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They dont know if im t1 or t2

T

tealeaves

Active Member
Messages
39
Type of diabetes
Type 2
Treatment type
Other
So after being told T2 on friday, I had a hb1ac bloodtest and urine test today in preparation for seeing dsn on Thursday. Then at 6pm the doc rang and asked me to go into the surgery straight away because of a high level of ketones in the urine. So I went, the nurse wanted to put me on metformin straight away but the doc wants to wait until Thursday and repeat urine test then. I have a glucose monitor - at the surgery an hour after my tea it was 9.1. Just done it myself, 9.30pm, it's 6.4. Nurse wants me to test a few times a day and keep a record until I see her 5pm thurs. She said to go in or go to hospital if it goes above 12.

Does this all sound pretty standard?

The urine test wasn't showing high glucose.

I'm worried it's an unneccesary delay - I dont think it's T1. Am I doing any harm waiting a couple of days? Ive gone from having no symptoms to excessive thirst and pains in my legs and feet.

Gm was free by the way and I'll get strips and lancets free on prescription. Lucky me eh?
 
6.4 this morning before breakfast...and then again straight away for curiosities sake, 7.1. This machine doesnt seem very accurate - or I'm doing it wrong!
 
Hi tealeaves, if keytones were present in your urine it would tend to indicate T1 unless you have been on a very low carb diet and have ketones due to that. Keytones with high bg levels can be very dangerous hence your nurses instructions to keep testing and go straight to A&E if your levels go above 12 mmol/L.

An anti body test (cant remember the name of it now) would show one way or the other if you are T1 or T2 but doctors are often loathe to give them for some reason relying instead on whether you are young or old thin or fat :roll:

Your levels dont appear to be too high at present so a few days wait will not harm you providing you keep an eye on your bg levels and keytones. Try to stay calm and not too stressed, easy to say I know but stress can increase bg levels so do try to stay chilled until you have further tests :)

It is common I understand for T1's have what is referred to as a honeymoon period were you actually produce some insulin thus keeping your bg levels down without the need for too much/any insulin, again this may be why your levels arent higher. Perhaps someone with more T1 knowledge than me can comment here :thumbup:


Posted before my reply to your original question
tealeaves said:
6.4 this morning before breakfast...and then again straight away for curiosities sake, 7.1. This machine doesnt seem very accurate - or I'm doing it wrong!
Click to expand...

Its not uncommon to get different test results when taken together for a variety of reasons like the 10% tolerance on your meter so a genuine 6.4 could be -+ 10% ie 5.7 or 7.0 nothing to worry about :D
 
Honeymoon period is when the pancreas is able to recover after insulin therapy is started; patients having to stop insulin therapy as a result are not unheard of.

doctors are often loathe to give them for some reason
Click to expand...
Do you know P[type 1 given positive GAD antibody test]?

It's about 0.6 assuming sensitivity of 0.6 and specificity of 0.95 (not all type 1 patients test positive, and most diabetics are type 2) so this test would only be marginally better than tossing a fair coin.
 
Hi tealeaves

Hope I can give you some re-assurance here.

I was recently diagnosed T1- my readings have been ranging between 13 - 20 for about 5 weeks now (sometimes 8 -9 if I've not eaten for a while) and I only tend to get to trace ketones only. I've got an appointment on 12th Dec for insulin treatment and I have to monitor for ketones increasing and if I feel unwell to report it. So far, my limbs are just achy, and I'm very tired and have blurry eyes.

So for you, a couple of days wait will not do any damage you have a meter there so keep testing - BUT if you suddenly feel unwell you need to get to emergency.

Diabetes can manifest in weird and wonderful ways and there's different types - no one has exact precise glucose, ketones, symptoms etc. Typically it is T1s that tend to get Ketones though, however on rare occasions so can T2...the Endocrine system is complex and even more so when it doesn't work properly :crazy:

Good luck, hope you get the relevant tests done too as mentioned by AMBrennan, which are c-peptide and anti-GAD that are used to see if you have adult onset of T1.
 
hi, so sorry you are worrying,

This may help, I was dignosed type two 18 months ago, managed well on just diet, then a year ago i had a slight raise in my Hba1 test and they put me on metformin........ all went well ( apart from the usual tummy upset that starting on met can do

Then all of a sudden last week my blood readings went up the wall to 18, 25 fasting 12 and 14
with sore eyes, terrible thirst ect.

Rang my surgery who put me on glicazide and then when things didnt settle down and still high readings they put the glicazide up to a tablet 80mg morning and night

no better and then I had trace keytones My surgery told me to go to A and E if readings went higher

Upshot is they dont know whether I am late type 1 or classic type two....... I have an appt at clinic tom to decide what to do next.... Ive tried straving for a day.... No carbs sunday ..... still in the high teens... feel so tired and awful with such a high blood sugar.... think you have to keep in contact with your DSN and tell her all your worries

So feel for you, its horrid, but this forum has taught me more in a week than I ever could have hoped for ...... and several laughs too

Keep strong, and take care :D
 
Goodness, it all sounds so scary :(

Well today two hours after breakfast I was 10.4, so I went for a quick walk, 5.9 just before lunch, 6.0 at 4pm, and 7.9 at 7.30pm. To say I'm not on any medication at all, that's not too bad is it? Or isn't it? I don't know!

The only carbs I've had are a small bowl of rice crispies this morning and literally a forkful of noodles with my tea. I honestly don't know how to manage that every day :| I'm absolutely starving, I don't feel like I've eaten at all.

And I've got a Christmas party tomorrow afternoon (too ruddy early if you ask me, 1st Dec!) and it will be a bread, pastry, crisps and cake-fest - dreading it! At the GP and nurse immediately after though, so at least if I end up ill I'll be in the right place lol.

At least my family know now and are being quite supportive although my mum is very upset about it. Bless her, she keeps asking what I'm allowed to eat but doesn't really take it in. She was doing my dad chips with his tea and I said I wasn't allowed those, so she disappeared into the freezer and eventually emerged all pleased with herself having found...potato waffles. No mum, they're the same thing!
 
Feeling very hungry is a typical sign of poorly controlled diabetes. Bringing it under control decreases the hunger.

The tests for whether you are T1 or T2 often take much longer than the simpler tests for whether you have diabetes at all. One of the cheaper tests for this is to give you the pills for T2 and check if they help at all. If you're T1 with no insulin resistance, expect those pills to make no difference except for the possible side effects.
 
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