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Type 1.5 of LADA (you choose)

frasmilne

Newbie
Messages
1
Location
Edinburgh
Hi, I have been diagnosed with 1.5 for just a year now, In that year I have gone from having Type 1 to Type 2 and back before the dr finally decided that Type 1.5 was what I currently have.

I am on Lantus Insulin once every day, Victoza, 2x 1000g Metformin and simvastatin, on top of this I am on 3 different meds for high blood pressure and prozac as well, I am starting to feel a bit like a walking medicine cabinet and am getting so fed up having to take all these meds that I am skipping the odd day here and there to have a break.

Is it odd that I would like the diabetes to progress faster so I am more or less just type one and then maybe the meds will be cut down?

Very fed up in Edinburgh!

Fraser
 
Hi Fraser!

No, you are not odd in wishing that - perhaps a little unwise, but not odd.

LADA is a difficult condition because sometimes you produce insulin and sometimes you don't, so control is unpredictable and insulin doses are constantly needing adjustment. There are many of us on this forum with the same condition and many of us have had difficulty with diagnosis and on-going treatment. However, LADA does have benefits over Type 1 in that your body is likely to still 'save' you from extreme hypos (I won't go into detail as you don't need to bother about that right now!)

Firstly, have you had any tests to reach an accurate diagnosis? Specifically, have you had a GAD-antibody test and a c-peptide test? The GAD anti-body test shows whether you have GAD antibodies present - if you have you probably have an autoimmune form of diabetes (Type 1/1.5). The C-peptide test shows how much insulin you are producing - simplistically, high levels of insulin and high levels of glucose usually means Type 2, low levels of insulin and high levels of glucose usually means Type 1/1.5. If this has not been done and explained to you, that is your first step - otherwise it is just guesswork as to which Type you are and what an appropriate form of treatment might be.

LADA generally responds very well to insulin treatment as insulin often kicks the pancreas back into production for a while. In its early stages, people with LADA often produce enough basal insulin to get BGs down in a matter of 3 or 4 hours after eating, but don't have the first phase insulin to deal with food - this deteriorates over time and they progress to insulin-dependance. So, as an LADA, you might choose to go onto small doses of insulin (both basal and rapid-acting) immediately - I am not a doctor, but i would suggest that Lantus alone might not be the best choice for an LADA type - a rapid-acting at meal times is more likely to help with the replacement of the natural first-phase insulin that you will probably be lacking (just my thoughts from my own experience). Type 2 generally has a large elemnet of insulin-resistance, so insulin treatment usually involves far higher doses and is therefore maybe not such a good first choice of treatment. LADA does not generally respond well mid/long-term to oral diabetes drugs - they might work for a short time, but progression to insulin is inevitable and the oral drugs will get progressively less effective as your own insulin production diminishes. All forms of diabetes react well to the reduction of carbs in the diet, although you would need to do that carefully as you will probably have to reduce your Lantus dose accordingly.

LADA is not the end of the world. We all get frustrated with it sometimes, but you can manage it with a little effort!

Let us have a few more details about the tests you've had, your Lantus dose, your diet and your BG levels, and I'll try to make some suggestions.

Take care

Smidge
 
Hi Fraser,
I had almost the same experience as you, btw I'm in Edinburgh too. I was diagnosed as Type 2 at first then Type 1 and now the docs have settled for Type 1.5, although they won't pin there reputations on it. Anyway after two years I've got my diabetes well under control, so whatever number the medics decide put on it doesn't really matter to me as long as the insulin works :thumbup:
 
I'm lada too , only on a small dose of insulin at night but without it I get so tired it's like torchure , some days r better than others , some days I feel like ****
 
Sounds like you are in the same boat as a lot of us. I was the same, type 2 then 1.5, then type 2 again, then type 1.5 depending on what doctor I see. I am just doing what they tell me, but I worry too that the wrong meds and continuously high BG is killing what is left of my insulin producing cells. It frustrates me that they cut costs by not doing the tests we need. I understand completely how you feel being sort of left in limbo with your pancreas working some days and other days not. I sometimes wish too that it would just stop and I would be on insulin and I could just get on with my life. Nothing worse than having this black cloud of unknowing when we will need insulin, if we will need insulin.

Welcome to the forum though, there are some great people in here, and extremely knowledgeable. I would go mad without this forum!
 
I think the worst thing is that we end up doing a lot of research when we are first diagnosed, especially when we are left in limbo and are left scrabbling for information . So when you have experts who won't commit to a diagnosis and who have not read up as much on the unusual types as we have it is extremely frustrating leading to that sense of wishing things would progress almost so we can turn around and say "I told you so"... or maybe that is just me on bad days.
 
Hi Fraser!

No, you are not odd in wishing that - perhaps a little unwise, but not odd.

LADA is a difficult condition because sometimes you produce insulin and sometimes you don't, so control is unpredictable and insulin doses are constantly needing adjustment. There are many of us on this forum with the same condition and many of us have had difficulty with diagnosis and on-going treatment. However, LADA does have benefits over Type 1 in that your body is likely to still 'save' you from extreme hypos (I won't go into detail as you don't need to bother about that right now!)

Firstly, have you had any tests to reach an accurate diagnosis? Specifically, have you had a GAD-antibody test and a c-peptide test? The GAD anti-body test shows whether you have GAD antibodies present - if you have you probably have an autoimmune form of diabetes (Type 1/1.5). The C-peptide test shows how much insulin you are producing - simplistically, high levels of insulin and high levels of glucose usually means Type 2, low levels of insulin and high levels of glucose usually means Type 1/1.5. If this has not been done and explained to you, that is your first step - otherwise it is just guesswork as to which Type you are and what an appropriate form of treatment might be.

LADA generally responds very well to insulin treatment as insulin often kicks the pancreas back into production for a while. In its early stages, people with LADA often produce enough basal insulin to get BGs down in a matter of 3 or 4 hours after eating, but don't have the first phase insulin to deal with food - this deteriorates over time and they progress to insulin-dependance. So, as an LADA, you might choose to go onto small doses of insulin (both basal and rapid-acting) immediately - I am not a doctor, but i would suggest that Lantus alone might not be the best choice for an LADA type - a rapid-acting at meal times is more likely to help with the replacement of the natural first-phase insulin that you will probably be lacking (just my thoughts from my own experience). Type 2 generally has a large elemnet of insulin-resistance, so insulin treatment usually involves far higher doses and is therefore maybe not such a good first choice of treatment. LADA does not generally respond well mid/long-term to oral diabetes drugs - they might work for a short time, but progression to insulin is inevitable and the oral drugs will get progressively less effective as your own insulin production diminishes. All forms of diabetes react well to the reduction of carbs in the diet, although you would need to do that carefully as you will probably have to reduce your Lantus dose accordingly.

LADA is not the end of the world. We all get frustrated with it sometimes, but you can manage it with a little effort!

Let us have a few more details about the tests you've had, your Lantus dose, your diet and your BG levels, and I'll try to make some suggestions.

Take care

Smidge
Hello, not sure if this will post. I am a LADA, or that is what I figure since I am not a 2 and I have an autoimmune disease, but not on insulin. I have heard from another source in the US that one should start insulin to keep the beta cells from being destroyed. Is this true?
 
Hello, not sure if this will post. I am a LADA, or that is what I figure since I am not a 2 and I have an autoimmune disease, but not on insulin. I have heard from another source in the US that one should start insulin to keep the beta cells from being destroyed. Is this true?
That's what a lot if us think, yes, and that's how Dr Bernstein, who you should read, treats his patients.

http://www.diabetes-book.com/diabetes-solution/

http://www.amazon.co.uk/gp/aw/d/B00...&pi=AC_SX118_SY170&keywords=diabetes+solution

Also his YouTube lectures: https://m.youtube.com/playlist?list=PLs_TA02I6IvV6-1s2pL4BPhvMo0Ck_lcY
 
Hi, I'm a 48 year old male, newly diagnosed Type 1.5. I've been diagnosed as pre-diabetic (8years ago), then Type 2 (15 months ago) and now the insulin bombshell a few days ago. I feel like I have a lot to learn. Currently injecting 5 times a day and my fasting BG levels are dropping from about 20 to the low teens. St Thomas's in London are looking after me and I feel like I'm in good hands. I will check out Dr Bernstein but I'm open to any other advice.
 
Hello I have had type 1.5 diabetes for 3 years and I'm on 3 different insulins I have had a lot of hypos the lowest beng when I was in hospital and the nurses notice my b,s were 2.3 I am lost because I'm on a lot more medications and I'm finding it hard to tell myself I'm going to be a diabetic for the rest of my life I have had dka and ended up in icu on life support for 2 and a half weeks just because of dka is there any one else out there who has been through similar circumstances like me
 
I was told to read that book. You are another person that highly recommends it. Maybe I should just fork out the $30 dollars to read it. Have you all had the C-Peptide test? The GAD Antibody test? C-Peptide is a regular test for those of us with diabetes. I am not sure if that tells them if it is a clear 1 or 1.5. Maybe someone can enlighten me.
 
Also, just a note here, may I suggest you get a pump. I know that they are expensive, but I have heard they give a better result. Also, a friend of mine that had a kidney transplant recommended the pump right off. I have another friend that says she gets better results from the pump. I don't know how much they cost in the UK.
 
Also, just a note here, may I suggest you get a pump. I know that they are expensive, but I have heard they give a better result. Also, a friend of mine that had a kidney transplant recommended the pump right off. I have another friend that says she gets better results from the pump. I don't know how much they cost in the UK.
Thanks for the sight for Dr. Bernstein, I will tell others about that site. I did not know he even had one.
 
I was told to read that book. You are another person that highly recommends it. Maybe I should just fork out the $30 dollars to read
Look around at Kindle and iTunes and I think you can get it for much less.
 
Hello, not sure if this will post. I am a LADA, or that is what I figure since I am not a 2 and I have an autoimmune disease, but not on insulin. I have heard from another source in the US that one should start insulin to keep the beta cells from being destroyed. Is this true?
Well I am LADA for ten years, not on insulin still make plenty of insulin GAD 0.333 whatever that means and it is extremely frustrating
 
Sounds like you are in the same boat as a lot of us. I was the same, type 2 then 1.5, then type 2 again, then type 1.5 depending on what doctor I see. I am just doing what they tell me, but I worry too that the wrong meds and continuously high BG is killing what is left of my insulin producing cells. It frustrates me that they cut costs by not doing the tests we need. I understand completely how you feel being sort of left in limbo with your pancreas working some days and other days not. I sometimes wish too that it would just stop and I would be on insulin and I could just get on with my life. Nothing worse than having this black cloud of unknowing when we will need insulin, if we will need insulin.

Welcome to the forum though, there are some great people in here, and extremely knowledgeable. I would go mad without this forum!
What does anybody think of GAD antibodies and producing high insulin? At what point do the GAD antibodies go to, ie, 6.00 or what? I don't understand these antibodies. Mine is actually 0.333 what exactly does that mean. Please help so confused about LADA
 
What does anybody think of GAD antibodies and producing high insulin? At what point do the GAD antibodies go to, ie, 6.00 or what? I don't understand these antibodies. Mine is actually 0.333 what exactly does that mean. Please help so confused about LADA
It means you still have some life in your beta cells, which is great. But they won't last unless you go on insulin to lower BG so they won't need to work so hard.

When BG is high and your own beta cells are working away, the pro-insulin they produce is detected and targeted by the immune system and destroyed. Lower activity (from lower BG stimulus) => lower proinsulin so less attacking.

That's the latest theory.
 
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