I feel your pain Helen, so basically if you became out of control potentially putting your life at risk you "might" get a Libre. What a shocking attitude from some CCG.
Meanwhile some wee jakey wants his daily dose of methadone and of course they get that, no questions asked. So infuriating.
I know the NHS does not have a bottomless pit of money but they seriously need to prioritise where the funds are spent.
Its early days for the Libre but the results from some studies, I think Scott C posted one a few weeks ago, showed people with Libre showed a huge improvement in the HB1AC.
I was very fortunate I got one about 5 months ago and my figures are the best they have ever been in 37 years. Libre gives you the knowledge to control your BG, ultimatley giving you better control therefore in longterm less complications therefore less cost to NHS.
I am wondering could Diabetes UK try a test case through the courts and we are being denied something that could greatly improve our quality of life
Robinredbreast - The forum colours were changed, in order to meet accessibility standards for contrasts, for those with visual impairments. It wasn't just a whim.
I may try this approach at my annual review although I am not using the readings to make lots of corrections. Being on a pump, I should be able to set the basal, insulin to carb ratio, etc. (based on historical data) so I do not need to make lots of corrections.
Regardless, I would not test this number of times a day if I self-fund the Libre!
I meant just to say you do just so you get libre on prescription i self funded for nearly 12 months b4 i was accepted this is what my dsn told me to say to consultant and it worked.really i think it should be prescribed to all type 1s as sometimes this diabetes lark does what it wants regardless of all our efforts .I may try this approach at my annual review although I am not using the readings to make lots of corrections. Being on a pump, I should be able to set the basal, insulin to carb ratio, etc. (based on historical data) so I do not need to make lots of corrections.
Regardless, I would not test this number of times a day if I self-fund the Libre!
One of the criteria for libre is to test at least 8 times aday cant yoy say that you do that and that is why you have good control because you test and correct multiple times
Do you have a libre beccaAnd you usually have to have one other as well. ie an hypoglycaemic incident requiring outside help in the last year. Hypo unawareness.
Anybody could say they test 8 times a day. I could do it easily if it would get me the thing for free. Last time I was at the hospital I was told a large majority of type 1s test infrequently. I was frankly shocked.
You can’t just SAY you test 8+ times a day, you need to prove it by showing your meter. And if you try hypo unawareness as a reason, you risk losing your driving licence. Same with the “hypo requiring outside help” reason. It’s maddenning.
One of the criteria for libre is to test at least 8 times aday cant yoy say that you do that and that is why you have good control because you test and correct multiple times
You can’t just SAY you test 8+ times a day, you need to prove it by showing your meter. And if you try hypo unawareness as a reason, you risk losing your driving licence. Same with the “hypo requiring outside help” reason. It’s maddenning.
I must of just been lucky mel as consultant just said i met the criteria never took fingerprick meter with me just my own libre meter which at the time read low with some scans although i wasnt.You can’t just SAY you test 8+ times a day, you need to prove it by showing your meter. And if you try hypo unawareness as a reason, you risk losing your driving licence. Same with the “hypo requiring outside help” reason. It’s maddenning.
Couldnt agree more becca@karen8967 am lucky enough to have had it funded for a year by a family member. It has been brilliant, but not without incident. I succumbed to the dreaded itchy rash. Am at present spraying Cavillon underneath successfully. Starting January it will be back to blood testing only.
As I said earlier it has been classed as a red drug in Leeds and can only be prescribed by the hospital (am there tomorrow actually!) Last year my consultant told me that the grand total of 8 people had been given it.
As I said earlier, pigs will fly before I get it. Let’s face it I am one of those (like others on here) who monitor well, carb count accurately, exercise regularly and work my socks off to keep in range. The postcode lottery is outrageous. Taking children out of the equation, who I believe should absolutely get it, it should be every type 1 who wants it, or no one. It doesn’t sit well that no matter that we all pay into the system it doesn’t necessarily mean you are eligible.
This was one of the things I mentioned (with meter to prove) at my last appointment. I was prescribed 4 sensors one time once I signed up to attend the next DAFNE course.Yes, I didn’t express myself properly. I meant that if 8 times a day was the only criteria you could soon get your act together and rack up 8 blood tests a day. Especially if you drive.
Wow i must have been extremely lucky some of the criteria you mention is ridiculous just more excusesNot all CCGs are using the testing 8 times a day criteria, some are being really difficult, and as @helensaramay says, some of them are saying you have to have had 2 hospital DKA admissions, and maybe a couple of other equally hard to achieve criteria. It really is a joke.
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