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Type 1..Raised cholesterol

cjp

Newbie
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2
Hi Guys, I am new here so be gentle :D

I am a type 1 diabetic who is currently 28, I have had diabetes since I was 6 and recently have had issues with my cholesterol.

Its currently 5.0 and I am not taking anything for it but my doctor wants to start me on a statin...is this wise or should I tell them to shove it :o, everything else seems ok, My last 2 HB1A was 6.9 and 6.8 ...(Currently on 2 injections of Novomix a day and novorapid when needed)

Cheers

Chris
 
Hi Chris and welcome to the forum :) On statins...opinions are very divided on the forum so I think it's best to let the members come forward with their views. As far as I am concerned, I have been getting stiffness which I suspect may be caused by statins, so I have reduced my dose, but I continue taking a small dose as, because of my family history and high cholesterol levels, I really need them.

Here is some general information about diabetes which we give to new members, even those as experienced as you are. I hope you will find something in here which is useful to you. Ask as many questions as you like as there is usually someone here who will have an answer for you.

BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates
A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 
Hi cjp

Just to state where I'm coming from, I'm a Type 2 who took statins for 3 years pre-diagnosis and gradually developed muscle pains and stiffness which began to wear off as soon as I stopped the statins. I am now a refusnik; I will never take them again. Many people have no problems and can take them quite happily.

I've read round quite a lot on the subject, and I personally would be quite happy with a total cholesterol reading of 5.0 (my most recent one was 5.4). Many people would disagree with me!

I am far more interested in my full lipid profile - I aim for targets of:

Total: below 5.18
HDL: above 1.04
Triglycerides: below 1.7, and the lower the better
Calculated LDL: 3.3 or lower
Total/HDL ratio: less than 5

(all in mmol/l). I can't remember where I got these from, but I've been working to them for a few years now. They are for the general population. I know that "they" think that diabetics should keep their cholesterol lower, but I don't know the recommended figures for diabetics. Can anyone else help on that? for the full lipid profile?

You are entitled to a print-out of your full lipid profile (and all your blood test results) from your GP. If you don't have them, ask for them, study them, read around and see what you think.

There are pros and cons for statins, and some people seem to have no problems with them. I can only speak for myself, and advise you to read around on the subject, looking at both positives and negatives.

Good luck!

Viv 8)
 
Hi Chris,

The choice is yours to tell the doctor to ''shove it''......as daisy says opinions are divided on statins so your never gonna get the answer your looking for on here..... only you can decide to take/ignore your health-care professionals advice!

The target cholesterol numbers for diabetics are as follows:

HDL: 1mmol/l or above for men; 1.2mmol/l or above for women

LDL: below 2mmol/l

Triglycerides: equal to or below 1.7mmol/l

Total cholesterol: below 4mmol/l


Here is some useful advice from The British Heart Foundation regarding cholesterol:

http://www.bhf.org.uk/heart-health/cond ... terol.aspx


Good luck! :)
 
Hi cjp

Ask your Doctor the % of the good fats and the % of the bad fats in your cholesterol test.

If the good fats % outweigh the bad fats % you may not need to go on statins.
If the bad fats % outweigh the good fats % you may need to sit down and look at what you are actually eating, maybe try to cut out 'naughty stuff' and look at the results from your next cholesterol test :?

Good luck :D
 
Hi CJP,

My cholesterol is normal (3.9) but my doctor still tries to prescribe statins. He believes that all diabetics should be on them, especially if they have been on insulin for a long time. I have always turned them down and will continue to do so unless my cholesterol becomes high. That's my personal choice though. Why not suggest to your doctor that you give it x months to get your cholesterol down to an agreed level (not that it's particulary high at the minute)? See how that goes and then, if necessary, relook at the statins later on.
 
My husband is not a diabetic but is on statins to reduce his cholesterol. He's also on many other drugs for various proplems including Prevascan (french) a blood thinner and because I have been told to avoid all sugar T2 diabetes we have taken note of what is being written on this forum and will now start on the low carb diet which we feel will benefit us both. My question is because he's not a diabetic does he need to avoid everything containing sugar?
 
Hi Libbym,

If you're going low-carb then your husband does need to avoid sugar, because sugar is a carbohydrate. All carbs are converted to glucose in the body, which is why a low-carb or reduced carb diet is in most cases very good for keeping blood glucose readings at an acceptable level. Starchy carbs - bread, potatoes, rice, pasta, cereal - are the things you need to control your intake of.

A carb counter book is very useful - eg Collins do one in their 'Gem' series which is pocket-sized. Get into the habit of reading food labels - it's total carbs you need to look at, not just sugar.

However, if your husband is not diabetic then he can include things like biscuits, breakfast cereal etc as long as he sticks to the daily carb total he has decided on.

I find Splenda, either the tablets or the granulated form, a good sugar substitute for drinks, sprinkling on fruit etc. Other types of sweetener are available!

I try to stick to less than 30g of carb a day because I have a lot of weight to lose. Others (eg Grazer) get perfectly good BG results on 100g - 150g of carbs daily. That allows him to eat low GI foods such as Shredded Wheat and wholemeal or multi-grain bread, which are processed more slowly by the body. Still others (eg Sid Bonkers) restrict their carbs by eating everything but having only small portions of carbohydrate foods.

At the beginning, testing your BG levels before and 2 hours after meals is useful to work out how different carbs affect you.

Good luck!

Viv 8)
 
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