Trust me... Type1 and Type2 diagnosed today. Why does my health problems have to be so convoluted???

ringi said:

Let take a different take on this. I think your GP is saying

Not that he has seen test results to prove your bete cells are being killed by your autoimmune system.

Very long term type2 can result in the bete cell being kill by a different process then type1 and hence the inslin levels drop to the levels seens in type1. By saying you have both type1 and type2 the likelihood of anyone reading your notes providing the correct medical care has been increased.

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I find I'm very tired since increasing metformin to its now appropriate 2000mg of the regular type. I do see some support to my insulin but more so to my previous irratic hormones. However I'm keen to see next months cycle to truly find my previous benefits.
I'm older than I was in 2002 and thereafter to date.
I was not tested for type1 then nor hv I seen a C-peptide nor GAD test result and I don't feel my GP has either, for me.
My old Endo's last advice was to reduce my insulin. Of which I will do when my weight lost enables, more exercise once my back/pelvis and neck pain is managed better with my GP's help. Also in metformin benefit replacement.
I'm now on 24units of triple strength basal and 5-10units of novarapid. So onwards and upwards.
I'm sure my new Endo will need me to be able to inform him accurately of how well I'm physically decreasing my insulin need, in a few months time.
Next week I should have a better diagnosis of my spinal pain and weaknesses. Of which I will work with to improve my IR. No matter what.
Swimming on painkillers is and will always be done with a companion.
I won't let anything stop my weight loss and reduction of IR.

DCUKMod said:

Ickihun, with all your weight loss, if I were having palpitations, I'd want my thyroid function checked, bearing in mind you are taking Levothyroxine. Dosing for Levothyroxine is not, generally weight driven, but as our thyroid function is heavily involved in our metabolic systems, it seems plausible the improvements in your overall health could be impacting how much T4 you are needing. Palpitations can be a sign of being over-medicated - as we all of a million and one other things.

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Thx @DCUKMod. Thyroid is great. Bloodtest showed TSH at a good level so no levothyroxide reduction. This time.

EllieM said:

In your position I'd want a c-peptide test, just to know whether I was capable of producing enough insulin to manage without injections. There's not much point in struggling to avoid insulin injections if your body is incapable of producing the insulin it needs. But congrats on the weight loss and on the general perseverance with your health conditions - if there's any justice in the world then things should get better for you.

(I'm T1 with a family history of T2 and (I suspect) a bit of insulin resistance, though my DN looks at me blankly when I suggest this. I certainly don't need much carb to get me out of a hypo, though as I loathe hypos with a passion I work very hard to avoid them.)

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I'm not back to specialist til March. By then I'll know myself.
I am struggling with no basal as having to constantly correct. Even on metformin. Although I'm still 17st. The argument will be my weight will need additional insulin I may be producing.
My observation is my liver constantly dumps on me. I still hv fatty liver.
I can do ultra low carb to get rid of liver fat but I suffer with terrible palpitations and fast heartbeat when I make a start. They really frighten me as I hv mild CVD.

DCUKMod said:

TSH is an output of the pituitary gland. It tells the thyroid how much effort it should make to secrete T4 (which in those with good metabolisms their body will convert to the more active hormone T3.

Whilst TSH tells the body to secrete T4, it doesn't measure or even confirm the thyroid has managed to carry out its request. Similarly, it doesn't indicate if the body has converted the T4 to T3.

In my view TSH is white noise, once it has raised beyond 2 or 3.

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I agree but I use the white noise as a measure from 1993. So I can measure my TSH.
Also the nhs are not interested in T3 and T4 unless a more serious problem with the thyroid. Mine has always been reflective to my condition, which is underactive thyroid only. Not Hashimoto's disease.

Rachox said:

Sorry you have heard what must be such confusing news @ickihun . Have they suggested that they test your insulin levels or is that how they deduced the new diagnosis?

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It seems that I'm noted as type1 as I'm insulin dependant and incase of an emergency I should be treated medically as a type1 at A&E or in times of a operation. This is on my GP file and crossed referenced with current hospital notes. I'm still under the specialists in my local hospital for on-going medical support during my time I need to reduce insulins and once again maybe try tablets to shift injections.
I hv gone through the change very quickly and I'm at risk of RH after my major operation. I also hv underactive thyroid and past immune attacks like bell's palsy, too. My body can go very wrong and I'm currently unable to walk much but I try never the less. Nerve nips and inflammation with infections are my everyday problems. As well as needing insulin, at mo. (Fingers crossed)
Ps. My Carb intake is approx 50-75gs daily. If I go too low palpitations and fast heartbeat returns. With those carbs and protein I'm on approx. 30 units of fast acting with 2000mg metformin.

DCUKMod said:

Ickihun - I'm sorry, but the NHS are interested in T4 and T3 if you make them so. If you're happy with "well enough", then so will they be.

Are you well enough? I have absolutely zero idea, and quite frankly, without knowing the level of your thyroid hormones (as opposed to your TSH which is a pituitary hormone) nobody else knows either.

Sadly, in my observation; both personally, and of others, that is absolutely the case.

We get all upset about how scant the medical school curricula are, for Diabetes. Many Endocrinological topics, including thyroid function and health are the same.

I do feel strongly about both those topics.

Hashimotos or not ( and I don't appear to be either, as demonstrated by both sets of antibodies), there's nothing to stop a thyroid from malfunctioning for a whole host of other reasons.

It's your body. Your call, so I'll step away now.

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Thx @DCUKMod.
If my thyroid on levothyroxine was giving me a problem I may investigate at that stage but I'm losing weight on the adequate levothyroine to keep my pituitary gland happy. I'm satisfied for now.
Thx for support though. It's always appreciated.
I'm suffering with suspected gallstones and it's ghastly. Very painful and being sick. Told my scan (second one, first was before Roux-en-y) may take up to 6wks to hv and then 7-10days to give results to GP.
So unable to do school run again. I was using my half share to keep walking daily but it's even worse on my walking than I remembered. I had stopped tramadol or dihydrocodeine for co-codamol but I tried to talk myself into bareing the pain. It has stopped me sleeping properly and walking. Even sitting was very uncomfortable recently. Once again one step forward, 2 steps back. Restarting on dihydrocodeine now. I'm keeping my fingers crossed I get my better (still aided) walking back. I felt more accomplished.
Still without basal insulin with metformin as much as possible up to 2000mg. Corrective bolus.
I may hv to reduce painkillers again if not stones. I will hv to describe the true pain once more.