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<blockquote data-quote="Just_Me_Rachel" data-source="post: 1520713" data-attributes="member: 383513"><p>Hi there,</p><p></p><p>Although I have Type 1 Diabetes, I know the challenge that diabetes is to me. I love some of those sentences you wrote, <em>...that creeps up on you like a dark beast if you let it, </em>and how you write, <em>anyone else feels like not Diabeating today</em>? Hellz, yes! Every single day of my life I wish I could hide from the fact that I have diabetes, that I have to take care of it.</p><p></p><p>I struggled for years, and it's still a daily struggle for me. And yet, I've come along way, so that diabetes doesn't have to control my life in quite the same way as it used to.</p><p></p><p>All of my life I was taught about the technicalities of diabetes and the complications I will run into if I don't take care of myself. I froze from it all, I couldn't deal with it. I have background retinopathy and carpal tunnel syndrome today, but on the whole I'm in a way better place than I've been. Many, I'd venture to say most, people don't understand the burnout we've experienced. They say, oh just care for yourself! without quite understanding how utterly difficult living with diabetes can be.</p><p></p><p>What it feels like to be totally crushed by something that's meant to be <em>perfectly livable</em>.</p><p></p><p>So, that's my empathy for you. Suggestions? Take it day by day, moment by moment. Please don't be hard on yourself, diabetes is a tough battle. They tell us to watch it every minute and so we have to create for ourselves that space and time to <em>allow it to be</em>. To feel, to struggle and eventually to overcome. You can try the book, Diabetes Burnout, William Polonsky, I cried when I picked up, because it was the first time I found an educator talking on the emotional side of diabetes. </p><p></p><p>I'd suggest you not put focus on your Hba1c at this moment - just take it day by day, doing the next right thing. There's no need to go into that state of panic and desperation, fear and helplessness. The A1c is just a result, albeit an important one, but the most important thing is to just do the best we can do, one moment at a time. The results will come, when the time is right. And if you're taking it moment by moment, and doing the best you can, you can choose what advice to take from the nurse and let the rest flow off your back.</p><p></p><p>Don't be hard on yourself, it's not necessary.</p><p></p><p>I don't have experience with dealing with other people (you mention you have to take care of your parents) but I will say: you're the most important person in your own world, so make sure to give yourself time for yourself to, where you can. Try to do the things you enjoy.</p><p></p><p>Diabetes is a hard condition to contend with. Hang in there.</p></blockquote><p></p>
[QUOTE="Just_Me_Rachel, post: 1520713, member: 383513"] Hi there, Although I have Type 1 Diabetes, I know the challenge that diabetes is to me. I love some of those sentences you wrote, [I]...that creeps up on you like a dark beast if you let it, [/I]and how you write, [I]anyone else feels like not Diabeating today[/I]? Hellz, yes! Every single day of my life I wish I could hide from the fact that I have diabetes, that I have to take care of it. I struggled for years, and it's still a daily struggle for me. And yet, I've come along way, so that diabetes doesn't have to control my life in quite the same way as it used to. All of my life I was taught about the technicalities of diabetes and the complications I will run into if I don't take care of myself. I froze from it all, I couldn't deal with it. I have background retinopathy and carpal tunnel syndrome today, but on the whole I'm in a way better place than I've been. Many, I'd venture to say most, people don't understand the burnout we've experienced. They say, oh just care for yourself! without quite understanding how utterly difficult living with diabetes can be. What it feels like to be totally crushed by something that's meant to be [I]perfectly livable[/I]. So, that's my empathy for you. Suggestions? Take it day by day, moment by moment. Please don't be hard on yourself, diabetes is a tough battle. They tell us to watch it every minute and so we have to create for ourselves that space and time to [I]allow it to be[/I]. To feel, to struggle and eventually to overcome. You can try the book, Diabetes Burnout, William Polonsky, I cried when I picked up, because it was the first time I found an educator talking on the emotional side of diabetes. I'd suggest you not put focus on your Hba1c at this moment - just take it day by day, doing the next right thing. There's no need to go into that state of panic and desperation, fear and helplessness. The A1c is just a result, albeit an important one, but the most important thing is to just do the best we can do, one moment at a time. The results will come, when the time is right. And if you're taking it moment by moment, and doing the best you can, you can choose what advice to take from the nurse and let the rest flow off your back. Don't be hard on yourself, it's not necessary. I don't have experience with dealing with other people (you mention you have to take care of your parents) but I will say: you're the most important person in your own world, so make sure to give yourself time for yourself to, where you can. Try to do the things you enjoy. Diabetes is a hard condition to contend with. Hang in there. [/QUOTE]
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