Hello there Oscar1996. I have diabetes type 1 too, although only diagnosed for 6 months now. It sounds like your blood sugar is high. Drinking apple juice will raise your sugar - it would send mine to the moon! What you eat and drink is very important. The way to feel better and lift your mood is to keep your blood sugar between 4.5 and 8.0 and this is done by reducing carbs (first from starches and sugars), counting carbs and injecting the appropriate amount of insulin. Do you know your insulin to carb ratio?Ever since I was diagnosed in 2015 at the age of 18 I’ve always done so bad with type 1.
I’ve had about 7 - 8 DKAs and constant high BG.
Yes I’ve heard “ it’s about taking control” but it’s harder than you can imagine. My first year of university in 2017 I had 2 DKS alone.
My second year that is now I’ve had none but I feel I’m going bad very quickly. Today I bought 1L x2 bottles of apple juice and drank 5 - 5 bottles of 750 bottle of water.
According to my Libre I haven’t tested since November 16 2018. Also my Diabetic nurse has quit her job so I have no idea who my new nurse is. I wanted answers but no one gave them to me.
Today I’ve slept around 13 hours, and all I want to do is just lay in bed. I just need someone who can relate because I just feel so alone right now.
(Moderator radio edit.)
I'm better than yesterday. I'm still registered at home, but temporarily registered here. BG is still high.Hi Oscar,
Yes, lots of us have been there and come out the other side - you can do it!
Have you tested your blood sugars? Have you got enough kit? Have you told any of your friends who you can trust to be on your side?
I think you’ll probably have the hardest challenge now when you take the fist step and test your sugars, then monitor your bloods after taking the insulin to lower them. If you can do that you’ll be on your way to getting it sorted! And you CAN do it!
You say your DSN has left, that’s not good, but will they be replaced? Are you registered with a Consultant? The Uni must have a medical centre where you can see a doc and ask them to refer them if you’re not.
There are some fantastic books as well. I like Sugar Surfing by Stephen Ponder, and Think Like a Pancreas by Gary Scheiner. Interestingly, Gary Scheiner got himself into a real T1 mess before he decided to get on top of it so that he could control it, not it him. Like I said, lots of us have been there.
I’m also sending you a hug. High blood sugars are horrible, so you need more than one.
And please get back ASAP and let us know how you’re doing.
Hi
Thank you everyone.
The replies I got made me test my BG. I didn't mention in my original post that I had been taken of the Libre sensor because I never made it to an appointment (back last year in November) because I was at University and my Dr decided to take me off the Libre sensor as I never made it to that appointment. Ever since I just decided to stop because I thought I could make progress on getting a better way to test my BG and going back to Blood testing was a step back, and I feel like all my DR actually cares about is getting statistics and not actually helping.
My last BG was 17.3 if you were wondering.
Hi @Oscar1996 ,
Thanks for getting back & letting us know.
My view is if your doc has prescribed you the Libre. Grab it with both hands. Appointments can be rescheduled if you phone up well in advance. I'm not sure if you are located away from your surgery due to uni? But registering with a GP nearer your "digs" may help?
Maybe liaise with your uni too, explaining vital check ups/treatment for a long term condition.?
Most of us Ds appreciate the frustration when an apointment letter arives with a dodgy date.
I do this with work. & find them quite accommodating when I keep them in the "loop."
I don't really know how to get it again, I can't keep going back and forth. I don't know if Cheltenham are prescribing it.
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