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TIND

Discussion in 'Ask A Question' started by Caprock94, Mar 13, 2020.

  1. Caprock94

    Caprock94 · Well-Known Member

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    Treatment Induced Neuropathy of Diabetes. Anybody else feel like they suffered from this after quickly lowering blood sugar levels? Did it get better? How long did it take?
     
  2. Caprock94

    Caprock94 · Well-Known Member

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  3. JohnEGreen

    JohnEGreen Other · Master

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    As I had neuropathy from the outset I can't say that mine was caused by reducing blood sugar levels too quickly the onset of my peripheral neuropathy was one thing that led to my eventual diagnosis of diabetes.

    So I am afraid I can't make much of a contribution here.
     
  4. Shas3

    Shas3 Type 2 · Well-Known Member

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    As I discussed in the other thread I believe i suffered from TIND. From initial symptoms to satisfactory recovery it lasted a little over 6 months. It was very scary and depressing and i am glad things improved significantly
     
  5. Indy51

    Indy51 Type 2 · Expert

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    You might find the following thread helpful: https://www.diabetes.co.uk/forum/threads/is-neuropathy-reversible.117656/

    My experience was that the pain gradually diminished over quite a long period of time. Now I'd say it's completely resolved but can't really say when that happened (I'm 8 years from diagnosis in March 2012). You might want to try r alpha lipoic acid supplements as many people find them helpful.
     
  6. Caprock94

    Caprock94 · Well-Known Member

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    Thanks. Glad to hear it finally resolved for you. Hoping for the same.
     
  7. peta2003

    peta2003 · Newbie

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    I currently feel that I am experiencing TIND having dropped my blood sugar level >4% in 2 months from November last year.
    Currently experiencing worsening retinopathy (diabetic macula oedema) in both eyes although blood sugars are being kept between 4 and 6.
    Also interested in whether anyone suffering from TIND has had the retinopathy issues and if they cleared up on their own or with treatment. Although I've had a referral to an eye clinic I'm yet to hear back.
    r alpha lipoic acid was mentioned earlier in the thread and I was interested in which brands people bought and from where.
    Thanks.
     
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  8. Caprock94

    Caprock94 · Well-Known Member

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    I had blurry vision (mainly up close) for a couple of weeks as blood sugars dropped. It went away when things got stable.
     
  9. peta2003

    peta2003 · Newbie

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    Thanks. That's pretty standard when glucose levels initially change in the fluid in the eye and I had that back in November. TIND studies specifically mention worsening retinopathy which started for me in January this year in my right eye and has now affected my left eye. The study suggests the degree of retinopathy is also related to the rate at which blood sugar levels were lowered.

    I can't add the link for the study but search for "PMC4285188"

    Do you know what your glucose levels were initially and what they went down to and when you started to change your levels?

    My neuropathy worsened dramatically about 5 weeks after I started the changes to mine (early December).
    I've had a number of other symptoms, small electric shock type sensations, muscle twitching, loss of temperature sensing / skin sensitivity, loss of taste / smell although this seems to have returned to some extent. The symptoms were worsening every couple of days and I had been getting more concerned since no-one seemed to have an answer until I read the study.

    Also had a recent diagnosis of small fibre neuropathy.

    Currently taking 1x metformin and keeping glucose levels between 4 and 6 with very restrictive diet.
     
  10. lucas12

    lucas12 Type 2 · Well-Known Member

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    Yep, it lasted 4 month after lowering sugars never had it before alpha lipid acid helped
     
  11. peta2003

    peta2003 · Newbie

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    Did yours include the symptoms I've listed?
    What did you bring the glucose levels down to and what were they before and over what kind of time period?
    Did you also have any of the automonic symptoms or worsening retinopathy or other microvascular issues associated with it?
     
  12. peta2003

    peta2003 · Newbie

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    Eyesight has worsened and I'm still waiting to hear back from the eye clinic.

    The diabetic specialist to whom I was referred due to the microvascular issues seem to dismiss the idea of TIND saying it is usually found in type I diabetics and has referred me back to my surgery diabetic nurse.

    The pain has been worsening and affects my whole body now including my shoulders and upper arms and that my body has lost more sense of touch. I also feel that my sense of taste has diminished again.

    The study ( Google PMC4285188 ) suggests "The pain in TIND is more severe, and poorly responsive to interventions including opioids" and I am now considering taking gabapentin to see if it offers any relieve whatsoever.

    I have considered whether I can take retirement on medical grounds due to the pain but without any medical reports / diagnosis / prognosis I can't see this happening. Has anyone had any experience of doing this?

    HELP! Is anyone aware of a TIND specialist in this country?
     
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