Good morning ladies
Well in contrast to yesterday it’s dull grey cloudy with a threat of showers to come
7.5 this morning so that’s ok for me
Have a good day peeps
think you're due more than 'showers' today
The plot thickens, hospital phoned me back and said 01/01/1984 my records start, BUT it could have been any time that year, I've come home to Google a calendar and find 5 Fridays in that October,so if I take the middle one it gives me the 15th, intuition says the 22nd but if I say the 15th I'm not going to be far wrong (the Fri before diagnosis I'd had blood taken as I was a little ill)
It's a little thing but has bugged me somewhat
I'd passed my motorbike test late summer but had my licence stopped which was annoying as I'd borrowed a 'legger' (Reliant Regal) for the winter whilst I rebuilt my scooter, I remember the morning cycle ride to work being quite hard in the beginning, cold at 06.50 with 4 miles to ride having been up since 5am to inject and eatOctober is a month where the weather changes quite fast, as the beginning still feels a bit summery, and by the end, partly because of the clock change, but just because it is, it starts to feel like winter is coming.
So maybe your intuition has some value here, and maybe it felt like late October.
Hi @Fairygodmother, another thought or two on applying for insulin pumps. it is as though the hops are there to be jumped through sooo .. does one do as the DSN suggests and let the BSLs raise and the HBA1C with it until the HBA1C reaches the level required for intervention by pump?, as well as having more hypos, being unable to exercise because of them plus have nightime hypos all to prove one needs a pump?Morning all. Well tried reducing the evening ratio and had to correct for a high at 3.00 am. It’s either correct for a low at that time or for a high. Like having a newborn! But without the prospect of it growing up and no chance at all of it taking me out to see the bluebells when I’m too old to be steady on my pins. Come to think of it, I’ve daughters who’ll do that, so I really don’t need this one.
It seems lots of us are having bs glitches at the moment, could it be the unseasonal weather? It’s like a midsummer day here.
Does said consultant understand that possible due to your early wakening and sleep disturbance you could be less able to drive your car in the morning? And alternatively how many high fasting BSLs does it take to cause retinopathy or something equal or worse to happen. What did you do to stop this doctor?If you are recording those doses in your Libre so that they show up on the reports, and they are at an early enough hour (which was what I did), then the conversation with the Consultant may go something along the lines of (based on my experience with a Specialist Registrar...):
Consultant: I see you're very well controlled [SIC]
You: I'd like a pump due to dawn phenomenon.
Consultant: Well your BM tests [SIC] don't need it and your Hba1C is well within limits, so you don't need one, and I don't see dawn phenomenon on your reports.
You: That's because I have to get up at [insert time] and correct every morning.
Consultant: Okay so you're managing it then. You're Hba1C doesn't qualify you for a pump
You: Do you have to get up at [insert time here] every morning to ensure you don't go blind, suffer kidney failure or go blind?
Consultant: Errrrr.....
Good luck - I hope the consultant is more accepting than mine was.
Hypos at night used to drive me mental - That should meet the criteria one would think ??!! And no, taking sedatives (which one less than brilliant HP suggested) is only going to make awareness even less !!This is a really tricky question. You're obviously motivated because of the recent improvements you've made, but as you say, that could count against you in terms of one of the criteria NICE uses. The other, about hypos, refers to "disabling hypoglycaemia" which it then defines as "the repeated and unpredictable occurrence of hypoglycaemia that results in persistent anxiety about recurrence and is associated with a significant adverse effect on quality of life". Your recent unexpected hypo experience should add weight to this aspect, as, if I remember right, this has only occurred since you've been working so hard on getting your levels down. The argument you could make there would be that fear of repeating that kind of hypo is deterring you from continuing to aim for lower levels using MDI.
As you say, it's really hard to know how to play it for the best and hideous that there's a game to be played at all with something so incredibly important. Good luck with whatever you decide
Please record all those hypos for your pump appointment!!!Early start for me as well this morning at 5.30 woke up quick check on Libre and 2.1. After my experience of hypo a couple of weeks ago, full panic mode kicks in. Downstairs, kettle on numerous sugars into a cop of coffee and 3 choccy biscuits. I have noticed now that when i get really low I am starting to get slightly blurry vision. 5 mins later getting back to normal, BG on rise and panic over.
Back to bed for final hour before I had to get up, now at 9.7. Great start to day NOT
Hope you guys are having a better day
Hi @Fairygodmother, another thought or two on applying for insulin pumps. it is as though the hops are there to be jumped through sooo .. does one do as the DSN suggests and let the BSLs raise and the HBA1C with it until the HBA1C reaches the level required for intervention by pump?, as well as having more hypos, being unable to exercise because of them plus have nightime hypos all to prove one needs a pump?
Hi @tim2000s, Based on reading/experience and caution: Whilst it makes sense that one's brain resting at night may need less fuel and maybe tolerant lower than usual BSL levels in non-T1Ds - I am concerned that with T1Ds there can be issues to do with insulin absorption; the levels of insulin in the blood of these non-TiDs vs T1Ds; the very precise BSL control of blood sugars the pancreas gland on non-T1Ds vs insulin injected for T1Ds; the effect of exercise during the day on T1Ds' BSLS overnight and uncertainty about the level of liver stores of glucose in individual T1Ds that could all or separately make such levels at least risky to be exposed to. (and the blood glucose monitoring systems used by T1Ds are not necessarily as accurate as the ones used to obtain quoted results on non-TIDs)He may be wrong about that. Whilst I'd agree that sub-3.5 mmol/l overnight is probably a little low, there's now been a load of work done that shows that non-T1Ds regularly end up between 3.3 and 3.7 for long periods overnight...
And the Libre is definitely sensitive to temperature. It contains two thermistors (temperature related resistors) that produce values that are included in the Algorithm's calculations. Hot baths, and to a lesser extent, hot showers, definitely affect it.
Hi @Fairygodmother, but pumps have the ability to prevent complications, maybe reverse them etc. The UK Govt does not help either with its dismantling of the NHS. Sic the MP who is behind LCHF diets onto them !!! Now would Meghan Markle like a challenge.? Sponsoring charities for buying pumps etc??TBH, @kitedoc, life’s too short to enter that kind of T1 purgatory! But yes, it seems that’s what’s required. I think that as our beloved NHS suffers increased stresses the funding’s been cut and criteria have changed. They’re seeking prevention of complications, which is admirable, rather than optimal treatment for all.
I wish I could afford to fund myself for a pump, but I can’t. In the meantime the half unit hypo dance goes on. It’s more or less worth it for the increased cheerfulness and energy that comes with nearer ‘normal’ bs.
My younger daughter’s LE, and so’s my ‘part time job venture’, but my home postcode’s CT, in Kent. Yes, I’ve heard that Leicester’s really good for T1 but I’m not sure if I can morally, and logistically, use the LE connection.
I'm comfortable that if I drop to a CGM level of 3.5 overnight, it is inline with the experience of those who don't have t1d in terms of sensor accuracy. I'm also comfortable that given I'm using a closed loop, that's a safe level to get to whilst asleep as I'll not have had insulin on board for a good 1-2 hours prior to that.Hi @tim2000s, Based on reading/experience and caution: Whilst it makes sense that one's brain resting at night may need less fuel and maybe tolerant lower than usual BSL levels in non-T1Ds - I am concerned that with T1Ds there can be issues to do with insulin absorption; the levels of insulin in the blood of these non-TiDs vs T1Ds; the very precise BSL control of blood sugars the pancreas gland on non-T1Ds vs insulin injected for T1Ds; the effect of exercise during the day on T1Ds' BSLS overnight and uncertainty about the level of liver stores of glucose in individual T1Ds that could all or separately make such levels at least risky to be exposed to. (and the blood glucose monitoring systems used by T1Ds are not necessarily as accurate as the ones used to obtain quoted results on non-TIDs)
Without something more definite I am unsure that T1Ds can rest assured as being safe at such levels overnight.
Please record all those hypos for your pump appointment!!!
Afternoon all, what a lot to catch up on! Poxy night here too, high alarms kept going off (convinced it’s this grotty chest thing making me run high), so corrected and put on a +20% basal. Overslept until 10am with a 3.6 and my hypo alarm shouting at meI’d missed my ride to sewing group, and was of course too low to drive myself. Chugged a load of dextrose and coffee and as soon as I hit five I was out the door.
5s and 6s since, just had a lovely lunch of asparagus, mushrooms and poached eggs. More coffee in an effort to keep awake and start my online community First Responder training! Have bought myself a pair of blokes’ cargo trousers with lots of pocketses, so I can stash my necessary kit about my person when I’m doing the thing.
Had a copy of the letter last week from my diabetes consultant to my GP (I request copies of EVERYTHING) only to find it’s full of errors, wrong medications and saying an HbA1c of 40 was 6.7%... so I emailed to rectify all that for my records, and had a lovely reply this morning, so that’s all sorted.
@smc4761 - I may have mentioned it before, but when uploading to Diasend, your phone upload will override all the details in your scanner upload, so it’s best to log it on your phone if you’re using both. When I was discussing my idiotic injection schedule over the phone they were looking at Diasend and couldn’t see all the injections (I’d been logging on my scanner), just a nice graph, which just looked to them like I was managing well. I had to tell them to look at LibreLink as well, to get the full picture.
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?
We use cookies and similar technologies for the following purposes:
Do you accept cookies and these technologies?