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Toujeo

Discussion in 'Type 1 Diabetes' started by Ebony2102, Jul 17, 2017.

  1. Ebony2102

    Ebony2102 Type 1 · Active Member

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    I've tried so many different types of insulin, I am now using Toujeo, I'm on 92 units daily, just changed from 116 units of Levemir... anyone else on Toujeo?
     
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  2. Lynz84

    Lynz84 Type 1 · Well-Known Member

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    Hi Ebony2102 im on toujeo. Been on it a year now!
     
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  3. becca59

    becca59 Type 1 · Well-Known Member

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    I've been on it a year. Only on 9 units though! Love the easy mechanism in the pen when injecting.
     
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  4. smag3

    smag3 Type 1 · Well-Known Member

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    I am on it too, been using it for about a year now. Taking 14 units a day, taken in the morning. All good.
     
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  5. badger07

    badger07 Type 1 · Newbie

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    Hi has anyone had any problems with Toujeo? I've just changed from lantus 10 units to toujeo and seem to have no control.
     
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  6. ickihun

    ickihun Type 2 · Master

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    I love my toujeo300. On 69units and giving me steady 5s and 6s.
    Was your lantus running on 15 or less units per day? As 10units seem low for anyone insulin resistant. Of course you may not be!
     
    #6 ickihun, Aug 19, 2017 at 4:31 PM
    Last edited: Aug 19, 2017
  7. Cumberland

    Cumberland Type 1 · Master

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    Like all Insulin's what works for one may not for another

    I've been on Toujeo since last July and for me it has worked wonders whereas Lantus & Humulin didn't
     
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  8. JamesT1950

    JamesT1950 Type 2 · Newbie

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    I have been using Toujeo for almost a year. Here is my issue. The Toujeo pen comes in 450 units per pen. I only use 10 units once a day. The instructions say to discard the pen 28 days after you remove it from the refrigerator. So, out of 450 units, I am only using 280 units then I'm supposed to discard the remainder. I have continued to use it past the 28 days and it is still effective.

    If it's only supposed to be good for 28 days after you remove it from the refrigerator, why couldn't I keep it in the refrigerator and use my dosages from there and continue on using the pen pen Neil it is used up?

    This medication is very expensive here in the states and it really seems to be a waste to discard almost half of the pens contents.

    Any ideas?
     
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  9. ickihun

    ickihun Type 2 · Master

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    I hope I have the same trouble soon @JamesT1950 . On 69units but specialist advised I may need to half that when doing liver shrinking diet before bariatric surgery.
    By the way my info sticker says use within 4 weeks too.
    Why was toujeo300 suggested for your treatment when you dont seem very insulin resistant? I thought that is it's main attraction.
     
  10. DaftThoughts

    DaftThoughts LADA · Well-Known Member

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    From what I read, it has to do with FDA guidelines concerning the opening of sterile products. i.e. when you first use a new pen or vial, you introduce air and potential germs into the mixture. FDA regulations maintain that insulin that has been opened/used should be thrown out after 28 days to avoid people getting sick, however low the odds of infection are.

    I think that people are more likely to continue using an opened bottle or used pen after the 28 days when they refrigerate them in-use, so the companies insist that the insulin should be kept at room temperature. People are more likely to toss them when they haven't been 'preserved'.

    The only exceptions companies make for storing pens in the fridge is when you live in a hot climate and room temperature exceeds 80F/25C regularly. Then you have to keep them refrigerated so the proteins don't spoil.

    That said, wasting half a pen is unnecessary - if you have informed yourself of the potential consequences then it's up to you whether you continue using it until it's empty or not. Storing a used pen in the fridge will reduce the chance of spoiling due to the cold, but be aware that the proteins will break down eventually. As long as your levels remain stable, you should be good, but toss and use a new one if you're seeing odd fluctuations.

    Hey, me too! :) July last year I started Toujeo as my first insulin. As long as I stay on top of the correct dosage I have flat lines between meals and during the night.
     
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  11. becca59

    becca59 Type 1 · Well-Known Member

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    Have you noticed that the info on the pack has been changed from 4 to 6 weeks. I questioned this with my pharmacist and she said stick to the 4 weeks!! Have to say I usually use for 5 weeks as I felt it was wasteful. I noticed a tailing off off effectiveness around this time. I was changed to Toujeo from Lantus. It seems to be a general thing in our area.
     
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  12. Sjr83x

    Sjr83x Type 1 · Member

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    I'm on Toujeo. Have been since October. I take mine at night now and I'm finding much better control. You definitely need less than lantus. And I understand that if you alter doses on Toujeo alter by 4 units at a time but wait 4 days in between another alter to see the effects. I keep mine in the fridge all the time. Hope this helps.
     
  13. JamesT1950

    JamesT1950 Type 2 · Newbie

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    If you keep it in the fridge and use it from there each day, do you use it past the 28 days or is your dose high enough to use the contents up before the 28 days is up?
     
  14. DaftThoughts

    DaftThoughts LADA · Well-Known Member

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    I personally take 16 units a day and always test 1 unit before injecting (because my first unit tends to be an empty or half of one most of the time) so my pen runs out within 28 days. When I was on 10 units a day in the beginning though, I just used them until they ran out after 5-6 weeks. I never noticed any ill effects.

    I do always keep my insulin in my Frio case so it typically sits around 15-20 degrees Celcius all the time, which does help prolong protein life in the insulin.

    Bottom line is: change pens when you notice your bloodsugar act up, regardless of whether or not it's been refrigerated.
     
  15. Sjr83x

    Sjr83x Type 1 · Member

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    I take 34 units a day so I use within the timeline. I keep in the fridge purely because it's easier. I take at 930pm and I tend to be home so I keep in the fridge, my alarm goes off to remind me so it's the same time each day and I take it from the fridge
     
  16. CDM9

    CDM9 Type 1 · Well-Known Member

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    Toujeo was a nightmare for me - I wrote a thread on it. Started off ok then major highs worse than when I eat chocolate so I went back to Lantus.
     
  17. JamesT1950

    JamesT1950 Type 2 · Newbie

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    I was on Metformin and my kidney doctor took me off of that and they put me on Januvia pills which seeem to help my sugar control but don't bring my A1C down to where they would like to see it. So, they gave me a small dose of Toujeo to assist which works very well. Both medications are very expensive here in the U.S.
     
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