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Type 1: Hi newly diagnosed and clueless! Lol

Dannyb87

Active Member
Messages
34
Type of diabetes
Type 1
Hi I went into hospital on Xmas eve with what I've now learned was DKA, I'm a 28 year old male who hadn't seen a doctor, or even had one, for 10 years. I'm a single dad with a full time job and learned I have type 1 diabetes. Because of it being the holidays I never saw a diabetic nurse or anything before I was discharged and am quite frankly clueless. My sugars haven't dropped below 11.6 since yesterday and have been as high as 26.9, they delayed discharging me due to the high count until I hit 11.6. I've tried to avoid anything that would raise my lvls but have remained near the 17 mark since I got out, pointers please? I had chicken and veg last night, with some cold meat from the Xmas dinner I missed as a snack, and I had 3 poached eggs on 1 slice of wholegrain toast this morning-the hospital food was atrocious, I ate after getting the 11.6 sent me up to 16-quiche and juice, didn't get signal at hospital to read up! I don't want to mess with my insulin as I only started yesterday but I think I might need to up it-I'm on 5 jabs a day, 18 units fast acting and same again slow acting.
 
Hi! You've come to the right place
@daisy1 will be here shortly to give you some handy info but until then:
It sounds like you've got a blood glucose tester so test before and after every meal.

I'm type 2, so there will definitely be better advice other type 1s can give - they'll be along shortly.

It'd probably help to give us some more detail eg whether you're on insulin / how much / how often and when they've told you to take it / any medication you've been prescribed.

But don't panic - the worst is almost definitely behind you and armed with the knowledge you're about to get you can get this thing under control. Good luck!!

Geoff

Edited by a mod to remove diet advice that may be inappropriate

(Sorry - you're right. I know nothing about type 1s !)
 
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I'm on 7, 5 then 6 units of novorapid with meals and 8 and 10 units of levemir - one in the morning, one in the evening. No other medication besides antibiotics for a cyst for the next few days, I'd thought I'd been really run down for 2/3 months, the symptoms are obvious now that I had diabetes, tiredness, drinking excessively (water) and peeing 24/7 etc. I'm kicking myself for a lot I had tried to do - fresh juices, glucose tablets, everything that probably put me in the hospital in the first place!
 
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Hi the timing of this is not great, I was diagnosed t1 last year aged 50. It seems frightening to start with but now looking back 1 year later I feel all my distress was unnecessary. It took me a few months to adjust to my lifestyle, I eat almost everything as I did before but in moderation.

Also just be weary what you read online , I found some information terrifying , it is a learning process and most of it is about management including your emotions.

You will soon learn how to adust the amount of insulin according to the amount of carbohydrate you are eating.
My bg levels were all over the place for my first three months as I was diagnosed as T2 put on different regimes before concluding I was T1.
 
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Hi and welcome. Once you've been on the two insulins for a week or two and have settled, do ask about carb-counting where you adjust the rapid insulin to match the carbs in the meal; it's very simple. Over the coming weeks you should also be given advice on adjusting the Basal insulin. So give it a bit of time and you'll find it becomes fairly easy to adjust your insulin and know your foods. Keep the carbs under some control to minimise blood sugar spikes and weight gain.
 
Hi

Were you given the phone number of a diabetes nurse or any follow up appointment?

Record all your food, doses and blood test results as this will help enormously - both for you to spot patterns and for the diabetes team to adjust your dosage if necessary.
 
Thank you, I am a little freaked tbh, glad there's a forum like this available! It's all very useful info thank you! They took my contact details at the hospital and said I would be contacted by a diabetic nurse in the community, I also took down the ward direct line-just in case! I just don't want to have to go back in to hospital-I'm an awful patient, get restless lying around in bed! Lmao
 


sorry to hear that bud,you sugars will be all over the place after having dka.mine took about a week to stabilise,like you i was diagnosed in july after been taken into hospital and put onto a drip for 3 days this year at the age of 29 I also have 3 kids test test test is all i can say.as time goes by you ll learn alot about diabetes
 
@Dannyb87

Hello Danny and welcome to the forum You have got some good advice above from other members. Here is some more advice which we give to new members and I hope you will find it useful. Ask more questions and someone will be able to help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find over 150,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates

Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes-and-whole-grains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

LOW CARB PROGRAM:
http://www.diabetes.co.uk/low carb program


Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to bloodglucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
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