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Type 1 or 2 so confused!

Emmie76

Newbie
Messages
3
Type of diabetes
Type 2
Treatment type
Other
Hi, I was diagnosed on Saturday by an out of hours GP (who believed type 1 because of the symptoms) with very sudden symptoms over a period of changes over 10 days which I would’ve never thought would be diabetes. Started with numb feet and legs, with losing sight, then a dry mouth and ridiculous thirst and severe fatigue. My optician caught it of all people. I did my fasting test with my lovely GP which was in his words ‘dangerously high’ plus very high cholesterol and blood pressure.

He sat me down yesterday arranging everything and said he thought type 2. Even though my symptoms were sudden.

Can someone please explain how they decide if you are type 1 or 2 please?

I know type 1 is rarer to be diagnosed in adults (I’m 41) but I’m now a little confused
 
Hello and welcome to the forum. The tests for Type 1 Diabetes are GAD and c Peptide.
Do you know your initial HbA1c test results from the blood draws? Two HbA1c tests are done to diagnose Type 2 usually a couple of weeks apart. Both types use HbA1c tests. Otherwise it is a matter of symptoms like unexplained, sudden weight loss that can indicate T1 or higher levels of ketones etc.
Did your GP discuss the possibility of LADA (Type 1.5) with you?
 
Hi. It sounds like T1 (LADA) to me. I would politely challenge the GP and ask for the tests, C-peptide and GAD, to help the correct diagnosis. Many GPs just don't understand how many are T1 and not T2 in middle-age. Your GP may be 'lovely' but he may not be an expert on diabetes. If you are not overweight then it makes T1even more likely. Do get a meter and keep an eye on your blood sugar. Keep the carbs down. Have you been given any medication yet? The usual Metformin may well not be enough.
 
I was diagnosed last year at 43 with T1. My GP said he thought T1 but the practice nurse who is supposed to be the diabetic expert said I couldn't possibly be because I was too old. The 10 days of faffing around made me very sick. In fact I would have been a lot worse if I hadn't googled everything, realised I was highly likely to be T1 and insisted on another appointment. About 20% of T1s are diagnosed over the age of 40.

I checked my BG levels in those 10 days and realised I was getting higher and higher, so used that info to insist on another appointment. If you have concerns then go back to.your GP
 
Hello and welcome to the forum. The tests for Type 1 Diabetes are GAD and c Peptide.
Do you know your initial HbA1c test results from the blood draws? Two HbA1c tests are done to diagnose Type 2 usually a couple of weeks apart. Both types use HbA1c tests. Otherwise it is a matter of symptoms like unexplained, sudden weight loss that can indicate T1 or higher levels of ketones etc.
Did your GP discuss the possibility of LADA (Type 1.5) with you?

Tagging @daisy1 for the welcome pack.

First diagnosis is often hard.
I was diagnosed after rapidly losing half a stone and other classic symptoms such as raging thirst and tiredness.
I am certainly Type 2, so it is often uncertain for the first few weeks.
Presence of certain antibodies can indicate T1 because T1 is an autoimmune disease where your own immune system attacks your pancreas. However some T1s don't show antibodies in the blood.
C-peptide is a sensible test because it shows how much. if any, insulin you are producing. However some T1s have a "honeymoon period" after first diagnosis where they are still producing some insulin.

The answer is, then, wait and see. The important thing in the short term is to treat the symptoms.
 
Hello and welcome to the forum. The tests for Type 1 Diabetes are GAD and c Peptide.
Do you know your initial HbA1c test results from the blood draws? Two HbA1c tests are done to diagnose Type 2 usually a couple of weeks apart. Both types use HbA1c tests. Otherwise it is a matter of symptoms like unexplained, sudden weight loss that can indicate T1 or higher levels of ketones etc.
Did your GP discuss the possibility of LADA (Type 1.5) with you?
Hi, Do I need to ask for both those tests as I have my results here and neither are on the sheets of results?
I’m not coping to well with the diagnosis and I’ve never felt so ill as I do now.
 
Hi. It sounds like T1 (LADA) to me. I would politely challenge the GP and ask for the tests, C-peptide and GAD, to help the correct diagnosis. Many GPs just don't understand how many are T1 and not T2 in middle-age. Your GP may be 'lovely' but he may not be an expert on diabetes. If you are not overweight then it makes T1even more likely. Do get a meter and keep an eye on your blood sugar. Keep the carbs down. Have you been given any medication yet? The usual Metformin may well not be enough.

I agree, I'd ask for those tests. My GP is good and will willingly help me with anything I ask for. But he didn't even know what a c-peptide and GAD test were.
 
I agree, I'd ask for those tests. My GP is good and will willingly help me with anything I ask for. But he didn't even know what a c-peptide and GAD test were.
Oh blimey was he young or older? That’s shocking!
I don’t want to **** off my GP by demanding extra tests!
 
Hi, Do I need to ask for both those tests as I have my results here and neither are on the sheets of results?
I’m not coping to well with the diagnosis and I’ve never felt so ill as I do now.

I would suggest that you make another appointment with your GP and tell him that you are struggling with the
diagnosis and symptoms. You can then bring up the possibility of the tests being done and see what s/he says. In the meantime keep a detailed diary of how you are feeling, your food intake and your blood glucose levels. Remember that the doctor is there to help you, you have no obligation to make his job easier or more comfortable by waiting for him to make a firm diagnosis. Good luck and I hope you start to feel better very soon.
 
Oh blimey was he young or older? That’s shocking!
I don’t want to **** off my GP by demanding extra tests!

In between.... lol ...I'd say about mid 40's

I understand not wanting to upset your gp, so maybe try the approach @Guzzler suggested.
 
@Emmie76

Hello Emmie and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.


BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 
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