Type 1'stars R Us

kitedoc · Aug 30, 2018

Knikki said:
@Chris Bowsher In the past 6 weeks I have gone from injecting Nova Rapid in an almost set amounts plus Lantus again in a set amount using finger prick machines to having tech in my arm connected to several apps, changed insulins to something completly differnet and using less insulin in one go but much more corrective doses.

Oh! and using Jelly Babies to deal with hypo's, at least there is an upside to all of this

Before that all I was really concerned about was Hb1Ac results and the last time I had it checked was the highest it has been for the last 10 years at 43 I really want to be back down to 38.

So in the last 6 weeks diabetese has become a much more "in your face mate" than it has for the last 50 years.

Is it a good thing?

I suppose it is a Yes, No senario and to me it is still a game to try and keep things in that stupid, daft, ar5e green band on the Etch A Sketch

Update now running at 5.5 and level.........hopefully stay there for the rest of the day

But Hypos are more immediately damaging than hypers. I wish you luck on the Dulac. I think you might find it frustrating because there is not guarantee that your insulin sensitivity will be the same day and night as far as the long-acting insulin is concerned (and you will know that that applies to the Asphidistra anyway) and Dulac has the overlap effects ( 42 hours does not do into 24 hours) a risk, I think personally, for hypos.
Why not use levemir where there is at least a possibility to adjust every 12 hours.? Adjust much easier for exercise, illness etc.
Adjusting for illness etc will be days out on the Dulac, virtually out of control. Best Wishes all the same !!

slip · Aug 30, 2018

kev-w said:
our hospital's got wifi

Working for the university and going to the uni hospital means I'm always on wifi - so have never checked to see if theres a public wifi, mind you theres 'no mobile phone' signs up in the waiting area - bet the receptionist thinks I'm a complete idiot/rebel (delete where appropriate )

Well done on your hba1c.

kev-w · Aug 30, 2018

Result another 6 months script for the Libre and thank you for the good luck wishes!

Still the same situation, prescription issued from secondary care (hospital & their pharmacy) but off the record I'm told there's a favourable result in the data collection regarding hba1cs for those who were lucky enough (loose term used loosely) to get the device, my only gripes are a cholesterol of 4.2 (a slight rise) and BMI at 24/5 meaning I've lost half a kg so back to a tin of tuna for lunch instead of the current hard boiled egg and to stop multi snacking on peanuts

@smc4761 Yeah 30 odd year ago clinics, and the days you go when it was full of amputees, queue for the blood test, wait, watch someone drop with a hypo, wait, wait some more
@slip I'm a mobile cheapskate, an old iPhone 4s with 3g but my son in law lent me his fon password so I use that and save credit I've spent a fair amount of time at the hospital this year but that was the first time I've seen on site Wi-Fi and was pleasantly surprised.

Happy days as the young uns round here are wont to say.

Alison54321 · Aug 30, 2018

kev-w said:
Result another 6 months script for the Libre and thank you for the good luck wishes!

Still the same situation, prescription issued from secondary care (hospital & their pharmacy) but off the record I'm told there's a favourable result in the data collection regarding hba1cs for those who were lucky enough (loose term used loosely) to get the device, my only gripes are a cholesterol of 4.2 (a slight rise) and BMI at 24/5 meaning I've lost half a kg so back to a tin of tuna for lunch instead of the current hard boiled egg and to stop multi snacking on peanuts

That's good news. It's also good news they are seeing good results from the people using it.

I read a blog, I think, by a DSN? I can't remember, and she said that patients were engaging more once they got Freestyle Libre, they were all happier. That probably creates a much more positive feedback loop, and the more the medical professionals start to like it, the more they'll push for it.

Very good news.

porl69 · Aug 30, 2018

Mel dCP said:
Bore da ffrindiau

I can remember singing that nursery rhyme

Winner @kev-w on the Libre. Not so good on the cholesterol thou, sure you will sort that out pretty quickly

I woke to a 7 something, memory has gone today and been a straight line ever since.....in fact I will put a pic up shortly. Just been to the GP to have my feet checked (hate that as I am super ticklish) they are fine. My last cholesterol was 3.4 so have asked for another cholesterol check and will find out next week. If it is still below 3.9 I will be asking to be taken off statins!! Also asked when I was diagnosed as type 1. I thought it was April 1st 1972....It was 15 January 1971. Why I had April 1st stuck in my head is a mystery. So I am coming upto 47 years type 1

porl69 · Aug 30, 2018

And here is my straight(ish) line woohoo

Cumberland · Aug 30, 2018

Good morning friends
Sunny up here that’ll do fine

8.7 today on rising been a **** week so far but I’m happy to be in single figures

Have a good day

Cumberland · Aug 30, 2018

@kev-w

Congratulations on your HbA1c I bet you are well chuffed with that result good lad

Knikki · Aug 30, 2018

kitedoc said:
Why not use levemir where there is at least a possibility to adjust every 12 hours.? Adjust much easier for exercise, illness etc. Adjusting for illness etc will be days out on the Dulac, virtually out of control. Best Wishes all the same !!

A fair question, I simply want a "back ground" insulin, which will trundle along and give me a level playing field to work from.

In the past for illness or exercise I have never adjusted my long acting insulin as I have always though (was told and now I know better) that Lantus lasted 24 hours and in the past found that, for me, it would take...maybe 3 days to pick up and because of that never adjusted it.

Not quite true, I have pushed the Lantus down because of hypo's during the night and after splitting I ran low but no where near as bad as before.

Don't forget I am not on a pump so adjustments are probably not as quick

As it is only Day 2 of Dulac and I am aware that it take a few days for changes to be picked up, I will give it a try at least for a year. If it all goes breast vertical then I will see what Levemir can offer.

But thanks you for you thoughts

On a side note: last night was better but the morning was up amongst the gods again so after a fight, Etch A Sketch said 2.6 then xDrip said 3.1 either way not great but getting there sat here at work reading the forum waiting for things to go up then off out for a coffee

@kev-w Good news on the Etch A Sketch and the bloods time for a celebratory curry

slip · Aug 30, 2018

kev-w said:
there's a favourable result in the data collection regarding hba1cs for those who were lucky enough (loose term used loosely) to get the device

Alison54321 said:
That's good news. It's also good news they are seeing good results from the people using it.

Somewhere the Edinburgh hospital (?) posted a minimal overview of hba1c results pre-libre and post-libre (they have a liberal(sensible!) view on prescribing the Libre) and from memory the results were startling to say the least - 3 columns covering the ranges - good (within target), medium and poor (above NICE guidelines), pre-libre percentages were like 10,50,40, post-libre were 30,60,10 or values of that ilk - and now can i find it nah!

Knikki · Aug 30, 2018

kitedoc said:
But Hypos are more immediately damaging than hypers.

True, but if I worried about them all the time I would do nothing, life is to short to be that worried, yes I am aware of both and respect both but they do not rule my life, never have.

It is only the advent of this technology that I have on my arm that I have become "more aware" of them and while an 11 is not that High, for me, it is, and I don't want to be there.

And yes a 2.6 is not good and can sometimes stop me, not often, then Jelly Babies, cake, jaffa cakes etc are a great thing to eat and enjoy (I know Mel will be spitting cobs at that )

Ultimatley I'm playing the game of "keep it in the green Etch A Sketch band" and now I have new insulins to play with, yes it will be a bit of trial and error but I will get there even if it is a bit of a rough ride.

I mean, what could possible go wrong?

smc4761 · Aug 30, 2018

slip said:
Somewhere the Edinburgh hospital (?) posted a minimal overview of hba1c results pre-libre and post-libre (they have a liberal(sensible!) view on prescribing the Libre) and from memory the results were startling to say the least - 3 columns covering the ranges - good (within target), medium and poor (above NICE guidelines), pre-libre percentages were like 10,50,40, post-libre were 30,60,10 or values of that ilk - and now can i find it nah!

Hi Slip

It was posted by Scott C and is on page 221 of this thread. really interesting reading

slip · Aug 30, 2018

smc4761 said:
Hi Slip

It was posted by Scott C and is on page 221 of this thread. really interesting reading

I'm an idiot

kitedoc · Aug 30, 2018

Knikki said:
True, but if I worried about them all the time I would do nothing, life is to short to be that worried, yes I am aware of both and respect both but they do not rule my life, never have.

It is only the advent of this technology that I have on my arm that I have become "more aware" of them and while an 11 is not that High, for me, it is, and I don't want to be there.

And yes a 2.6 is not good and can sometimes stop me, not often, then Jelly Babies, cake, jaffa cakes etc are a great thing to eat and enjoy (I know Mel will be spitting cobs at that )

Ultimatley I'm playing the game of "keep it in the green Etch A Sketch band" and now I have new insulins to play with, yes it will be a bit of trial and error but I will get there even if it is a bit of a rough ride.

I mean, what could possible go wrong?

Everything could go right, or wrong but yes, one cannot get hung up on such things. And real time monitoring is a great tech advance. And Mel being on a low to no carb diet will not be eating corncobs, so no worries !!

Alison54321 · Aug 30, 2018

slip said:
Somewhere the Edinburgh hospital (?) posted a minimal overview of hba1c results pre-libre and post-libre (they have a liberal(sensible!) view on prescribing the Libre) and from memory the results were startling to say the least - 3 columns covering the ranges - good (within target), medium and poor (above NICE guidelines), pre-libre percentages were like 10,50,40, post-libre were 30,60,10 or values of that ilk - and now can i find it nah!

Fraser Gibb on twitter did this graph, here's a screenshot, and a link

https://twitter.com/drfrasergibb/status/1030504158980435968

porl69 · Aug 30, 2018

slip said:
I'm an idiot

SORRY had to hit "AGREE"

Knikki said:
True, but if I worried about them all the time I would do nothing, life is to short to be that worried, yes I am aware of both and respect both but they do not rule my life, never have.

It is only the advent of this technology that I have on my arm that I have become "more aware" of them and while an 11 is not that High, for me, it is, and I don't want to be there.

And yes a 2.6 is not good and can sometimes stop me, not often, then Jelly Babies, cake, jaffa cakes etc are a great thing to eat and enjoy (I know Mel will be spitting cobs at that )

Ultimatley I'm playing the game of "keep it in the green Etch A Sketch band" and now I have new insulins to play with, yes it will be a bit of trial and error but I will get there even if it is a bit of a rough ride.

I mean, what could possible go wrong?

I am totally with you on this
Should I tag Mel for you

porl69 · Aug 30, 2018

smc4761 said:
Hi Slip

It was posted by Scott C and is on page 221 of this thread. really interesting reading

WOW 221 pages, now 231. Doesn't time fly when your having fun (OR hypos)

Robinredbreast · Aug 30, 2018

Good afternoon, I wanted to share my good news with you guys ........ I have been offered the part-time job with Deeset who works within Morrison's. I had the phone call this morning, I am a retail merchandiser and I am so pleased, chuffed to bits More stability than REL, which was zero hours. A new beginning at 60, no more interviews with the Job Centre and as my son said when he was here, top banana mum

( no banana emojis though)

Molly56 · Aug 30, 2018

Robinredbreast said:
Good afternoon, I wanted to share my good news with you guys ........ I have been offered the part-time job with Deeset who works within Morrison's. I had the phone call this morning, I am a retail merchandiser and I am so pleased, chuffed to bits More stability than REL, which was zero hours. A new beginning at 60, no more interviews with the Job Centre and as my son said when he was here, top banana mum ( no banana emojis though)

Congratulations from us both @Robinredbreast .....great news on your new job....hope it all goes well.....

karen8967 · Aug 30, 2018

Robinredbreast said:
Good afternoon, I wanted to share my good news with you guys ........ I have been offered the part-time job with Deeset who works within Morrison's. I had the phone call this morning, I am a retail merchandiser and I am so pleased, chuffed to bits More stability than REL, which was zero hours. A new beginning at 60, no more interviews with the Job Centre and as my son said when he was here, top banana mum ( no banana emojis though)

Congratulations robs

great news

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