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The SCREAM thread

wolfie11969 said:
aaaaaaaarrrrrgggghhhhhhh

I wish my daughter would understand the higher powers in our country wont take too kindly to her lifestyle. She has children to consider. Or am I just being a nosey mother?
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Not at all, I shouldn't think. Children's welfare should take priority.....
 
Contralto said:
euw, just the thought of Marmite brings up the smell of it in my brain and gets me wondering what kind of creature form outer space took over the taste buds of former humans so that they could prove themselves controlled and colonized by craving the extraterrestrial substance and even paying for jars of it.
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Marmite! Love it or hate it! It appears there's no middle ground! Used to spread it real thick on a well buttered thick slice white bread
As a kid that was a treat!!
Alas! Will never pass my lips like that no more no more!!
But I do like your explanation though!!
 
Butterfly1960 said:
I have had daily chronic pain throughout my body since 2011 :(:wacky::inpain::wideyed: I was diagnosed 2014 with Fibromyalgia Syndrome
but it took a long time to get diagnosed, and had to give up work I loved cos of lack of sleep!! :wacky::rolleyes:
I started acupuncture in July (not everyone's cup of tea!) and recently I've felt a little better.... and sometimes sleeping betterer too! But I also made a drastic change to my diet...not only low carb, but wheat and dairy free and I've been veggie since 1978.
I will eat some fish now and again, but that's just a personal choice :cat:
Hope 'they' can sort somat out soon for you:nurse::angelic::doctor::cat:
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Has the change in diet helped the condition?
 
debrasue said:
Has the change in diet helped the condition?
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I do feel like I have more energy... but not sure what to do with energy cos joints still ache so very difficult to move around still. saying that though... I can't sit as still as I used to, like reading kindle. Now I tend to potter about, organising mostly and of course, using the forum to distract me :cat:
 
Butterfly1960 said:
I do feel like I have more energy... but not sure what to do with energy cos joints still ache so very difficult to move around still. saying that though... I can't sit as still as I used to, like reading kindle. Now I tend to potter about, organising mostly and of course, using the forum to distract me :cat:
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Aww, you poor love, chronic pain is hard to handle...Sending you big, gentle hugs
 
collects all the hugs and smiles....arms still sending me mad aching like toothache arghhhhh only upper arms though and it is very wierd the doc says he will send me for a scan on shoulders as think it could be tendon
 
PatsyB said:
collects all the hugs and smiles....arms still sending me mad aching like toothache arghhhhh only upper arms though and it is very wierd the doc says he will send me for a scan on shoulders as think it could be tendon
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Sending you big hugs @PatsyB: Ron also has alot of pain in his shoulders , started of as just a niggle now he's in agony . Seems to be alot of people in the same situation.
 
slept like a baby last night just like I used to, weird how people wake up in the night but a couple of times I have awoken and decided to do a test and levels were low so maybe a good thing at times.
 
tina_marie said:
Sending you big hugs @PatsyB: Ron also has alot of pain in his shoulders , started of as just a niggle now he's in agony . Seems to be alot of people in the same situation.
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Mega hugs mine ids my muscles in both arms the doc thinks it is tendon trouble and am still waiting for a scan if it proves to be then a steroid injection he says
 
PatsyB said:
Mega hugs mine ids my muscles in both arms the doc thinks it is tendon trouble and am still waiting for a scan if it proves to be then a steroid injection he says
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It's got to the stage with Ron that I'm having to wash and dress him. He can't even use his wheelchair on his own now .
 
I'm screaming today. I'm left unsure what to do. Dn at gp surgery believes I have the start of neuropathy but she feels I still have feeling in my right foot/toes so has noted on my records no evidence of neuropathy. Advised to wait til feb for yearly full check.
I'm tempted to see gp again but I dont really want another tablet but my head is telling me to insist as foot sensations are irregular. Worse in bed.
Anyone know if neuropathy worse in bed?
 
ickihun said:
I'm screaming today. I'm left unsure what to do. Dn at gp surgery believes I have the start of neuropathy but she feels I still have feeling in my right foot/toes so has noted on my records no evidence of neuropathy. Advised to wait til feb for yearly full check.
I'm tempted to see gp again but I dont really want another tablet but my head is telling me to insist as foot sensations are irregular. Worse in bed.
Anyone know if neuropathy worse in bed?
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Go with your head, see a gp don't leave it. I've asked Ron but unfortunately with his loss of memory he can't say one way or the other if worse in bed or not. Can't believe Dn has put down no sign of neuropathy.
 
ickihun said:
I'm screaming today. I'm left unsure what to do. Dn at gp surgery believes I have the start of neuropathy but she feels I still have feeling in my right foot/toes so has noted on my records no evidence of neuropathy. Advised to wait til feb for yearly full check.
I'm tempted to see gp again but I dont really want another tablet but my head is telling me to insist as foot sensations are irregular. Worse in bed.
Anyone know if neuropathy worse in bed?
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I'd go back AND make a complaint. She believes you HAVE got the start of it yet noted NO SIGN..... that's a bit ar$e about....
 
Have always been a workaholic I love to get things done ....both my arms hurt like mad at first it would wake me up ...over time it seems to have gone into my shoulder bone which still at times wakes me up grrrrbeen applying voltoral which had to buy from chemist as Docs only give you Ibruleve which does not work I am still waiting for a scan on shoulders to see if it is tendon trouble I think that when your past a certain age they do not bother with you and let you have pain this is what i believe these days....arghhhh
 
PatsyB said:
Have always been a workaholic I love to get things done ....both my arms hurt like mad at first it would wake me up ...over time it seems to have gone into my shoulder bone which still at times wakes me up grrrrbeen applying voltoral which had to buy from chemist as Docs only give you Ibruleve which does not work I am still waiting for a scan on shoulders to see if it is tendon trouble I think that when your past a certain age they do not bother with you and let you have pain this is what i believe these days....arghhhh
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Have they tested you for rheumatoid arthritis...?
Poor Patsy, sending hugs xx
 
PatsyB said:
Have always been a workaholic I love to get things done ....both my arms hurt like mad at first it would wake me up ...over time it seems to have gone into my shoulder bone which still at times wakes me up grrrrbeen applying voltoral which had to buy from chemist as Docs only give you Ibruleve which does not work I am still waiting for a scan on shoulders to see if it is tendon trouble I think that when your past a certain age they do not bother with you and let you have pain this is what i believe these days....arghhhh
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I used to believe the same because I was largely obese. Only big nurses actually help me investigate more. I wouldnt have been tested for thyroid if it wasn't for large nurse picking it up in the 90s. Bless her. Thank god she did.
.. be a pest if they aren't listening hun.

I know nhs is restricting to those overweight. Especially joint replacements. Told to lose weight first.
Durr... that's why some are adding weight, immobility. If only they truely got it.
I agree.
 
So, next phase... Sigh.

The local CCG changed the rules of referrals/treatment of a few conditions in my area. I was told at my last assessment by the brilliant consultant anaesthetist that this new system would leave his patients in pain and inevitably lead to the NHS spending more not less for treatments. He was so apologetic and yet angry at the same time.
What the CCG told all GPs and Hospitals in my area dealing with certain conditions that only two rounds of treatments would be paid for and then patients would have to be re referred for further treatment. Of old it has been a doctor who has discharged a patient back to a GP but now it is the CCG. What this entails is a wait for a GP appt. a wait while the referral is accepted another assessment then a wait for treatment. Two treatments and you have to go through the whole palaver again.
My last consultant anaesthetist said that this method would leave people in pain and needing more and more drugs at higher doses which is more expensive than the treatment that he and his colleagues offer. A treatment that for me gives 2-3 months of pain control.
Today I attended another assessment. This was taken by a nurse. A NURSE! This nurse who said her speciality was pain management thought neuropathy only applied to the brain and the neck. I kid you not. She told me another clause in the CCGs change of rules. Before any treatments are offered a patient must take part in a 'Wellness' course. This means a three hour session once a week for six weeks. This is to prove that a patient is motivated enough to help themselves! This course involves the dreaded 'Mindfulness' that has become a mantra for OTs. I swear I will slap someone if they tell me to go to my happy place. (My happy place usually was dancing on a nightclub table singing Uma Paloma Blanca with my shoes in one hand and a Black Russian in the other. Aahhh, the good old days).
So it looks like patients are being held hostage and made to jump through hoops. It is private companies that hold these courses, enough said about that. As my old consultant said, some sufferers will give up and opt for more expensive drugs. All the time (an hour) with this nurse today I just kept thinking 'I have said what works, just give me the treatment and stop going on about how your company can help me while charging the NHS exorbitant fees, you silly woman, you don't fool me'. A bit harsh but that is how I felt. I will have to do this stupid course and fingers crossed I might be happily surprised but I won't hold my breath. If not, it leaves drugs and more drugs from a GP not a consultant in spinal treatments for pain.


Aaaaarrrrrgh!!!
 
PatsyB said:
Have always been a workaholic I love to get things done ....both my arms hurt like mad at first it would wake me up ...over time it seems to have gone into my shoulder bone which still at times wakes me up grrrrbeen applying voltoral which had to buy from chemist as Docs only give you Ibruleve which does not work I am still waiting for a scan on shoulders to see if it is tendon trouble I think that when your past a certain age they do not bother with you and let you have pain this is what i believe these days....arghhhh
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Same with back problems, Mr Chris asked doc for x ray(last one was 1986 & he said he didn't know what it meant as the report was written in "old fashioned" language) but they don't do x rays now unless there's an underlying problem! Quite how they know there isn't an underlying problem without one I don't know. Can you phone & say you'd take a cancellation at short notice?
 
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