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Trigeminal neuralgia and Diabetes?

MichM

MichM

Member
Messages
11
Location
Cardiff
Type of diabetes
Type 1
Treatment type
Pump
Hi guys,

Newbie to this site (hello) but been diagnosed type 1 for around 7 years.

As if diabetes was not enough, I have just been diagnosed with trigeminal neuralgia I know that diabetes can affect the nerves, and my sugars have not been ideal past few years, with my last hba1c at 7.7 %.

I have seen a few links in the scientific literature of some (not many) linked to each other, but thought I would the ask the community here.

So depressed with it all right now and would be grateful if any advice anyone can give! Cheers guys
 
MichM said:
Hi guys,

Newbie to this site (hello) but been diagnosed type 1 for around 7 years.

As if diabetes was not enough, I have just been diagnosed with trigeminal neuralgia I know that diabetes can affect the nerves, and my sugars have not been ideal past few years, with my last hba1c at 7.7 %.

I have seen a few links in the scientific literature of some (not many) linked to each other, but thought I would the ask the community here.

So depressed with it all right now and would be grateful if any advice anyone can give! Cheers guys
Click to expand...

MichM, we have a couple of members who spring to mind who have endured trigeminal neuralgia. It's a horrible condition and can be tricky to treat, but hopefully @Mel dCP , who is T1 and managed to wrangle it, and @lucylocket61 , who is T2, but to my shame I can't recall how she's doing with it now, will have some wisdom for you.

I hope you can shift it soon.
 
Thank you so much both. I did see Mel dCP post and have to say brought a smile to face

I will look at the above links. Am determined not to let this get the better of me
 
MichM said:
Thank you so much both. I did see Mel dCP post and have to say brought a smile to face

I will look at the above links. Am determined not to let this get the better of me
Click to expand...
I have trigeminal neuralgia and am Type 2. I find keeping my sugars down is vital, to keep the inflamation at bay. Also i avoid hot or cold food and drinks, room temperature is OK, and i wrap a scarf around my face if it is cold outside or windy. Best wishes.
 
Hi @lucylocket61 thank you for replying to post. Did you have the TN before or after Diabetic diagnosis. I too find that hot / cold drinks trigger it, as does windy days (so a lot of those here in the UK )

Do you think your TN flares with higher sugars?
 
MichM said:
Hi @lucylocket61 thank you for replying to post. Did you have the TN before or after Diabetic diagnosis. I too find that hot / cold drinks trigger it, as does windy days (so a lot of those here in the UK )

Do you think your TN flares with higher sugars?
Click to expand...
I have been type 2 for 7 years, and the TN started about a year ago. I am also in the UK. Higher sugars (I had to go on steroids for a few weeks recently) certainly made it worse.
 
I can’t really add to wheat I wrote on the other thread but I’m certain that normal blood glucose is key to beating it. Mine rarely bothers me now.
 
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