also contacted my pct when i found out i didn't need to test my blood.They replied that they had told gp's to use there own judgement on who found it benifitial to test their blood's.My gp agreed i benifited from testing but also said she can only give me 50.That's if she does'nt get told not to by the other gp's in the practise.
 
Hi to you all, I guess I must be one of the lucky people after doing the X Pert course I was given a meter and strips were put on my repeat prescription, going on holiday next week put my request in for 2 months items as per my script ,no problems 2boxes of strips,the difference can only be for cost reasons to each PCT,Keep pluging away at them and good luck
 
I too have been denied test strips today. I have been to the doctors because I have been feeling dizzy and have really bad headaches and feel unsteady on my feet. I tested my levels because I had been given a testing kit when I visited a drop in centre when first diagonosed. I have not used it as I was told people get to wound up about their levels and so kits are not given out now. My results were before meal 6.7 after meal 11.00. Because I am doing the Xpert course I decided to list my food intake and checked my carb intake, which was OK. If I had not tested how would I have know my levels were too high? I am all for self help and being in control of your diabetes but I feel testing is important. I asked at the chemist if they sold testing strips and was told they were £27.00 for 50. I am a pensioner and can't afford to pay this. I am also doing exercise referral and I feel I am doing all in my power to get my that defeating the diabetes under control myself but feel if I have to be on medication to qualify for strips isn't that defeating the object? I can seemingly cost the NHS more by being on medication but that is OK. Is it not better to be drug free and testing? Or is it all down to money again? What have I worked for ? Does it not seem a bit unfair? I have had another HBAC1 done today so now have to wait for results and see what happens. I am a bit fed up now and feel let down and downhearted.

Hazel :clap: :( :D
 
Hi DD

Seems to me, any T2 has a space for arguing that this reason applies to them... :think:

ii. are making major lifestyle changes likely to impact upon glycaemic control;

Suspect the intention in these guidelines is that this covers 'negative impact' but no reason (other than costs) why it shouldn't also apply to 'positive impact', so if you're a diabetic who is or intends to radically change your diet and become more active and take all necessary steps to improve your BG levels - well then, test strips naturally help you to do this.
 
bluehaze14 said:
I too have been denied test strips today. I have been to the doctors because I have been feeling dizzy and have really bad headaches and feel unsteady on my feet. I tested my levels because I had been given a testing kit when I visited a drop in centre when first diagonosed. I have not used it as I was told people get to wound up about their levels and so kits are not given out now. My results were before meal 6.7 after meal 11.00. Because I am doing the Xpert course I decided to list my food intake and checked my carb intake, which was OK. If I had not tested how would I have know my levels were too high? I am all for self help and being in control of your diabetes but I feel testing is important. I asked at the chemist if they sold testing strips and was told they were £27.00 for 50. I am a pensioner and can't afford to pay this. I am also doing exercise referral and I feel I am doing all in my power to get my that defeating the diabetes under control myself but feel if I have to be on medication to qualify for strips isn't that defeating the object? I can seemingly cost the NHS more by being on medication but that is OK. Is it not better to be drug free and testing? Or is it all down to money again? What have I worked for ? Does it not seem a bit unfair? I have had another HBAC1 done today so now have to wait for results and see what happens. I am a bit fed up now and feel let down and downhearted.

Hazel :clap: :( :D

I'm very sorry you have been refused strips...

The NHS position is ridiculous...

In my opinion, the reason people get wound up about their levels is because people are following the ridiculous official NHS dietary advice which results in high levels... If people were given proper dietary advice on exactly how to keep their blood glucose levels under control by reducing carbs right back, then I could see a point in not testing as most people would then be eating sensibly and remaining under the NICE guidelines anyway without needing to test...
 
bluehaze14 said:
I too have been denied test strips today. I have been to the doctors because I have been feeling dizzy and have really bad headaches and feel unsteady on my feet. I tested my levels because I had been given a testing kit when I visited a drop in centre when first diagonosed. I have not used it as I was told people get to wound up about their levels and so kits are not given out now. My results were before meal 6.7 after meal 11.00. Because I am doing the Xpert course I decided to list my food intake and checked my carb intake, which was OK. If I had not tested how would I have know my levels were too high? I am all for self help and being in control of your diabetes but I feel testing is important. I asked at the chemist if they sold testing strips and was told they were £27.00 for 50. I am a pensioner and can't afford to pay this. I am also doing exercise referral and I feel I am doing all in my power to get my that defeating the diabetes under control myself but feel if I have to be on medication to qualify for strips isn't that defeating the object? I can seemingly cost the NHS more by being on medication but that is OK. Is it not better to be drug free and testing? Or is it all down to money again? What have I worked for ? Does it not seem a bit unfair? I have had another HBAC1 done today so now have to wait for results and see what happens. I am a bit fed up now and feel let down and downhearted.

Hazel :clap: :( :D

bluehazel14,

I have recently been switched to a new meter by my new DSN.
I have test strips which are well in date until next year and which the pharmacy will not take back - despite seal being intact.
I am loathed to throw away such valuable items when people like you are crying out for a box.
If you (or anyone in the same situation) wants to contact me via PM or here, i'd be happy to give you the strips - if you live in UK or Ireland, as postage further afield would be almost as much as the strips cost (maybe?)

Let me know which strips you use...

Viv
 
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