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Type 1.5 LADA newly diagnosed & surprised norwegian

TStine

TStine

Member
Messages
12
Location
Norway
Type of diabetes
Treatment type
Insulin
Hi all,
My name is Stine, I am 40 years old from Norway. I was diagnosed with diabetes type 1.5 LADA just over one week ago. It took me completely by surprise as noone in my family has any types of diabetes and I am not in the typical risk of getting the type 2, so I never suspected I would ever get diabetes of any kind.
It is still sinking in and I think it's a bit hard to realize that I need about 6 needles a day for the rest of my life. I think one day at the time, is the best approach for me! :)

My BG was 19.9 at the time I went to my GP and my Hba1c was 10.1. My vision got very blurry the last couple of months, and my apetite and energy levels were nothing to brag about, and the last week I could not focus at work and started bumping into stuff, being completely unfocused and very exhausted without running a fever or any other obvious reason. The last 2 weeks I also drank huge amounts of water before bedtime. Classic symptoms, I guess.

The doctor started me on both slow- and rapid-working types of insulin (basal and bolus I think you call them), -no pills. My pancreas still produce some insulin. My eyesight is already starting to imrpove (hurrah!) :) and I am trying to get used to counting carbs and calculating & adjusting the dosages.
I have already found this forum and this website very helpful!

:)
Stine
 
Hi Stine, my story is almost exactly the same as yours but I was diagnosed in January. Once on insulin you feel much better but it is a bit of a nuisance carrying the stuff around and remembering. When I read some of the accounts on here I sometimes think I don't have diabetes as I've found keeping my bs below 9 quite easy most of the time. I've only had about 4 hypos as well and know straight away if I'm low. Breakfast food seems to have the biggest effect so I have no carbs until lunchtime. Hope you have a kind diabetic nurse to ring up when you need support; they're invaluable. Good luck.
Andy
 
Just look around on this forum there is lots of information here, Good luck, hope you will manage your disease nicely.

Here are some others diabetes forums as well.

https://www.diabetesdaily.com/forum/
http://community.diabetes.org/
http://www.tudiabetes.org/forum/

I think this forum is the best by far though, but just remember that your kind of diabetes is rare. If I were you I would just youtube lectures about your type of diabetes and search medical papers, you have a much larger deal on your hands since you must manage it for life, and you cannot cure it like normal type-2 diabetes( maybe there is a cure in the pipeline, but those things are unpredictable).

Since your diabetes is not that normal most doctors will not know to much about, so you have to do more work on your own than your standard type-1 or type.-2 ( and those condtions require a lot of work)

Good luck with your diabetes, and hope you find those forums useful!
 
Me too, 42 and diagnosed June. One day everything went blurry. Optician sent me to the doctor. People on the forums are v. Helpful and friendly. It all made me feel better about things.
 
Welcome to the forum @TStine, diabetes does come as quite a shock but in time you will settle in to a routine and soon realise that life isn't too bad. Best wishes.
 
Hi and welcome. I went thru a similar process but was able to be on tablets for a while. Insulin has been salvation for me and I've been on it for around 2 years now. You do get used to it although carrying stuff around, testing before driving and so on is a nuisance. It does become part of every day life and becomes 'normal'. I've yet to have a hypo although been half-way there a few times but I'm lucky and am hypo aware. As soon as I feel spaced-out and a bit hot and sweaty I know I'm going low and have some carbs. Like you, being thin and no diabetes in the family it came as complete surprise.
 
Andy41 said:
Hi Stine, my story is almost exactly the same as yours but I was diagnosed in January. Once on insulin you feel much better but it is a bit of a nuisance carrying the stuff around and remembering. When I read some of the accounts on here I sometimes think I don't have diabetes as I've found keeping my bs below 9 quite easy most of the time. I've only had about 4 hypos as well and know straight away if I'm low. Breakfast food seems to have the biggest effect so I have no carbs until lunchtime. Hope you have a kind diabetic nurse to ring up when you need support; they're invaluable. Good luck.
Andy
Click to expand...

Hi @Andy41 and thanks for commenting! :) I have yet to experience my first hypo, -although it's just been half a week though, managing bolus/basal-dosages on my own, so I guess it won't be long :) I agree , it is a nuisance carrying the stuff around and remembering everything, but I am optimistic and I hope it will all be more of a habit as the time passes :) I do have a diabetic nurse I can ring whenever I need, -very happy about that!
 
Your story sounds pretty similar to mine. It sounds like you're handling the news well (or about as good as someone can).

I was diagnosed a little over three months ago with type 1. My doctors never mentioned type 1.5, but that basically seems to be the new term for "adult-onset type 1 diabetes."

Joining here was one of the best things I've done in learning how to manage this new part of my life. Glad you're here.
 
Roytaylorjasonfunglover said:
Just look around on this forum there is lots of information here, Good luck, hope you will manage your disease nicely.

Here are some others diabetes forums as well.

https://www.diabetesdaily.com/forum/
http://community.diabetes.org/
http://www.tudiabetes.org/forum/

I think this forum is the best by far though, but just remember that your kind of diabetes is rare. If I were you I would just youtube lectures about your type of diabetes and search medical papers, you have a much larger deal on your hands since you must manage it for life, and you cannot cure it like normal type-2 diabetes( maybe there is a cure in the pipeline, but those things are unpredictable).

Since your diabetes is not that normal most doctors will not know to much about, so you have to do more work on your own than your standard type-1 or type.-2 ( and those condtions require a lot of work)

Good luck with your diabetes, and hope you find those forums useful!
Click to expand...

Thanks for info and tips @Roytaylorjasonfunglover :) I know that LADA type comes with some additional challenges,, I am reading and trying to learn as much as I can, but not all at once because my brain will soon overload ;)
 
Thank you for all welcoming replies and it's comforting to know I am not alone having this LADA thingy entering my life as a complete surprise. I have already found lots of good information here and as a newly diagnosed I am so glad there are both "experienced" diabetics and newbies that share stories and give helpful advice. Thanks everyone! :)
 
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